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Takala

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Everything posted by Takala

  1. Takala
    Your "nutritionist" is wrong. There is nothing safer about "organic" oats than with regular oats, for a celiac. Organic doesn't mean diddly squat other than it may have not been sprayed with pesticides or herbicides or had certain fertilizers used. Oats must be grown, harvested, processed, tested and stored in a carefully gluten free manner at all...
  2. Takala
    You may be one of the more sensitive types that are prone to cross contamination. My husband volunteered to go gluten free at home after seeing me laid out one too many times from accidental glutenings. He also cooks, and it was just too complicated for him to keep the ingredients memorized and segregated. The only major change over was he switched...
  3. Takala
    The manager is deliberately being nasty by asking for suggestions on how to accommodate other's wishes, and then publicly attempting to humiliate an employee by denying it in front of the other employees. I would be looking for another job. Unfortunately this sadistic behavior will only escalate. I would suggest you contact an attorney for legal...
  4. Takala
    I had a positive for the brain lesions, aka "bright spots," which were not the same type as seen in MS. Had quite the falling out with the nasty, idiotic neurologist who found this and still insisted it had nothing to do with my diet, as she had spent the past year testing me for "other things" instead of what I told her I already had and had been tested...
  5. Takala
    You are likely routinely getting cross contaminated with gluten, and are going to have to be merciless in rooting it out, if you want to be healthy. I noticed you are still consuming or coming in contact with a lot of things I avoid, irregardless of whether or not some expert tries to assure me that it's "perfectly safe," they don't live in my body, and...
  6. Takala
    Insist on getting an endoscopy biopsy, NOT a colonoscopy. The endoscopy looks at damage in the stomach/small intestine and is the next step after (positive) blood tests. Stay on gluten until this is done. Refuse the colonoscopy if the GI doc claims that must be done "first" in the sequence. Insist on being referred to non- crooked GI immediately if they...
  7. Takala
    You may be eating something else which does not agree with you. Or you can need a gluten free vitamin B complex, multivitamin, and calcium/magnesium mineral complex. Don't rule out cross contamination. It can show up in the darndest places from the most surprising sources.
  8. Takala
    One of the symptoms of being glutened, is the inability to think clearly that eating gluten is creating cravings to eat gluten. Get tested. If you test positive, you have an auto immune disease, the only one which can be treated by diet. If you test negative, you may still have it and have a false negative testing, (it happens) or you are only gluten...
  9. Takala
    Magnesium supplements help
  10. Takala
    "Serological" means in the blood. WTF. You had one positive blood test. Not unusual for biopsies to come back negative. "immediate" reactions not necessary to ingesting gluten to still have auto immune issues with it. With neurological symptoms, can somebody do a brain scan on you ?
  11. Takala
    You really are NOT doing the sick cat a favor feeding him "anything he wants." The better pet foods are concentrated proteins, not cheap fill, so the bags cost more, but the pets eat a lot less of it, so it evens out to being the same "cost."
  12. Takala
    That is hysterical !
  13. Takala
    You're a sero-negative gluten intolerant. Welcome to the club. I had advanced neuropathy, spinal damage from bone loss that showed up clearly on mere x rays, chronic kidney problems, and bright spots in my brain, and a neuro from hell
  14. Takala
    Yes, you have to read the labels When I was in the pet store last week looking for unflavored rawhide chews, I saw a brand of dog treat prominently labeled "all natural GLUTEN FREE" in big letters right on the front - since I have never seen a commercial dog treat that actually passed the scrutiny, I checked, and sure enough, the second ingredient...
  15. Takala
    You may want to start by getting another doctor, as anti- depressants will NOT fix your celiac symptoms, but may further alter the function of your gut in a negative way. Your symptoms are those of classic auto immune disease attacks. To suggest a mood altering drug with side effects for this is incompetence. You are either getting cross contaminated with...
  16. Takala
    It's great when you're in your fifties. Somewhere on this site is a thread or two about some of the physical characteristics of celiac, because it can affect growth rates of different parts of the body, which can in turn shape your face and effect your appearance. Some of us also are very pale, with very light skin & eyes. Sometimes I see...
  17. Takala
    I had lots of compliments about my skin looking better, going off of gluten. My hair also grew back in, it was getting very thin, the texture changed back to what it was when I was younger, and I was able to grow fingernails that need trimming - or I can let them grow out, if I want. Alas my neurological symptoms were blown off, (several insurances,...
  18. Takala
    Yes, but remember, you can have the genes and not develop the disease, the majority of people do not, so far. But having close relatives with it increases statistical risk. Wonder if this will change in the future, as the rate of celiac and gluten intolerance in the general population is rising.
  19. Takala
    I'm getting queasy every time I read this thread, if that's any consolation. If you'd walk around in my long term damaged body for 5 minutes, you'd be taking a flamethrower to your pantry in the next seven.
  20. Takala
    Uh, that's IT ? 107 on a scale of what ? No, that is not a full panel nor is it even the full description of one test. Any other numbers there ? If not, go back to the source and get it.
  21. Takala
    "Super sensitive" means that you are one of the people who react to smaller amounts of gluten. There is a wide variation in how sensitive people are who are gluten intolerant or celiac. I have read here that some researchers claim that a typical celiac can handle "x" very small amount of gluten per day, my reaction has always been, is that a typo or...
  22. Takala
    "Because I would be in everybody's way...." So ? Then the store should hire another clerk, and open another counter slot, shouldn't they ? Sorry, it is not your job. It is the pharmacist's job to make sure medications that are dispensed are safe. They're treating it like a prescription by denying otc access to it.... and by not calling the manufacturer...
  23. Takala
    What law ? This is clearly being abused by the store. She did not have to hand you anything, she merely had to do her job, which was to answer your questions as to product safety. She had the ability to do this. She refused to do it. If you were serious about complaining about it, then, at this point you should contact an attorney and have them...
  24. Takala
    What a great scam. Pharmacist unwilling to check for allergen in prescribed medication and forcing a sale. She could have laid the box label down on a copy machine, she could have given you a phone number to call with the code on the box.... she could have done her JOB and checked, herself.... Unfortunately you went along with it.... You really need to contact...
  25. Takala
    So many celiacs have thyroid disease, and vice versa, I would love to see a method to force drug manufacturers selling this medication to disclose the true ingredients on every batch regarding whether or not it contains gluten. Not doing so is as crazy as putting, say, ragweed into antihistamines, sulphites into rescue inhalers, or sugar into diabetes medications...
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