-
Posts
1,569 -
Joined
-
Last visited
-
Days Won
1
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by cassP
-
ARCHIVED Hashimoto's Thyroiditis?
cassP replied to Simona19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
your TPO antibodies are elevated- which could suggest Hashimoto's. im not an expert on it yet. i have been diagnosed. i HAVE read that they can be elevated in people temporarily or have it not go into full Hashimoto's... but i might be skeptical about that. FOR SURE- you should have a full Thyroid Panel done- all of it: T4 free, Total T4, T3, Free T3,... -
ARCHIVED Newly Dx'd Question
cassP replied to Marc49's topic in Gluten-Free Foods, Products, Shopping & Medications
i couldnt survive without my Tinkyada Brown Rice Pasta! -
i like Rudi's! it DOES get easier for sure! ive actually gotten to the point now ( been about 7 months) where i dont even care to look at the bakery stuff at the grocery store.. and today i even got nauseaus smelling the bread loaf isle. HOWEVER.. i have had random cravings this week.. Krispy Kreme being one of them :/ i am one of those people...
-
ARCHIVED Confused About Latest Labs.
cassP replied to Jess-Ay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
it doesnt make any sense to me either. what was she referring to? your ttg iga was negative and your Iga total serum is within the healthy working range. ?? -
ARCHIVED Has Anyone Decided Not To Have Kids Based On Your Celiac Diagnosis?
cassP replied to SaraKat's topic in Related Issues & Disorders
Open Original Shared Link (about c-sections). please understand- that my observations from reading new articles everyday are not an attack on anyone- sometimes a woman HAS TO have a C-section.. and vaccines are every parent's OWN PERSONAL decision. also, i am not attacking how anyone's parents fed them as they grew up. while i wholeheartedly believe... -
ARCHIVED Has Anyone Decided Not To Have Kids Based On Your Celiac Diagnosis?
cassP replied to SaraKat's topic in Related Issues & Disorders
i read a crapload of stuff everyday- and i never save it. i just started to google to find articles that i have read. i'll continue looking, but this is the first one i found https://www.celiac.com/articles/21857/1/Autism-Linked-to-Moms-Autoimmune-DiseaseIncluding-Celiac-Disease/Page1.html -
ARCHIVED Has Anyone Decided Not To Have Kids Based On Your Celiac Diagnosis?
cassP replied to SaraKat's topic in Related Issues & Disorders
-
the reason (imo) that you're sometimes having issues, and sometimes fine- is because not all fruit has the same fructose levels. have you looked at Fructose Malabsorption online? or the FODmap diet? some fruit has enough Sucrose content to offset the fructose while other fruits are all fructose and can be problematic. i can drink a gallon of pineapple juice...
-
ARCHIVED Mom's On Atkins
cassP replied to SGWhiskers's topic in Parents, Friends and Loved Ones of Celiacs
i know that many experience gluten withdrawal, but i personally never have- other than EXTREME CRAVINGS almost as bad as ciggarettes.. but only for a few days. YEARS ago- when i FIRST went on Atkins- STRICT, NO carbs, no sugar, no fruit.. i had no withdrawals, except mental cravings.. and the first 3 days i was EXHAUSTED- i believe this is because the... -
the DH on my stomach (small 1 1/2 square inch patch) took about 4 months to go away. still a little discolored tho. and i know for sure that HEAT can aggravate the rash. it might not be your sweat- but the fact that the rash is getting hot.. mine always got worse after i got out of a hot bath.
-
ARCHIVED Those Who Cant Eat Nightshade Vegetables - Cracking Lips, Pus-Filled Pimples?
cassP replied to Evangeline's topic in Food Intolerance & Leaky Gut
my only symptom is bloating and painful gas. but i dont think my problem is "nightshade", i think its fructose & fructans. i can eat tomatoes in moderation, and a tiny bit of peppers.. but potatoes hurt. it usually takes me 24 hours to 3 days to get back to normal. hope someone has better advice -
ARCHIVED Has Anyone Decided Not To Have Kids Based On Your Celiac Diagnosis?
cassP replied to SaraKat's topic in Related Issues & Disorders
ya, i dont think you should base your desicion to have kids off of your Celiac. it really is not a big deal- everyone's got something.. and you should do what you want in life- and if having kids is part of who you are- you need to live life to the fullest! i WOULD tho- if you're going to have a baby- i would consider your Celiac dx in your baby plan... -
ARCHIVED Diagnosed 2 Years Ago Only By Blood Test, Could It Be False?
