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Latest Celiac Disease News & Research:
Everything posted by ksymonds84
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ARCHIVED I'm still here! Xantham Gum
ksymonds84 replied to ksymonds84's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you! I feel amazing most days ? xantham gum seems to be the hidden answer for my continued problems with bread. Bought some psyllium husk powder and made a tasty bread that so far I’m able to digest! -
ARCHIVED I'm sort of terrified. Please help!!!
ksymonds84 replied to katiedeer's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, Sorry you are going through a hard time. Gluten will also give me tons of gas and bloating is horrible! I don’t have much experience with diabetes but sounds like by your number you are in normal limits. Haven’t heard of a connection with grains etc. I did 14 cycles of FOLFOX chemotherapy but I also used cbd oil that is legal her... -
ARCHIVED I'm still here! Xantham Gum
ksymonds84 replied to ksymonds84's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks will look into histamine intolerance. -
ARCHIVED I'm still here! Xantham Gum
ksymonds84 replied to ksymonds84's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am using align right now for probiotic and I seem to do okay with it. Anything with aspergillus will have me vomiting in an hour, found that out with lactaid. -
ARCHIVED I'm still here! Xantham Gum
ksymonds84 replied to ksymonds84's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for your kind words. Sorry also for your husbands diagnosis, Even early stages are scary when they tell you it’s cancer but it sounds like he’s in good hands with you and your knowledge and testicular cancer has a high cure rate I’m told. I’m sure you are right about a connection with celiac and colon but my oncologist doesn’t really know abou... -
ARCHIVED I'm still here! Xantham Gum
ksymonds84 replied to ksymonds84's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Lol nice to know! Don’t worry about being frank with me, I prefer everyone to tell it like it is ? I did a quick search and psyllium is not very expensive either which is nice! -
ARCHIVED I'm still here! Xantham Gum
ksymonds84 replied to ksymonds84's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I’ve read a few recipes with Keto using guar gum. My neighbor is a die hard Keto guy and lost over 85 pounds! I was looking at what I could do for him when we had a party. So psyllium husk does not cause things to get um too loose? I know it’s a great fiber. -
ARCHIVED I'm still here! Xantham Gum
ksymonds84 replied to ksymonds84's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks! I will give guar gum a try... and yeah cancer, even late stages can be beat!! -
ARCHIVED I'm still here! Xantham Gum
ksymonds84 replied to ksymonds84's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello, haven't been on here in awhile so not sure how to do the quote from above. Cycling lady, do you use something else in your baking to substitute the xantham gum? -
ARCHIVED Is it possible to be the only one in my family?
ksymonds84 replied to mewnicorns's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am the only one in my immediate family, meaning my parents and sister. In my family now, only 1 of 3 of my children tested positive for celiac. My son is relieved every time he tests negative and celebrates with a beer. Haha. He has no symptoms but tests anyway after all I went through. -
ARCHIVED I'm sort of terrified. Please help!!!
ksymonds84 replied to katiedeer's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, I am celiac plus a colon cancer survivor. Celiac was not a contributor to my diagnosis. Also, Please don't worry you are very young and honestly colon cancer did not give me any of the symptoms you listed... I mostly just couldn't go at all. Hodgkins lymphoma has been connected with celiac but we are talking many many many years down the... -
ARCHIVED I'm still here! Xantham Gum
ksymonds84 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow! I haven't been on this forum in a long time but found it again when I was searching for xantham gum possibly being the reason why I can't see to eat the gluten free breads anymore. A quick up date for my missing in action: Not to alarm anyone but I had a surprise Colon Cancer Stage 4 diagnosis back in August of 2015. Yes, I was diligently gluten... -
ARCHIVED What Regular Beer Has The Least Gluten
ksymonds84 replied to OhWell's topic in Coping with Celiac Disease
Have you tried New Planets Pale Ale? Hubby thinks that one taste the best out of their flavors. Close to real thing. We do agree about price though -
ARCHIVED The Best Ways To Deal With Fructose Malabsorption?
