Takala
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Latest Celiac Disease News & Research:
Everything posted by Takala
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They sound like a bunch of wheat-heads.
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ARCHIVED Kidney Stones
Takala replied to Mnicole1981's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Kidney stones can be one of the symptoms of celiac disease. Your body tries harvesting the calcium out of your bones to make up for the calcium it's not absorbing in the gut. The blood is filtered through the kidneys to regulate the calcium levels in the bloodstream. Guess where the extra ends up. If this is your problem, (there are other types... -
Cook in dedicated gluten free cast iron. Develop a fondness for putting blackstrap molasses in or on a lot of things. Easy iron sources.
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ARCHIVED How Would You Handle This Situation?
Takala replied to Calmom's topic in Coping with Celiac Disease
I tell them the truth that I am allergic to one of the other ingredients. Well, maybe, maybe not, but I'm carrying an inhaler and antihistamines, and don't want to use it. Most people are scared of that inhaler ! A couple of times I've pulled it out to use it as a preventive measure when I was going to exert myself hard when we've had forest fire... -
ARCHIVED Help! Need Some Substitutions For Baking...
Takala replied to Triplatte's topic in Gluten-Free Recipes & Cooking Tips
I think you can use some of my recipes, if you just substitute for the almond meal I have in some of them. You can take chia seed and soak it in cold water to make an egg "gel". ( I eat eggs, but I will play around with recipes because I don't do flax. ) You can also do this with soaking plain psyllium in warm water. Buckwheat and amaranth are... -
ARCHIVED Getting Confused
Takala replied to trayne91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh, ai yeee yeee yeeee. What a trip. Ask him if he's ever heard of the neurological form of celiac, which causes brain damage and ataxia, and see what he says. If he says there is no such thing........ tell him you heard a rumor on PubMed, but you haven't asked Snopes to verify it yet. Open Original Shared Link Open Original Shared... -
ARCHIVED Biopsy Indicates Beginning Stages... Doc Says No
Takala replied to PossiblyCeliac?'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh, this doc is a real rocket scientist, ain't he ? " ....and slight prominence of intrapithelial lymphocytosis." Gee, I wonder what could possibly be causing that. I would ask the doctor to run a FULL CELIAC PANEL, not just the one weeny test. If he refuses to do that, and still wants to put you on the medication, be sure you get... -
ARCHIVED Eyesight
Takala replied to Greyhound's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I regained my ability to see at night in dim light after several years of gluten free. I also regained the color vision I was slowly losing in one eye. My eyes cross less, and track together a bit better. The extraordinary thing is I had described these symptoms for years to every doctor I saw, when I started having neurological problems, and not one... -
ARCHIVED How Long A Reaction To Gluten?
Takala replied to dustynbob's topic in Coping with Celiac Disease
Since you said you're still on antibiotics, make sure that those are gluten free, also. This may require some sleuthing around with calling the pharmacy, manufacturer, and/or distributor. If they are not gluten-free, call the doctor and get a different kind - sometimes the same thing is available in a different, gluten free version. Read the... -
ARCHIVED Refeeding Edema? Anyone Else?
Takala replied to Emilem's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I want to throw in this idea before you all start thinking you've got something horrible and mysterious causing leg/foot swelling. I had been absolutely plagued with this off and on, and of course, going to the doctor and complaining about it, got me zero squat. I am in my ninth year of going gluten free, btw. Since it was coming and going, I said... -
Are you sure it was the rice ? We always rinse off fish, chicken, and meat before cooking it. The local grocery sells their tilapia in the unfrozen display case both plain and breaded ready-to-cook, right next to each other, so I don't get that stuff anymore and instead use the frozen packaged kind.
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ARCHIVED Adventurous Bakers!
Takala replied to Jestgar's topic in Gluten-Free Recipes & Cooking Tips
What did you use for the gluten free flour replacements ? What kind of pan are you using, ceramic, metal, square, round ? Bake it until the center is springing back when touched, and a clean table knife inserted comes back out clean, and take it out of the oven before the smoke detectors go off. -
They need to run an antibodies test for Hashimoto's. It is possible to have normal levels as the thyroid works in overdrive trying to overcome the attack. Open Original Shared Link
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If you have insurance that will cover this, go for it. Just be absolutely sure you get a copy of the test results and keep it. It can provide proof that you have celiac damage if they find "bright spots" or brain lesions. These spots will look different than MS lesions on the MRI. This is how I self diagnosed after being jerked around for several...