cassP replied to HS7474's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
many of us have additional food intolerances... especially to all those fake fats & fake sugars & corn byproducts-> especially in all those gums (sorbitol, manitol, etc etc...) i have GREATLY reduced the amount of sugar free gum and mints i use- and it seems to have helped. they used to give me intestinal gurgles nonstop. i now use a lot of... -
ARCHIVED Is MSG Safe?
cassP replied to blissfully-unaware's topic in Gluten-Free Foods, Products, Shopping & Medications
ya, i agree. and when you typed "Chinese Food".. alarm bells went off in my head- Asian food can be a real disaster unfortunately- its so frustrating- because it's SO YUMMY- and it would be so easy for them to use Wheat Free soy sauce and fish sauce and oyster sauce- and it would still be DELISH- it's not like trying to make a gluten free pizza crust taste... -
ARCHIVED I Thought I Had It Figured Out....maybe Not
cassP replied to jessicalw28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
wowww... im so sorry you've got so many annoying issues & unanswered questions... but know that many of us can relate to you here. like said above- i really hope you can get off the Effexor (but weaning and under the care of a doc)... i truly think these pschiatric drugs may be more harmful than good. be careful tho- ive heard that Withdrawal from... -
ARCHIVED Celiac/gluten Intolerance And Blood Tests
cassP replied to divamomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
those are all very tuff questions- especially considering that many doctors dont even know how to answer them. it might be easier to dissect your tests if i saw which antibody tests were taken and what the numbers were. it IS confusing because i think an official Celiac dx is just ONE aspect of Gluten Intolerance- i think Gluten can cause a VAST amount... -
ARCHIVED Gi Issues 4 Months After Going Gluten-Free
cassP replied to adab8ca's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
are you eating a lot of "gluten free" treats/breads/substitutes, etc???? a lot of those starches and grains mess me up... i feel better keeping those substitutes to a very minute amount. i got a gluten free brownie mix for xmas- and i just ate a few of them- horrific bloating and gas... just awful. i personally have intestinal issues with corn, potato... -
ARCHIVED Coffee And Celiac
cassP replied to Noche22's topic in Gluten-Free Foods, Products, Shopping & Medications
you know- coffee & tea can be hard on the stomach, but everyone is completely different. some people are so just fine on a couple of cups a day- if it doesnt hurt you- it could be good- has a lot of antioxidants. i personally have intestinal issues if i have more than 1 or 2 cups of either. -
ARCHIVED Can Someone Explain The Difference Between Sugars To Me?
cassP replied to Noche22's topic in Gluten-Free Foods, Products, Shopping & Medications
i tend to use both Splenda & Truvia. and when i bake- i use real sugar and maybe some maple syrup. technically (for me)- Truvia and SMALL amounts of maple syrup are the only things that dont have ANY effect on me. but i cant quite get my coffee or tea sweet enough with just Truvia.. so, baby steps. -
ARCHIVED What To Eat?
cassP replied to Happyw5's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
what's OAS ?????????????????????????????????/ -
ARCHIVED Cold And Flu Season - What Do You Take?
cassP replied to Lesx2's topic in Coping with Celiac Disease
if it were me, i would pound the ionized silver and GSE (Grapefruit Seed Extract). both at whole foods. ive used both to kill H.Pylori, a UTI, and a nasty sore throat. they're both natural antibiotics, antimicrobial, antiviral with no side effects... just make sure you follow the directions because even tho they're natural, they're potent. GSE... -
ARCHIVED Do I Really Have Celiac Disease Or Am I Gluten Intolerant?
cassP replied to Mama Melissa's topic in Coping with Celiac Disease
without ever even looking or considering your blood tests or biopsy, if you have a Celiac gene AND symptoms AND response to the diet- then noone could ever 100% RULE OUT Celiac. it would obviously ALWAYs be a possibility. i would listen to your first tests and your body -
ARCHIVED Confused About Tests
cassP replied to Marlie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
ya, what skylark said, and you shouldnt focus on genetic markers- they usually only test for DQ2 and DQ8- when there are so many more DQ genes that can predispose u to celiac. -
ARCHIVED Gene Testing Results
cassP replied to MacieMay's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
1st off- DQ2 & DQ8 are the MOST SPECIFIC "CLASSIC" genes for Celiac, altho- there are MANY MORE DQ genes that can predispose u to Celiac! 2nd- are those lab results stating that she is "DQ2 Negative, DQ8 Negative???? and- even if they are stating that she is negative on those 2 genes- that doesnt mean she in no way could have Celiac. there are biopsy... -
get your thyroid tested! my hair was falling out too- and this can be a symptom. gluten can also be linked to Hashimoto's Thyroiditis- so go get tested!