ksymonds84 replied to bridgetm's topic in Food Intolerance & Leaky Gut
Hello, I am a fellow fructose malabsorber. Honestly for me the only way not to be sick is I don't eat any fruit except maybe a few red grapes or 1/2 very ripe banana and never on an empty stomach. What helped me the most was joining the Australian fructose malabsorbtion group. they are way more advanced then we are here in the states on the disorder here... -
ARCHIVED Need Help With Hubby's Test Results
ksymonds84 posted a topic in Related Issues & Disorders
Hi everyone, My husband was diagnosed Gluten Intolerant a year ago. He's done okay, he no longer has that urgent need to go feeling in the morning but he still has some bloating and gas especially at night. My big concern is that he went for his annual to have his blood drawn for his thyroid and this time had a full blood work up. His white... -
ARCHIVED Gliadin Iga
ksymonds84 replied to orangez28cam's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My understanding is that Anti Gliadin IGA is more specific to Celiac than Anti Gliadin IGG. IGG is more senstive however but can be present in other illness such as Chrohns. Here is some info from this site that I've copied for you. Bold is mine. Anti-Gliadin Antibodies: Both IgA and IgG anti-gliadin antibodies (AGA) are detected in sera of patients... -
ARCHIVED Sometimes, I Really, Really Wonder.
ksymonds84 replied to T.H.'s topic in Coping with Celiac Disease
I get itchy red splotches on my face and upper chest with soy and soy lecithin. I hate that Orieda has soybean oil coating their french fries. Tried them again over the weekend and splotches the next day. -
ARCHIVED Help I Feel Like I Am Killing My Husband
ksymonds84 replied to ksymonds84's topic in Coping with Celiac Disease
Thanks for the suggestion. For normal salt I use the mortons lite salt for potassium unless a recipe calls for sea salt. I don't think its the McCormick's or iodine though because we have been using it for a long time and his symptoms only came up when I made the pizza and biscuits. My aunt has an iodine problem too, she had a nasty reaction when they... -
ARCHIVED Help I Feel Like I Am Killing My Husband
ksymonds84 replied to ksymonds84's topic in Coping with Celiac Disease
You are welcome! You can also use New Grist or Bards Tale. We like the flavor of Redbridge best though. I cleaned the oven after I went gluten free almost 3 years ago and I personally don't use a pizza stone but know many do so included it in the recipe. I have pans with little holes in them and the parchment keeps the sticky batter from going through... -
ARCHIVED Help I Feel Like I Am Killing My Husband
ksymonds84 replied to ksymonds84's topic in Coping with Celiac Disease
Thanks for all your replies everyone! My husband is back to himself today. We are going to try to make the pizza again without xantham gum and yeast this weekend. He feels that if we don't try it we will never know for sure that it was the pizza and not something else. He loves the McCormicks california style garlic salt and uses it on tons of stuff so... -
ARCHIVED Test Results-Elevated Anti Gliadin
ksymonds84 replied to suzanne*'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
When you go fully gluten free your villa tend to heal very quick. It sometimes can take a month or two to get the endoscopy done and your villa could heal in that time giving you a false negative. This could be why he suggested gluten light to you? Most doctors will say to keep eating gluten (equivalent to two slices of bread a day)until the endoscopy... -
ARCHIVED So, Tell Me Why I Need This Endoscopy....
ksymonds84 replied to Monklady123's topic in Coping with Celiac Disease
There is a chance that staying gluten free for a month will be enough time to heal your villa (if not total antrophy) and then you would get a false negative and your doctor would say you don't have celiac. As said in another post, if you are only doing it for the doctor and not because you want it then I would skip it unless you are concerned about other... -
ARCHIVED Help I Feel Like I Am Killing My Husband
ksymonds84 replied to ksymonds84's topic in Coping with Celiac Disease
Here is the full recipe. I was very proud of myself for creating such a yummy real tasting crust. Its very sticky so I use parchment paper and keep dusting it with rice flour to get it in a nice flat circle shape. It puffs up like real bread ect....we've decided to try it without yeast and xantham, I look for it to be more chebe consistency but we shall... -
ARCHIVED Help I Feel Like I Am Killing My Husband
ksymonds84 replied to ksymonds84's topic in Coping with Celiac Disease
Thats a very good point since I used beer as well in the pizza crust giving it a double whammy on the yeast. I know that the celiac society says something about yeast and molds being sometimes a problem with newly diagnosed celiacs...thanks will look more into it! -
ARCHIVED Help I Feel Like I Am Killing My Husband
ksymonds84 replied to ksymonds84's topic in Coping with Celiac Disease
thanks skylark, you could be right about him being sensitive to traces of gluten as his brother with celiac was very sensitive in the beginning. Now after 5 years he can go to other peoples houses ect and does fine. We don't have any gluten in the house (its just the two of us) and I long ago got rid of cutting boards ect. but I'm wondering if my Bob's...