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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Welcome to the forum! Many people with celiac disease fall into the asymptomatic category, and for those in this group it seems they are the most likely to question their diagnosis. Unfortunately, even thought you may not have obvious symptoms, the health risks remain the same should you have celiac disease and continue eating gluten. Feel free...
  2. Scott Adams
    It is possible, and we have many research articles in this category on gluten ataxia and celiac disease: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/
  3. Scott Adams
    I am not sure if lecithin contains soy oil, but it is usually made from soy. I brought this up because of this article: https://www.sciencedaily.com/releases/2020/01/200117080827.htm
  4. Scott Adams
    Benfotiamine seemed to help my blood sugar issues, which may have helped eliminate the night sweats. Take with a B-complex.
  5. Scott Adams
    My first thought is are you sure your diet has been 100% gluten-free? If you eat at restaurants, probably not...
  6. Scott Adams
    As far as I know, SIBO would not cause a single positive ttg IgA test, let alone several. One test was nearly double the marker for celiac disease--this is a very specific test that can't really be explained by very much else, especially given his symptoms AND biopsy findings.
  7. Scott Adams
    Joint pain is very common in those with celiac disease, and it likely results from inflammation triggered by the gluten. I'm sorry this happened, and no, it doesn't seem adequate. There are many cases of people who sue restaurants for things like this, but I would never recommend that route unless something regular and intentional was happening at the restaurant...
  8. Scott Adams
    I agree that reactions vary so much from person to person that you likely won't be able to find two people who are just alike. I've never heard that Hunts Ketchup contains any gluten...on their web site there are no gluten ingredients, and there are none of the top 8 allergens (milk, peanuts, eggs, fish, crustacean shellfish, soy, tree nuts, and wheat...
  9. Scott Adams
    I used to have this issue, but I believe that once I finally got my vitamin & mineral supplementation figure out, it seemed to resolve.
  10. Scott Adams
    I don't envy you in your quest to go through a gluten challenge to get a diagnosis, but you only need to do it for 2 weeks before your endoscopy procedure, and it should be ~2 slices worth of wheat bread. Given your immediate terrible symptoms, and your family history, do you really need an official diagnosis? To me it sounds like you already have your...
  11. Scott Adams
    Unlike most autoimmune diseases celiac disease can usually be fully controlled by 100% avoidance of gluten, which is much easier said than done. I you can stay gluten-free, you should recover and not have any "flare ups." That said, there is definitely a sub-group of people who have ongoing symptoms, and they may need to do even more to recover:
  12. Scott Adams
    I agree, and it looks like you need to follow up your blood test with an endoscopy for confirmation. To me this still seems like a clearly positive result, especially if you have symptoms, which you didn't mention. Personally even if my endoscopy were in the normal range I'd still consider trying out a gluten-free diet, just based on your blood test results...
  13. Scott Adams
    That is an interesting issue, and I'm not sure if it would be tied to celiac disease or not. I did a search of our site for "dysphonia" and nobody else has reported this issue. Can I assume that you've been diagnosed with celiac disease and have been on a gluten-free diet? If so, for how long? Also, do you eat out? I'm wondering if you might be...
  14. Scott Adams
    All the symptoms you mention could be linked to celiac disease or non-celiac gluten sensitivity, so I can understand why your doctor thinks that you may want to try going gluten-free. If you are gluten sensitive, then a gluten-free diet would likely relieve many, if not all of your symptoms. You mentioned having an endoscopy done that was negative,...
  15. Scott Adams
    I think it is correct to assume that you have non-celiac gluten sensitivity, and since you know you've got symptoms when you eat gluten there is likely no need to do another celiac panel, which may turn out negative anyway, as those with NCGS don't necessarily have elevated antibodies. There is a stool test done by Enterolab that can detect NCGS, and I can...
  16. Scott Adams
    I believe others have mentioned that getting vitamin B shots used to be more common, but now it seems harder to get a doctor to back up this approach. Have you had your vitamin levels checked?
  17. Scott Adams
    That's not too far from me...will have to try in next time I'm in the area!
  18. Scott Adams
    I find it very strange that his doctor appears to be ignoring multiple positive blood tests for celiac disease AND biopsy results which seem to confirm celiac disease. The varied symptoms you've described are very typical for celiac disease, so my only question is, why has your doctor not started him on a gluten-free diet at this point?! Symptom relief would...
  19. Scott Adams
    I've been using this one: https://www.amazon.com/dp/B09MK6D652
  20. Scott Adams
    According to their Web site, it is gluten-free. See the Specifications tab at: https://www.samsclub.com/p/members-mark-seasoned-rotisserie-chicken/prod861280
  21. Scott Adams
    It's possible that the ones used in their actual store Cafes are different. I would ask if you could see the ingredients before eating them again. I'm sure that the packaged ones I linked to should be safe.
  22. Scott Adams
    It is likely gluten-free, post its ingredients here for more insight.
  23. Scott Adams
    until
    From the Experts: Join Our Virtual Monthly Meeting on "All Things Celiac" Advancing Celiac Research through Patient Participation and Industry Partnership Join the Harvard Medical School Celiac Research Program...
  24. Scott Adams
    Welcome to the forum! Were you eating ~2 slices of wheat bread worth of gluten daily for 6-8 weeks before your blood tests? If not, you could end up with false-negative results. This would be the normal testing protocol for celiac disease blood tests.
  25. Scott Adams
    Were you eating ~2 slices worth of gluten daily for 6-8 weeks before your blood tests? If not, you could have lower numbers, or end up with false-negative results.
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