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ARCHIVED What Do These Results Mean?
Takala replied to Blueanj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you have another outbreak of "Mystery Rash," which has a good likelihood of being DH, you can have the skin right next to the outbreak blisters biopsied. A positive biopsy from that is considered a celiac diagnosis if the doctor isn't an idiot. -
ARCHIVED Macaroni And Cheese Question
Takala replied to Kelleybean's topic in Gluten-Free Recipes & Cooking Tips
I would boil just a small amount of rice pasta first, and see what it does. Bring the water to a boil, (add salt and some oil) and then place it in and time it. Like the other people mentioned, the directions on the package currently (april 2012) seem to call for too long a boil time, at least for the spaghetti type noodles, and it takes fewer minutes... -
ARCHIVED Biopsy Results
Takala replied to jnh380's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is good to see that particular HMO dragged kicking and screaming slooowly into the 21st century of competition -
ARCHIVED New To This And Still Not Sure If It Is Celiac Disease
Takala replied to scaredblossom's topic in Coping with Celiac Disease
Pizza and pasta can be made with gluten free ingredients, so you'll adapt. Celiac affects the part of the intestinal lining that can process dairy, so going gluten free might get you to where you can handle low lactose dairy such as hard cheeses and yogurt. As for the other pickiness, once you figure out you can control how you feel by selecting better... -
ARCHIVED Finally Got Results For 10 Yr Old Son!
Takala replied to Momma4's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh, okay, at least with you being Canadian they will eventually "getaroundtuit" and then acknowledge and treat if necessary, as opposed to down here in Barbarian- Land, where they let the for-profit insurance companies try to pass all the sick people around and around, until they are thrown off the rolls completely. -
So if I posted a thread about how I have seen Barley sold as a algae removing water conditioner for koi ponds, so the goldfish could be at risk of turning celiac, that wouldn't go over so well ? PondCare Barley Clear and Pond Clarifier, from Petco Barley Clear is a highly concentrated suspension of natural barley and peat plus natural activators that...
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ARCHIVED Utter Confusion
Takala replied to TGL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The "Gold Standard" diagnostic standard for celiac disease, by a Gastro Doc, currently stands at a positive blood test for an antibody reaction to gluten proteins, AND a positive biopsy of the small intestine for damage to the lining villi. Unless you have the skin condition DH, which can also be a way to diagnose via biopsy. Some of the More Enlightened... -
ARCHIVED Finally Got Results For 10 Yr Old Son!
Takala replied to Momma4's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think, given that's a positive blood test to match the symptoms, I would be kicking up a fuss about them thinking they could string you along for another 7 months waiting for the next appointment. You see, November is typically "open enrollment" month for health insurance changeovers for business companies. Gee, what an amazing coincidence they... -
ARCHIVED Very Weak?
Takala replied to Greyhound's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Learning to rebalance your ratios of carbohydrates, proteins, fiber and fats, when you've just taken out a major category, is sort of tricky. I know this seems counter-intuitive, but try eating more (good) fats such as avocados, nuts, gluten-free dark chocolate, eggs, olive oil, coconut milk. Fat provides slow- burning fuel. Also, eat as many vegetables... -
ARCHIVED Biopsy Results
Takala replied to jnh380's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, but you have the legal right to your test results. Which you have already paid for, and they have contracted to provide. Getting your actual test results needs to be your first priority. Then you can figure out what you want to do with them. Once the HMO doctor(s) realize that their attempt to withhold information is not working, one of two things... -
ARCHIVED Biopsy Results
Takala replied to jnh380's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First - You go to the doctor's office, and you get the test results in writing, and you don't leave until they give them to you. The actual report. Not his/her 3 line interpretation of it. You may have to then schlepp it to your new doctor. You should have seen what they tried "disappearing" on one of my test scans.