
Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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CELIAC DISEASE AND POLYCYTHEMA VERA
Scott Adams replied to SamIPD's topic in Related Issues & Disorders
No worries...it's a forum discussion...jump in any time! I do not get itchy skin, but do feel like the higher values (I think my record is around 54%) makes me feel like I have a dull headache, and a general feeling of being unwell. After phlebotomy that unwell feeling goes away, as does the headache. -
To me it sounds like your wife's biggest issue is maintaining her 100% gluten-free diet. You are correct that it is very difficult, and if you two eat outside your home, especially in restaurants, it's likely she's getting some contamination: One good option if this is the case would be to use AN-PEP enzymes (GliadinX is a brand that makes them who...
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After 18 months still pregnant-looking
Scott Adams replied to chocoholic's topic in Related Issues & Disorders
There are some great gluten-free pastas out there, for example Barilla and Schar make good ones that you probably could not tell were gluten-free, but are probably no low carb. There are also high protein pastas and breads, for example I've see soy-based ones that are ok.- 20 replies
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Blood test results
Scott Adams replied to KT90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Kate, welcome. Is there any chance you can get a copy of the blood test results and share them with us, including the ranges for the tests? Sometimes you can have elevated antibodies which fall a little below the cut off. When this happens it can indicate gluten sensitivity, which, at the very least, your detailed description of your symptoms after eating... -
After 18 months still pregnant-looking
Scott Adams replied to chocoholic's topic in Related Issues & Disorders
Can you describe the main differences between the Autoimmune Paleo Diet and just a paleo diet?- 20 replies
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The Top 16 Gluten-Free Candy Bars
Scott Adams commented on Scott Adams's article in Gluten-Free Foods & Beverages
I know it can be confusing, and their site does say "no" to Baby Ruth being gluten-free, but they do not use any gluten ingredients in the bar. We revised the article to make this more clear. Here are the ingredients and allergen disclosures for the Baby Ruth bar: -
stomach pain
Scott Adams replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@knitty kitty has given you some great ideas, and I recommend that you try out some of the things she's suggested. Vitamins and mineral deficiencies are very common in celiacs, as are additional food sensitivities. -
CELIAC DISEASE AND POLYCYTHEMA VERA
Scott Adams replied to SamIPD's topic in Related Issues & Disorders
I just happen to have had a blood draw yesterday, and to clarify, I've not been formally diagnosed with anything, although many things like hemochromatosis, various lymphomas, lukemia, etc. have been eliminated. I should be avoiding iron rich foods, but don't always do that. I typically need to do phlebotomy every 1 to 1.5 months, and my doctor recommends... -
Anyone here have Celiac with Candida albicans together?
Scott Adams replied to TigerV's topic in Related Issues & Disorders
Welcome to the forum! Candida albicans can be caused by untreated celiac disease, but can affect anyone. Can I ask how long you've been diagnosed and gluten-free? I believe a paleo diet is one way to deal with it, but I'm sure there are others. I know that a low starch and sugar diet is important, as well as avoiding processed foods. A quick search does... -
Cross-contamination can always be an issue, so it's fair to tell the barista that you are gluten-free when you order (they do list drinks with names like "Cookie Crumble" on their menu, so gluten contamination is a real issue. On their site they have this warning: But they also do list all ingredients for each product on their site: https...
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Children's medication
Scott Adams replied to HeatherMStelmok's topic in Gluten-Free Foods, Products, Shopping & Medications
Currently nearly all OTC and prescription medications are not tested for gluten or labelled gluten-free. You can usually trust the inactive ingredients, especially with major brands like Motrin and Tylenol, and these are almost always gluten-free. If you would like to share any ingredients in them that you are concerned about, feel free to do so. -
stomach pain
Scott Adams replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Full recovery can take up to 2 years, but usually happens faster if you're 100% gluten-free. Having villi damage can also cause leaky gut, and make you have additional, usually temporary, food intolerance issues. You may need to do an elimination diet where you exclude certain foods for a few weeks, then keep a journal when you add them back. -
recovery
Scott Adams replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It sounds like your antibody levels did not go down as much as your doctor expected. It can take a while for some people, but one thing that can really slow this process down, or prevent if from happening at all, is how vigilant you are being with your gluten-free diet. Do you eat outside your home? Have you looked carefully at everything in your diet? The... -
Vertigo/Dizziness & Celiac
Scott Adams replied to CMCM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I still think that being gluten-free 8 days before your blood test can definitely create a false negative, because it can put you below the cut-off line that would make your results positive. In theory, each day you go gluten-free your blood antibodies that are created when you eat gluten and are sensitive to it would drop, but it can take a long time for... -
After 18 months still pregnant-looking
Scott Adams replied to chocoholic's topic in Related Issues & Disorders
Healing can take an average of 2 years, but if you are eating out regularly you could be getting gluten contamination, however, it sounds like you're pretty strict. Not everyone recovers from casein intolerance, so that could be another lifelong intolerance that could be causing your boating, but many celiacs do recover from that. Reducing your refined carbohydrates...- 20 replies
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The Cross-Contamination Myth-Buster!
Scott Adams commented on Dimitrios Douros's article in Autumn 2014 Issue
Celiac.com's position is, and has always been, avoid gluten and stay 100% gluten-free if you have celiac disease. People, however, can't always control their environment, some travel for jobs or vacations, and they eat outside their homes. Now there are solutions like AN-PEP enzymes (GliadinX, who is a sponsor here, is an example) that can help mitigate issues... -
Due to the age of the article it's doubtful the author will reply, but of course, experiment with the recipe and let us know how it goes.
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- best ever gluten-free bread
- best gluten-free bread
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You should definitely ask your doctor about a possible re-do of the blood test, but personally I don't think it's necessary (but if the doctors are willing to do it, why not?). The positive result is very specific for celiac disease, so I would just be sure she's eating a slice of wheat bread daily for at least two weeks before the biopsy. Should the biopsy...
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Waiting on endoscopy
Scott Adams replied to OpenlyCanadian's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My brother and I have DQ2 and DQ8 markers for celiac disease, and inherited one from each parent. My mother was diagnosed after I was, but my father passed away at 48 of a heart attack, and had Type I diabetes (smoking two packs a day didn't help either), but I'm sure had never heard of CD or was ever tested for it. It definitely affects many in my extended... -
Welcome to the forum! Can I assume that your granddaughter was eating gluten daily in the weeks leading up to her blood draw for the celiac disease tests? If not, that can reduce her levels, and cause false-negative results. Also, given the high positive on the IgG anti-gliadin antibodies and positive genetic marker for CD, did her doctor recommend...