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ksymonds84

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Latest Celiac Disease News & Research:

Everything posted by ksymonds84

  1. ksymonds84
    I got it wrong so wanted to correct myself. She is an assistant manager in Colorado Springs and has made alot of progress in helping grocery store awareness. Go Pam! Here is an insert from the "Rocky Mountain Post" ]Five years ago, Pam Jones was down to 87 pounds before a doctor finally diagnosed her stomach ailments correctly. Jones, an assistant...
  2. ksymonds84
    I also live in Colorado, Colorado Springs. Have you heard of the Udi bread? Its supposed to be the wonder bread for the celiac world. The owner, Anne I believe is her name is launching it at the kings supers on Austin Bluffs and Academy. Haven't made my way up there yet but heard it is unbelievable. The vice president of kroger is celiac and got tired...
  3. ksymonds84
    Dinner will be at the Warehouse restaurant. Cost is 30.00 per person plus tax and gratuity. This is sponsered by the Colorado Springs Celiac association. Reservations need to be made. Send a personal message to board member ksymonds...
  4. ksymonds84
    Nausea is definately a symptom of being glutened for me. Sometimes accidently being glutened will show up in a couple of hours and sometimes not till the next day. A gluten challenge is going without gluten (for me 2 months) then challenging it by eating gluten to see what your reaction would be. If I were you, I would have the biopsy first and if shows...
  5. ksymonds84
    You know we used to have a Beau Jo's here in the Springs but because of bad accounting, they closed down. Too bad, I go to Beau Jo's after a day's Rocky game now. It would be nice to have an option down here.
  6. ksymonds84
    I too tested negative to celiac but the diet works for me. I did however get the rash that could be HD so if it ever comes back I will have it biopsied. My doctor is very impressed at how well I am doing with the diet and said that he is officially diagnosing me as gluten intolerant on my charts to help with any prescription medicines or a hospital stay...
  7. ksymonds84
    Here's what i do with a wing craving thats similar to the one's you like 1/2 cup white rice flour 1/2 tsp garlic powder 1/2 tsp onion powder 1/2 tsp black pepper 1/2 cup Franks Hot Sauce 1/4 cup of melted butter I put first 4 ingredients in a gallon plastic bag, rinse wings with water then shake in bag. I do about 5 wings at a time (total of...
  8. ksymonds84
    Thanks Rice Guy. That's her picure I use here. She's 17 and a dedicated dancer mostly ballet point (she did the Phil Harmonic Nut Cracker with the San Diego Dance Company so she's a serious one) so she gets lots of aches and pains mostly that time of month though (sorry) is when she takes 4 ibuprofens at a time. I should have her see a doctor about something...
  9. ksymonds84
    Very interesting! It's nice to know that they are making strides in diagnosing while already on a gluten free diet! Thanks for the link!
  10. ksymonds84
    Sounds wonderful! My sister is now gluten free and black forest cake is her favorite cake so I will pass it along to her. Thanks for posting it!
  11. ksymonds84
    very interesting rice guy. My daughter takes alot of ibuprofen and gets bloody noses (we live in high altitude so I always blame that) all the time so I should get her iron levels checked. Thanks for the post!
  12. ksymonds84
    Iknow exactly what you mean. I usually use Pamela's bread mix or gluten free pantry. Yesterday I made two loafs in my bread machine. The first one I put in 2 tablespoons of molasses, 2 tablespoons of sunflower seed and 2 tablespoons of chopped almonds plus 1 table spoon of poppyseeds. An excellent look alike wheat grain bread! The second one, I added...
  13. ksymonds84
    I bought one of the more expensive breadman pro's because of the gluten free cycle and guess what...I rarely use the gluten free cycle! I would go with the less expensive breadman from target especially since you only want it to make dough. Good luck and happy bread making!
  14. ksymonds84
    Sorry we haven't responded yet. For me, I didn't have burping problems to your extent but I did always burp alot after I ate especially with gluten. Now I only burp if I accidently get glutened or go over my quota for dairy. How long have you been gluten free? I'm almost 6 months gluten free and feel the best ever, it can take a while to heal, some up...
  15. ksymonds84
    Hi Walt One question came to my mind, could your son have had something with gluten before he started eating the chips? I live on tostitoes scoops and salsa but have my own bag seperate from my kids just in case they ate a sandwhich etc and forgot to wash their hands before reaching into the bag. I also keep my own salsa because my kids will dip...
  16. ksymonds84
    Are you keeping a food diary? If not, write down everything you are eating and how you feel afterwords (next day for me) and after a few weeks you will start to see patterns. This helped me discover my other intolerances. Cross contamination is also a possibility when you share the kitchen with gluten eaters (I do as well). Everyone tries very hard to...
  17. ksymonds84
    Thanks for knowing the name Sue (krapps! Oh well I was kinda close ) . I really liked shopping there wish I had one in Colorado! Know what you mean by trying to know how much to bring especially now that alot of airlines are charging you for a second suitcase! My second suitcase is where I loaded my gluten free stuff.
  18. ksymonds84
    Hello, I was in Williamsburg back in the spring and had a wonderful time by the way. I only went to the main grocery store Krapps I think its called or Kropps? I brought alot of gluten free goodies with me in my suitcase such as glutino pretzels, bread etc. so I didn't search for a health food store but Krapps had a decent sized health food area...
  19. ksymonds84
    If you can find boarshead in your area, their hotdogs are fantastic (i only make chili dogs with them not a big hot dog eater). They are the old fashioned casing and are still stuck stuck together in a rope. It says gluten free right on the package.
  20. ksymonds84
    Thanks for posting, I get a mild geographical tongue reaction to vinegar when used in salads and its nice to have a recipe version that doesn't contain it. I will probably skip the lemon juice as well since you said its fine without. Thanks again, sounds perfect for summer
  21. ksymonds84
    Me too. I practically live on the scoops with pace picante sauce. I am very sensitive and haven't had a problem but I only buy the scoops, stax, and sometimes the big frito's. For other chips, I haven't had a problem with the regular cape cod potato chips.
  22. ksymonds84
    This was how is was for me too. I got diagnosed with IBS in my late teens and thought that the strict low carb diet I was on cured the IBS. Now I know it actually cured glutened intolerance. As soon as I went off the diet my symptoms came back which is why I stayed gluten light for years and my blood tests came back negative for celiac. My doctor does...
  23. ksymonds84
    This was how is was for me too. I got diagnosed with IBS in my late teens and thought that the strict low carb diet I was on cured the IBS. Now I know it actually cured glutened intolerance. As soon as I went off the diet my symptoms came back which is why I stayed gluten light for years and my blood tests came back negative for celiac. My doctor does...
  24. ksymonds84
    My FIL asked my husband the other day when we were making plans to have lunch with them while on vacation if I wasn't "over that already".
  25. ksymonds84
    Hi Walt, Getting a concrete lab test is not always possible for some of us. Blood work has a 30% chance of a false negative and the endoscopy is often a hit or miss thing since the intestines are so long and its easy to miss a patch. My doctor diagnosed me based on a positive dietary response. The Mayo Clinic actually considers a positive dietary...
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