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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    You may be crazy. But the truth is that we just do not know.
  2. ShayFL
    You do not need a doctor's permission (nor our approval) to put him on a gluten-free diet. You have motherly instinct. It is rarely wrong. Do what you feel is best for your son. The diet is healthy and if he responds well to it, then you have your answer and he gets WELL. This is the goal. If after you give it a good go for 3-6 months there is...
  3. ShayFL
    That is this one: Endomysial AB IgA Positive Very specific to Celiac. You can also ask for a genetic test.
  4. ShayFL
    Virtually certain. They will want to do a biopsy on you now for a "gold standard" dx. However, even if the biopsy is negative and you dont get an official dx, many in here can tell you that they had a dramatic POS response to the diet in spite of a NEG biopsy. Some Doctors would dx Celiac with your labs plus a POS response to the diet without...
  5. ShayFL
    Someone said the new Glutino Cheddar is close.
  6. ShayFL
    Not at all surprised you are the first to find these. I cannot do chocolate, so that passionate mango sounds divine.
  7. ShayFL
    Im with elonwy...low waste and stretch. Perfect. Im short too. I like the slight flare leg. It is flattering on me.
  8. ShayFL
    Make sure you pack plenty of your own food on that 5 day trip. Even if you mostly eat nuts and fruit brought from home. Canned tuna. Your own gluten-free crackers. Be prepared. Be very prepared. My Mom actually has this happen fairly regularly. But refuses to look into Celiac or gluten-free. I used to have it happen now and again. You are right...
  9. ShayFL
    A Dx based on those criteria depends on the doctor. Some will. Others wont. You can keep doctor hopping until you find one who will. But my question would be, why do you want an official Dx (via biopsy)? If ALL of the other criteria are met....why? I too am at high risk (perforation due to adhesions) so I refused biopsy. I am happy with my choice...
  10. ShayFL
    Some say that the diet should be pretty glutened everyday for a good three months. 3 or so servings of a gluten food a day. Depending on his age he may get a false negative anyway (common in children under 6). Here is the panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total...
  11. ShayFL
    1. Would DH have shown up on a routine skin biopsy or should my Dr have ordered a specific test? For DH it is important that the biopsy be done correctly. The lesion or red area should NOT be biopsied. You have to take a sample from normal healthy looking skin right next to the lesion. If your Dr. took an actual sample of the lesion/rash area, this was...
  12. ShayFL
    Everyone heals at their own speed. For many it can take over a year for full recovery. It requires patience (not my forte...LOL), but it does pay off. Also, there might be a threshold for those foods. Where 1 piece of cheese a few times a week is fine, but cheese and/or yogurt everyday is too much for his body to handle. That tends to happen...
  13. ShayFL
    Yes, you sure could have developed it in that 3 years time. Your blood work is STRONG positive and you should request a biopsy NOW to look for damage. Either way, there are plenty of doctors who would dx you with those bloods plus your symptoms alone. If you are still eating gluten, now is the time for biopsy. Back then you may not have had enough damage...
  14. ShayFL
    Tracy....I know exactly how you feel. From my first time having intercourse it hurt. But I thought that was normal. Then it continued to hurt EVERY TIME for 3 years. It was all I knew and I thought it was "normal". In those 3 years I never saw a doctor because even though I felt pain with it, it wasnt so bad to stop me and I thought it was how every...
  15. ShayFL
    The very SAD thing is this: That small amount of gluten he gets is not likely to yield a POS dx, BUT it is enough to be causing continual damage (even if you see no signs of that damage, it is happening). If he is Celiac, then that bit of gluten he is getting each week is like feeding him a few tiny pellets of rat poison each week. Not trying to be harsh...
  16. ShayFL
    If I were you, I would go back to grain free and feel GREAT again!! I am grain free and have never felt better in many ways. I didnt have a weight problem (I was too skinny) but the grains just dont agree with me. They spike my blood sugar. Grains are not the "health food" that the U.S. makes them out to be. Our bodies are not designed to digest them...
  17. ShayFL
    Shae is very pretty. My legal name is Sharon but my family all call me Shay.
  18. ShayFL
    That is right. With autoimmune diseases the trigger can be in a small amount or a large amount. The result is the same....damage. So whenever you eat "even a little bit of it" you are damaging yourself if you are Celiac. You arent doing yourself any health favors by be "gluten-lite".
  19. ShayFL
    The only Italian food he cannot eat that has gluten is Pasta and Bread. Now I know there arent many good bread recipes or subs out there for bread. But Tinkyada pasta....couldnt tell the difference. He can stay Italian. Just sub that out. And the 2 of you should have "dates" in the kitchen trying new gluten-free bread recipes.
  20. ShayFL
    Even if you dont get an official Dx, it will not hurt to try a gluten-free diet. It is healthy. And the proof would be in the eating. Also consider the SCD (Specific Carbohydrate Diet) as it sounds like it fits you. Wishing you well!
  21. ShayFL
    The thing is that your body is not able to properly digest and process fat right now, so it just goes right through you and you do not gain weight. I was this way before gluten-free. I have put on (as of this morning) 8 pounds since I went gluten-free. I have curves again. Mostly be patient with yourself. Learn the diet. Make sure you are 100...
  22. ShayFL
    I agree with everyone here and have nothing more to add, but support for getting the proper testing by challenging gluten (for 3 months would be good). Eat plenty of it and then get tested.
  23. ShayFL
    That is right. It is totally up to you. For me, even 2 weeks of vertigo and migraines is not worth it. I could care less about an official dx. I DID have the gene tests done though. I wanted to know if I even have Celiac genes. I do not (according to US standards). I have 2 gluten sensitivity genes. This is enough for me. Positive response to the...
  24. ShayFL
    Mine were very slightly elevated too before gluten-free. But went back down. I cannot pin point any symptom improvement though.
  25. ShayFL
    Chocolate and tea have caffeine also...enough to cause this. Google Evening Primrose Oil. It really got rid of my breast pain (years ago). I still take it.
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