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Latest Celiac Disease News & Research:
Everything posted by mushroom
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ARCHIVED Symptom Of Undiagnosed Celiac Disease?
mushroom replied to debmidge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Depends on what triggers the fainting spells. I used to pass out a lot, but it was always from the pressure of the gas and bloating getting just too much for me. I could always tell when it was coming on and manage to lie down ahead of time. Thank goodness I don't DO that anymore -
ARCHIVED Itchy, Puffy, Bloodshot Eyes
mushroom replied to Laurenlovespink's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I believe gluten, or the Plaquenil I was taking for my rheumatoid arthritis, contributed a lot to problems I had with my eyes. My eyes used to run all the time, not be dry, but the solution was the same. The ophthalmologist said I made poor quality tears and I had to use eyedrops. I no longer have this problem having gone gluten free and also substituted... -
ARCHIVED Still Having Leg Pains, When Will They Go Away?
mushroom replied to LoisArbuckle's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ah, Lois, it is not always that easy. Sometimes the symtoms go away, sometimes they don't, sometimes they just take a while. Often it depends on how long you have had them. I do hope that is the case for you and that eventually you will get relief. -
ARCHIVED Does This Sound Like I Was Glutened?
mushroom replied to imagine22's topic in Coping with Celiac Disease
Yuuk!! Chicken salt = poison. Thanks for the heads up. -
ARCHIVED Lactose - Casein Intolerance
mushroom replied to odcdinah's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am exactly like you. Can tolerate the milk in a cappuccino but no more, no cream or ice cream, but cheeses, yogurt, sour cream, etc. are all A.O.K. (although I still avoid milk chocolate). -
ARCHIVED Newly Diagnosed; Still Struggling!
mushroom replied to ashylu929's topic in Coping with Celiac Disease
There is no particular set of symptoms that fits everyone. They are many and varied and come in all different combinations. Weight loss was always thought typical but many of us gained weight whilst eating much less than others around us. I know, I was one of them. A year gluten free and I have now lost 44 lbs and continuing to lose, so there is hope... -
ARCHIVED Employment Issues, Celiacs And The Ada, Any Ideas
mushroom replied to Smiling-Eyes's topic in Coping with Celiac Disease
Certainly none of us feel comfortable standing out from the crowd, "being the only one complaining", feeling like we are making a fuss about things. But sometimes we are not the only one in the crowd, just the one who feels compelled to do something about it. If we were all to keep quiet and try to hide the food we had to surreptitiously bring from home... -
I rapped on the door of a poor little old man who lived alone while I was out walking my dog, and told him I just had to use his john. I tied the dog up outside and I know he just cowered while I was in the loo, wondering what I was going to do to him. Not that I looked intimidating, but I'm sure I looked desperate.
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Celiac, rheumatoid arthritis, psoriasis.
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ARCHIVED Anyone With Lactose Intolerance?
mushroom replied to odcdinah's topic in Related Issues & Disorders
I self-diagnosed lactose intolerance years before I became aware that I was gluten intolerant. Running to the loo within half an hour of eating ice cream or frozen yogurt. -
ARCHIVED Joint Pain
mushroom replied to chuckybaby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I went gluten free after my rheumatoid arthritis diagnosis, followed by research four years later on that disease and other auto-immune diseases. Unfortunately the arthritis has not resolved being gluten free but it is better most of the time. -
ARCHIVED Any One Over 60 Living With Celiac
mushroom replied to a topic in Introduce Yourself / Share Stuff
I self-diagnosed at 67 after no one would take my symptoms seriously all those years, starting in high school. Doctors must really think we are a bunch of whingers or nut-cases to ignore us for so long. I don't know if they train them in medical school to think we are all just making these things up to get attention. -
Why is it that the sight of food in a supermarket always induces the urgent need to go. I couldn't begin to count the number of abandoned shopping carts in markets from my mad dashes to the loo! Often when I come back they have vanished or I can't even remember where I left them!
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ARCHIVED How Much Weight Did You Lose?
mushroom replied to 1morething's topic in Coping with Celiac Disease
From my heaviest gluten-bloatedness I have lost 42 lbs in a year. I must say I seldom feel hungry, sometimes have to force myself to eat when my stomach complains, but then again I never ate as much as anyone else even while gaining all that weight. I never used to be able to figure it out, but now it's clear it was the gluten what done it! -
Yeah, they are expensive, but nice! Plenty of Trader Joes availability which is cheaper (not sure if there is one in Petaluma now, but they are in Napa and Santa Rosa.) When shopping in Carson City this summer I would go to Whole Foods every couple of weeks to get what I couldn't get at Trader Joes.
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Interesting thread. I have no knowledge, but in our family melanoma and breast cancer are linked. All three sisters have had melanoma, so far I am the only one who has avoided breast cancer. (one sister is BRCA1 positive, the other negative; I have not been tested since it appears not to make a difference). Mother gave us the moles for melanoma, had both...
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Okay, so now I have a basic idea of what a stromboli is. But what is the traditiional filling(s)?
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ARCHIVED My Psoriasis Is Gone!
mushroom replied to henny's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh Henny, you lucky thing. I am so happy for you (and so envious). Mine rages on regardless and I still walk around scattering silver shards (especially on the bridge table, it seems). After a year gluten-free I think it is probably here to stay. -
Have you changed altitudes? When I was up at Lake Tahoe over the summer I had to make a lot of adjustments.
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ARCHIVED Feeling Sick After Eating Gluten-free Noodles
mushroom replied to cziegler's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, and welcome to the forum. Many of us when we first go gluten free rush out and buy gluten-free substitutes for all our regular foods. This is not necessarily a good idea as some of these substitute grains are hard to digest and our digestive systems are in a really delicate state from the onslaught of gluten. (I know, I was one of them.) It is... -
ARCHIVED Symptoms Persist Even After A Gluten-free Diet
mushroom replied to Waldz1's topic in Coping with Celiac Disease
Without wishing to rain on your parade in any way, once we give up gluten we often find other food problems, many of them caused by the initial gluten problem. The tips of the villi in your small intestine carry the lactase to digest lactose, so until your villi heal (and sometimes afterwards) you may well have problems with lactose and casein. I also... -
The labeling for medications stinks. You would be amazed at how many of them contain wheat. You have the right idea--check 'em all before you take 'em.
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ARCHIVED Back On Gluten
mushroom replied to monkey123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wild horses wouldn't make me go back on gluten for 2-3 months just to get tested to satisfy someone else's need to know whether or not I am a celiac. When I think of all the damage it has done to me over the years, including some things that don't go away like psoriasis and rheumatoid arthritis, and the things I am still working on, like trying to get my... -
ARCHIVED Breakfast Items?
mushroom replied to sungold17's topic in Parents, Friends and Loved Ones of Celiacs
My favorite healthy breakfast is yogurt (with some flax seed oil stirred in), a gluten-free muesli (Trader Joes makes a great one though it is a bit on the sweet side), a sprinkling of flaked almonds and the fruit of your choice on top (Kiwi, berries, banana, frozen blueberries, whatever strikes your daughter's fancy. -
Julie, I see no one has given you an answer. I lived in Sonoma until six years ago, so I am out of date to say the least. But all in all, Sonoma County is a fairly alternative kind of place and you should be able to be accommodated quite nicely. Petaluma is where I first found Whole Foods, many years ago before they were all over the place. I have not...