Takala
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Latest Celiac Disease News & Research:
Everything posted by Takala
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ARCHIVED Testing Question
Takala replied to GlutenFreeAustinite's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, but.... as if average run of the mill person is going to realize this. Another way of saying "gluten- related- problem." -
You will discover you will get more and more sensitive to gluten cross contamination and "accidents" over time. THIS is your PROOF that it's not "all in your head." Ask yourself what you would be doing if you were not sick all the time. Consider changing your diet to reflect what you need, not what you think you need. Vegetarian is designed...
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ARCHIVED Do I Still Have Celiac Disease?
Takala replied to LaceyBurke's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you can find some uncontaminated buckwheat groats (kasha, каша Open Original Shared Link ) and find some potato starch (or even in a pinch, make some mashed potatoes) you can make a lot of different things out of them. If you have a blender, you can also grind nuts and make nut meals to bake with, using egg and yogurt. Plain rice is pretty much ava... -
ARCHIVED Testing Question
Takala replied to GlutenFreeAustinite's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You go to the doctor's office in person, and you tell them you are not leaving until you get a copy of the lab's test results, which you know they have already because the office told you this. A month back on gluten wasn't long enough for you. YEARS on gluten wasn't long enough for the rest of us, and some of us had extraordinary levels of damage that... -
ARCHIVED Epic Fails: Soggy Crepes And Horrible Waffles
Takala replied to birdie22's topic in Gluten-Free Recipes & Cooking Tips
On this same thread as mentioned above, at message #8, I have a recipe for gluten free, egg free, dairy free buckwheat pancakes that works REALLY well. The same proportions of 1/3 each buckwheat, potato, and bean flours works well in other recipes, too. -
ARCHIVED Advice On Re-Glutening
Takala replied to parmeisan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
:lol: :lol: Q. A. $$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ Yeah, I'd be perfectly willing to waste a half year of my life with migraines and more brain damage. Not. -
ARCHIVED Going To Try Giving Up Lactose, Too
Takala replied to Pisqualie's topic in Coping with Celiac Disease
Butter is the "distilled" fat of the raw milk, so technically it has very little casein protein in it. Some people use ghee, which is clarified butter which has been further cooked to just be purer. Others just switch to other things such as olive oil, coconut oil, palm shortening, lard, that "Smart Balance" margarine stuff, etc. I am not good with... -
ARCHIVED Acid Reflux
Takala replied to KMMO320's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is a major symptom of celiac and gluten intolerance diseases. -
ARCHIVED Going To Try Giving Up Lactose, Too
Takala replied to Pisqualie's topic in Coping with Celiac Disease
I like canned coconut milk so much as a coffee creamer I didn't switch back, even after I regained the ability to have some dairy, such as cheese. Organic dairy sits better with me. -
Oh, fer Pete's sake, that is so gross! Contact the county health department. I treat the packaged meat as if it all might be contaminated with bacteria anyway, and I put it in those clear plastic produce bags that they have rolls of displayed near certain areas for putting individual unpackaged items into. When I head over to the meat counter...
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ARCHIVED So Frustrated With Blood Tests And Scopes
Takala replied to lizzybeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, those are the right tests for celiac, but it is not a full complete blood panel, there are a few more they could run. But it is a start. Only a single biopsy from a scope of the small intestines, not good. Other tests that they can run: an antibody test for thyroid auto immune disease, which is not the same as just checking the thyroid... -
ARCHIVED In The Process Of Diagnosis...high Iron?
Takala replied to aeon077's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, going gluten free would possibly skew the CELIAC blood tests towards a false negative. It should not mess up the other tests. Has anyone done a celiac blood panel on you ? No reason to make you wait on the second blood test for celiac. Not unusual to have either a positive blood test result on one or more of the celiac blood panel tests, then... -
ARCHIVED Untreated Celiac, Can Affect The Brain And Lifespan
Takala replied to cmoore's topic in Coping with Celiac Disease
Not if we people with the actual brain damage visible on a scan keeping talking about it. See this thread from April 2012: -
I only eat the Dilly Bars that are already sealed in cellophane and made at the DQ factory. You have to ask, because some DQs make them on - site. While it is not the same as a sundae, it is a way to eat something with less chance of cross contamination. Remember, most of the staff at the DQ is not handling the rest of the gluten food, and then the...
