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GFinDC

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Everything posted by GFinDC

  1. GFinDC
    Hi geckox, Your are right, the celiac disease testing process is crappy. If you aren't eating gluten for awhile before the testing then the testing is useless. NCGS does not cause gut damage. Celiac disease does. You can't get rid of your immune response by not eating gluten for 5 years. I've been gluten-free for 9 years and I still have...
  2. GFinDC
    Hi Lucy, The doctor screwed up by letting/telling you to have her go gluten-free before testing was completed. That's always a mistake. The antibodies that they test for are going to decline once a person goes gluten-free. The University of Chicago celiac center recommends 12 weeks of eating gluten for blood antibody testing, and 2 weeks of eating...
  3. GFinDC
    You could ask him about it and see what he says. Then decide if it makes sense to you.
  4. GFinDC
    I thought it was a little strange too Karen. It's not obvious where the gluten would be hiding in the sorbet from the ingredient list. Perhaps it is a website mistake.
  5. GFinDC
    Hmm, are you sure the Haagn Dazs loves you? The ingredients list includes wheat and dairy, and little soy just to make things extra obnoxious. I am not sure how they fit all those nasty things into sorbet, it doesn't seem like really helpful ingredients for making sorbet to me. Open Original Shared Link Mango Sorbet nutritional facts ingredients...
  6. GFinDC

    ARCHIVED Help

    GFinDC replied to Airchee's topic in Coping with Celiac Disease

    Hello Airchee, First off, are you gluten-free and have you been tested for celiac disease? If you just went gluten-free recently then it can take a while for symptoms to improve. Ok, sorry, I see you are diagnosed already. Many of your symptoms may be related to celiac disease effects. Damage to the gut lining (villi) impairs the ability to absorb...
  7. GFinDC
    Hi Kamoku, Maybe you should try giving up dairy for a month or 2. See if it helps any.
  8. GFinDC
    Hi Diane, The DGP IgG is very specific to celiac disease reactions. So it wouldn't be positive for another condition. Symptoms are not a perfectly dependable way to diagnose celiac disease. Many people have no GI system symptoms but still have celiac disease. They may no have symptoms at all (called silent celiac) or they may have symptoms in other...
  9. GFinDC
    Hi Drummergirl, Being diagnosed is up to you. It doesn't get you a gold star if you are diagnosed or not. You still have to eat gluten-free if you are officially a celiac or unofficially a celiac. Or you should anyway, IMHO. Yes, symptoms can get better and fatigue can get better too. It may take some time for that to happen though. A recent...
  10. GFinDC

    ARCHIVED Discouraged

    GFinDC replied to Fbmb's topic in Coping with Celiac Disease

    The Doritos also have dairy in them. But you ate dairy several times that day so it would be hard to say if it was the Doritos causing a problem.
  11. GFinDC
    The gluten challenge is 2 weeks for the endoscopy and 12 weeks for blood antibody tests per U of Chicago celiac center. There's not much point doing the testing if you can't do the challenge period. It would probably be a waste of money and wouldn't tell you anything definite. If you are having different symptoms after giving up dairy for a couple...
  12. GFinDC
    Hi Diane, There is a condition called eosinophilic esophagitis that might fit you. Open Original Shared Link
  13. GFinDC
    Nope, I never tried either of them. But you can try searching for them on the gluten free drugs site and see what you find. Open Original Shared Link
  14. GFinDC
    Hi SLLRunner, Sometimes people just don't get a diagnosis. There's the option of doing a gluten challenge for testing, but if the symptoms are too bad then that is pretty much out of the question. You could do some undercover testing yourself if you are willing. You could eat a barley full meal and see if you have a reaction And later eat a rye...
  15. GFinDC
    Hi Katie, It's up to you how to handle her testing for celiac disease. But if you think she has celiac, it is important to keep her eating gluten until the testing is done. If she goes off gluten before the blood samples are drawn or the endoscopy then the test won't be accurate. That being said, there is a possibility the testing won't show antibodies...
  16. GFinDC
    Hi Erine, If you have symptoms from eating gluten then I'd venture a guess that gluten isn't good for your body. Some people would say I am NCGS but Dr. Fassano said he thinks I have celiac so I go with that. Even though my tests results were negative after 4 months on the gluten-free diet. I have a variety of symptoms when glutened, and...
  17. GFinDC
    Hi IronicT, I haven't had those symptoms exactly. I've had faster heart rate at times, and feeling my heart beat against the inside of my chest. I've even had my heart go all a flutter when seeing a pretty girl or a shiny new gun! If your symptoms don't cooperate when you are at the doctor, maybe they can equip you with a monitor to record heart...
  18. GFinDC
    Hi Persianceliac, I am sorry I can't help you with your question because I never had the endoscopy myself. hopefully someone else will have a similar situation and come along with advice. Here is a link to the Newbie 101 thread. It has some general tips for getting started eating gluten-free. Welcome to the forum!
  19. GFinDC
    Yep, lactase doesn't fix every problem. Lactase can help with digesting diary sugar, but not dairy protein. IF you take a break from all dairy for a few months (maybe 6 months) it may give your immune system a chance to relax a bit and kind of stop the dairy reaction. Then you may be able to eat it again. But that doesn't work for everyone. There are...
  20. GFinDC
    Hi Sharon, You can try some Milk of Magnesia for C. I suggest you do eliminate dairy for a couple months to see if it helps. I assume you are newly gluten-free? I think the best way to start the gluten-free diet is to eat mostly whole foods, like meats, eggs, veggies and nuts. Try to avoid any processed gluten-free foods for a while, even gluten...
  21. GFinDC
    Carbohydrates are turned into sugar in the gut. Check the glycemic index for the foods. White rice has a higher glycemic index than table sugar. Note, the article linked is not geared towards celiac patients. Open Original Shared Link In general, avoiding carbs and concentrating on proteins and fiber is a good way to go when attempting to reduce...
  22. GFinDC
    Hi Rogelio, Welcome to the forum Have you been diagnosed with celiac disease? You didn't say in your intro so I thought I should ask. There is a skin condition associated with celiac disease called dermatitis herpetiformis. It causes a very itchy skin condition that is symmetrical on the body. Meaning you have the rash on both arms, or both...
  23. GFinDC
    Hi Poorlypup, You can spell it that way ifn you wanna! Actually the forum editor doesn't like how I spell celiac either. I hope you get some answers or at least some good questions from your doctor. Getting an clear diagnosis is nice, but sometimes they are hard to come by in the celiac world. I wonder what they mean by showing a leaky gut on...
  24. GFinDC
    I suggest you also have a talk with the gramps and explain the disease to them. A little bit every once in awhile is NOT OK! They need to understand they are causing damage to his body by giving him gluten, and the effects can continue for weeks to months. Celiac disease is an autoimmune condition and that means the bodies own immune system attacks...
  25. GFinDC
    Hi Leotto, I think celiacs who are new to the gluten-free diet should avoid all sugars and carbs for a few months. Sugar and carbs feed bacteria in the gut if they are digested well. Which is a common problem in celiac. So they can cause bacteria overgrowth symptoms, like excessive gassiness, pain, and possibly others. In addition while a new celiac...
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