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mushroom

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Everything posted by mushroom

  1. mushroom
    The consensus on the forum is that all m&ms are gluten free except the crispy ones, so you should be fine with the plain. Did you check the sausage label carefully? Gluten (and soy) are common additions to sausage. A lot of us who are gluten intolerant are also intolerant of soy, so you might try ditching the tofu and other soy products for a while...
  2. mushroom
    Hi, and welcome to the forum. Celiac disease is often difficult to diagnose in children, and the tests are often negative when everything tells you they should be positive. However, if he was asymptomatic at the time he was first tested and is now having symptoms, I think I would ask for him to be retested because of the strong genetic component associated...
  3. mushroom
    Congratulations on your diagnosis. Recovery time for each individual is, well, individual Some say the greater the damage the longer the recovery time. Others say the longer you have had symptoms, the longer the recovery time. Some people report miraculous results in 2-3 months, for others it takes 2-3 years. Let's just hope you are one of the...
  4. mushroom
    "Clicking" is definitely a generic term, and I found out we have to be really careful in how we describe things to our doctors. I used to complain about my knee "clicking" all the time and was told by all doctors that it was a completely normal thing. Later, upon arthroscopic examination, I discovered that what I had described as "clicking" was actually...
  5. mushroom
    Hi Angi, and welcome to the forum. You will see I have gone through your post and picked out certain parts of it. This board is littered with similar complaints. Nausea, gas, belching, neurological symptoms, headaches, panic attacks, what appear to be galbladder problems (many have unnecessarily had their gallbladders removed), loose stools, lactose...
  6. mushroom
    Gfresh404 is right about the blood differences. I had no idea I had any problems with my gums until I quit smoking. After all the nicotine left my system they started bleeding like crazy and I ended up having gum surgery Guess they had not been getting enough oxygenated blood flow up to that time.
  7. mushroom
    I did this with a doctor who was to be my PCP. She was surprised. The interview went OK but she turned out to be the worst doctor I had ever had and wanted to send me to a psychiatrist because my digestive problems were "all in my head". She couldn't diagnose her way out of a paper bag and eventually gave up her practice (which was thriving when she bought...
  8. mushroom
    Many people who are not diagnosed celiacs are gluten intolerant, to the same extent that those with celiac are, and suffer many/most of the same consequences if they continue to eat gluten. It may be that the only way you can find out for sure if gluten is a problem for you is to discontinue eating it. If you felt better not eating gluten, surely you...
  9. mushroom
    Welcome to the forum, nomad4life. Your history is not an entirely straightforward one, but as you have discovered in your research there are several overlaps in your symptoms with celiac disease symptoms., with your Hashimoto's being the first. There are many other autoimmune diseases which are common in celiacs. Celiac digestive symptoms vary a great...
  10. mushroom
    Hi Darlene. I am so sorry your daughter is having such problems. I agree with Flourgirl that with those symptoms the first place I would start is blood testing for celiac disease.
  11. mushroom
    And 5. Do you have an open mind? and its companion 6. Can you think outside the box?
  12. mushroom
    Oh Judy, that is such wonderful news. I am relieved beyond words, as I know you must be. Look out Cali-Forn-Eye-Aye, heeeeeere coooooooomes Joooodeee!!! Whooppee!!!!
  13. mushroom
    Over the weekend we attended a gluten free expo which also offered a series of short "seminars". THE featured speaker was Dr. Rodney Ford who is well-known in the celiac medical world. He describes himself as a pediatric allergist and he specializes in diagnosing celiac children, but he has vast knowledge of celiac disease. I wish he could have spoken...
  14. mushroom
    My description of this wiredness used to be that it felt like my head was plugged directly into an electrical outlet. Made absolutely no difference how tired I was. Thank goodness I don't get that anymore, unless unintentionally glutened.
  15. mushroom
    Lilymylove, you can sob away in my presence.. You are not being picky or whiny; you are trying to reclaim your health, your most valued possession, believe me. Some of us pick and whine, or suffer in silence, into our 50's and 60's, not a good way to go, so don't be be afraid to make your needs known. With the family history and your symptoms, I think...
  16. mushroom
    Hi, and welcome to the forum. Sorry to hear you are having so many skin problems. They say the skin is the largest organ in our bodies and for me, also, it is the one that gives me the most trouble. As for your specific lesions, I have never heard of (not to say it can't happen) DH bleeding when scratched (unless you scratch very hard). Usually the...
  17. mushroom
    Yeah, most of the docs go strictly by the numbers, but all their patients know that the normal ranges are much too wide. My B12 and folate were at the low end of normal and I felt heaps better with supplementation. I have finally talked my doc into a low dose of synthroid because my thyroid scores were at the extreme ends; I am looking forward to not feeling...
  18. mushroom
    Hi Laula, and welcome to the forum. You have posed a really tough one there, and one I am certainly not qualified to answer. Iron deficiency is common with celiac/gluten intolerance, but others have said that the iron pills are not the best way to go to treat deficiency in celiacs because it takes a long time for the gut to heal, up to two or three...
  19. mushroom
    You definitely need to be on a gluten free diet, diagnosed or no. Even if you are not celiac (and there is much controversy about the testing methods and criteria) you are obviously gluten intolerant and should avoid it. Some people even believe that gluten intolerants have just not yet developed full-blown celiac disease. And there has been a lot of discussion...
  20. mushroom
    There is another thread running about an elimination diet, and that is what I think you need. This is where you go all the way back to eating very plain foods, like chicken, meat, rice, sweet potatoes, veggies you know you don't react to, and any fruits you know are safe for you. Eat this diet for a good four weeks (I know, you will be sick of it, but no...
  21. mushroom
  22. mushroom
    At first I thort Em should name her substandard Charlie, but then I gots to thinking about all the little doggie woggies with their cutesy little namey wameys like Toby (okay, dat one's not so bad, met a nice Cocker named Toby a coupla days ago) and Binkie and Snowy and (evvinforbid) Blackie, and Fluffy and Danny and Sammy and Itsy Bitsy and what have you...
  23. mushroom
    During your googling, you may have found this description of psoriasis: "There are several forms of psoriasis. The most common form shows reddened areas a few inches across covered by silvery scales. Dermatologists refer to the affected areas as areas as "plaques". Other patterns psoriasis can appear in are "inverse" (shiny, red patches in areas of friction...
  24. mushroom
    Well, I for one, wondered where you had gone. I am glad you finally received a diagnosis, genetic as well. Now you will have to get all our kiddoes tested too, at least for the gene, and watch them carefully. How is the wee one who had IUGR?? Has he developed normally?? The can't confirm-don't eat it principle is a good one but I'm sorry you are feeling...
  25. mushroom
    Thanks Gemini. My thyroid tests were all within "normal" range and since they are NZ metric I don't know what they mean exactly, except my TSH was at the top of the range, my FT4 was at the bottom, and my FT3 was just a little higher. We are giving this a trial because I have been cold for three years, have very dry skin, am lethargic with no pep, have...
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