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ksymonds84

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Everything posted by ksymonds84

  1. ksymonds84
    Yes, I am using Bob's Red Mill and its been in my freezer since I was first diagnosed, so almost 3 years old. Does it expire? Thanks for the suggestion. I absolutely love that pizza crust I created, tastes so real! My husband wants me to make it without xatham gum (he's a trooper)and I think with the beer and yeast it should be okay not to put it in....
  2. ksymonds84
    Okay guys I need your help. My husband went gluten free in August because of positive antibodies. He chose not to scope after how much money out of pocket it cost us when I did and his brother is a biopsy diagnosed celiac. Anyway, I've made two homemade dinners for him. One is my pizza crust that I've created that is very yummy but the 3 times I've made...
  3. ksymonds84
    Enterolab does not diagnose Celiac but can give you some valuable answers. My local celiac chapter does support Dr. Fine's test for people who do not show positive on regular testing but their symptoms do resolve on the gluten free diet. Some people need to see that yes they do have the antibodies, malabsorption, or high risk genes to keep them true to...
  4. ksymonds84
    My 19 year old daughter who was diagnosed in August gets hives whenever she accidentally ingests gluten. Its mainly on her cheeks. She also has HD (Herpitiformis Dermatitis)type rash on her hip that is finally after almost a year clearing up. Skin rashes and Celiac (other than HD) often go together. Hope you find your answer soon.
  5. ksymonds84
    My two twin brother in laws have celiac. One is very very strict and the other one still drinks heinekin beer. He thinks its not so bad because its only a barley beer but we know better (he probably does too). I also caught him eating gravy on his potroast and he said, not that much on there.....He doesn't react as strong as his fraternal twin but he's...
  6. ksymonds84
    I wouldn't worry too much over what the doctor will think. Many are starting to coming around. I would simply tell him/her that you did your own gluten challenge and found that you absolutely cannot tolerate gluten and do not want to put your body through another challenge again just for an endoscopy. I did it and boy it just about killed me. I could...
  7. ksymonds84
    I am typing this as I am having Udi's toast and my husband is eating Rudi's toast. Rudi's is tasty but has honey, mollasses, and inulin which doesn't work for FM. My husband loves the sweeter taste of Rudi's
  8. ksymonds84
    Hi Jayme, your symptoms do fit with gluten intolerance as well as lactose intolerance (cheese on the pizza) and fructose malabsorption (fructans in wheat, onions, asparagus, and others) or may just have a wheat intolerance. Do you plan to go thru testing or a good trial of an elimination diet? As far as your question on if you can make yourself gluten intolerant...
  9. ksymonds84
    Splenda gives me stomach cramps and other digestive problems
  10. ksymonds84
    I'm like you, carrots and peas have too much fructose for me. I can't stand peas so no biggie there but I do miss carrots.
  11. ksymonds84
    gh_soph brought up FODMAPs which may be a good diet for you over the next couple of weeks, then slowly add back foods one at a time to see what will set you off. Open Original Shared Link This link give a good description FODMAPs
  12. ksymonds84
    The more ripe the banana the better. I wait for it to have light spots and can eat half of a medium banana everyday....I share with hubby. Other Fructmals say they can have them only every other day. Dried fruit will always have more fructose. Some can get away with a few dried cranberries in a salad but I usually just stay away from all dried fruit....
  13. ksymonds84
    For the bread I have to be extremely careful with ingredients. If it contains fruit juice, applesauce, honey, inulin, agave, chickory or molasses, I can't do it. Plain ol' cane sugar not made from beets is fine. Udi, kinnickinic, and a local bakery are the only ones that I can tolerate. Rice Pasta is not a problem but a ton of tomato sauce on top would...
  14. ksymonds84
    I took Augmentin for a sinus infection 3 years ago, 2 months before diagnosed with gluten intolerance. I had horrible diarrhea, burning skin rash on my face and my fingers swelled up. It was the weekend and pharmacist said to stop taking them immediately. I always have wondered if my allergic reaction to the Augmentin escalated the gluten intolerance to...
  15. ksymonds84
    I know what you mean, the Australians are way ahead of the U.S. in research on Fructmal and I'm glad that they are because they are helping so many people. I was relieved to find out that fructose was a problem in addition to gluten because before I was going crazy trying to figure it out. With fructose being an individual tolerance load, some days I would...
  16. ksymonds84
    Since sugar seems to be your problem, you may want to take a look at fructose malabsorption. Just google it and you will get a ton of hits. Apple sauce and apple juice whether sweetened or not would send me over the edge. Also tomato paste would have too much fructose for me. The two main sugar malabsorption offenders are fructose malabsorption and lactose...
  17. ksymonds84
    I am so sorry that you are dealing with this issue but you are not alone. Celiac disease in itself can cause mood disturbances, depression, and anxiety. A friend who has celiac had a hard time with depression and anxiety and mostly self medicated with Vodka. When he was in a situation where he felt nervous and couldn't find anything safe to eat, he would...
  18. ksymonds84
    I made the marshmallow treats out of the fruity pebbles for my 19 year old away at school and she LOVED them! Hope you enjoy them too!
  19. ksymonds84
    I love Redbridge in my recipes, it makes excellent fish batter, barbecue ribs, and I created a pizza crust that I think the beer makes it taste more like real pizza crust. Drinking it however, my hubby likes it, me not so much.
  20. ksymonds84
    Like WheatChef I really miss the BIG doughy Pretzels especially when I'm at the Rockies game and seeing people eat them all around me (won't have to experience this anymore until next year since they are done). French bread dipped into my yummy garlic oil. Udi's helps but not the same My old gluteny home made pizza dough recipe. After many fails at...
  21. ksymonds84
    I have also called about Lea and Perrins and they told me it was gluten AND soy free!
  22. ksymonds84
    I know what you mean. I should have been more clear in my original post. The fine dining restaurant that my hubby and I own has been awarded the Wine Spectator award for 5 years in a row now. It happens when we have to go to awful political events ect and they serve us nasty wine You are correct about finding decent wine for less.
  23. ksymonds84
    Willabec, the thing with FM is that it is not so restrictive as Celiac. You don't have to worry about cross contamination ect. Also there are no two FM'ers that are alike. We each have our own level of intolerances to fructose and fructans (onions, asparagus, garlic, artichokes, wheat are examples). Some only have problems with fructose where others have...
  24. ksymonds84
    You are right it is intriguing. I also have fructose malabsorption and pectin is a big no for me. Actually anything prebiotic (oligosaccharides and Fructo-oligosaccharides)tends to set a lot of us off such as chickory root, inulin, ect. Probiotics bother some of us as well so we don't use these as supplements or eat yogurt such as Fiber One, since it will...
  25. ksymonds84
    I agree that the Australian based Yahoo group is a great tool for learning about FM. I don't find my diet all that much more restrictive because for me, I am not a fruit person and fruit is my biggest culprit. No one needs high fructose corn syrup. Heinz and Hunts have just recently come out with no HFCS which is awesome! Regular old cane sugar in moderation...
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