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ARCHIVED gluten-free After This Friday
Takala replied to KMMO320's topic in Coping with Celiac Disease
You're craving sugar and fat and carbs because you're malnourished, and your body doesn't distinguish between primal hunger for sugars and what you actually need, which is more likely B complex vitamins and calcium and magnesium. Your tastes will change once you are off gluten. You can always get one of those cute little donut making machines... -
Kaiser is all about their statistics. If they don't diagnose, they can claim they have a healthier than average clientele (on which they need to spend LESS money). This sets them up to obtain bids during open hunting, er, open enrollment season for health insurance. "Lookie, we have healthy people we're cheap to use for your insurance!" At the same time...
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If you are trying to get something like "white bleached flour, gluten-free" equivalent, then don't use much amaranth. If you are more into the gluten free "whole wheat grain" style, then blend it half and half with sorghum to replace the rice flour. Amaranth mixed half and half with almond meal can be used to make " corn- free cornbread." Amaranth...
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ARCHIVED Confused After Endoscopy!?
Takala replied to Mom-of-Two's topic in Parents, Friends and Loved Ones of Celiacs
Did the doctor actually do the biopsy samples where they should be done, or not ? Forgive me for being my usual self, but, if you think it is a nuisance to put your daughter on a gluten free diet IF A DOCTOR FAILS TO DIAGNOSE PROPERLY, as they do to hundreds if not thousands of people per year, then you need to rethink that, if it could make her feel... -
ARCHIVED Frizzy, Dry Hair After Year gluten-free
Takala replied to sreese68's topic in Coping with Celiac Disease
It could be a combination of things. What you are doing to your hair already (the multiple dyes and the hot iron) is very challenging, especially past the age of 30. And it takes hair a while to grow out, it only grows at most a 1/2" a month. The hairdresser is wrong. Going gluten free in of itself will not cause hair to become dry and brittle, as... -
ARCHIVED In The Process Of Diagnosis...high Iron?
Takala replied to aeon077's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Google search pubmed celiac hemochromotosis pulls up a LOT of references. Here is a more recent cite on pubmed from 2004, the 2 patients with both diseases Open Original Shared Link What is really interesting is that it (hemochromatosis) might be a mutation to protect against anemia caused by celiac (or other diseases/conditions... -
ARCHIVED Is It Really Celiac?
Takala replied to Ladyrhedd's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One of the symptoms of eating gluten when you are a celiac, is fuzzy thinking that makes you think you might not be. This is an auto immune reaction which causes long term malnutrition damage, which will not magically disappear in a week and a half of a flawed gluten free diet. -
ARCHIVED Does The Hypoglycemia Ever Go Away?
Takala replied to bifidus's topic in Coping with Celiac Disease
Try eating high protein, high good fats, and lower carbohydrates, with lots of vegetables. Good fats include olive oil, coconut oil, nuts, eggs, avocado. Exercise, but gently. Perhaps walking instead of jogging, and no serious weightlifting, but some other movement exercise. Exercise should help you sleep. -
Nope. I can do corn IF it is not cross contaminated, which is difficult to find. Don't have a fresh corn problem. Have not had any inkling to "try" straight oats after a few rounds of accidentally eating very small amounts which were not declared to be in "gluten free" food, and reacting very poorly to them, the same way as if I were glutened...
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ARCHIVED What Did You Have For Lunch Today?
Takala replied to love2travel's topic in Gluten-Free Recipes & Cooking Tips
I am eating a late lunch because I suspect dinner will be late. Foraging in the refrigerator for leftovers. So far I have found 2 cooked broccoli florets, a tiny piece of steak, a hard boiled egg, a pre cooked, tiny orphaned hamburger, some leftover bread I made but did not put the date I baked it on , and some green snap pea pods. The bread had... -
ARCHIVED I'm Going Bonkers Over The Diificulties Of Celiac Disease!
Takala replied to MikeOhio's topic in Coping with Celiac Disease
Citric acid, commonly used in fruit preserves, can be derived from wheat, but that is usually a European problem. Found that out when I was eating imported jelly. Try putting pure apple cider vinegar and cumin on beans.