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cassP

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Everything posted by cassP

  1. cassP
    i follow this blogger- and she posted budget tips last week: Open Original Shared Link
  2. cassP
    has she changed her diet in other ways??? ie: when i first went on atkins years ago- i totally added way too much dairy in to my eating. and this last july when i totally went 100% gluten free- for about a month i ate way too many gluten free TREATS... little bloated and put on weight. ??
  3. cassP
    im sorry you're having to do chemo i hope u feel & get better SOON. ya, look for PF changs- they've got a fairly sized gluten free menu
  4. cassP

    ARCHIVED Scheduled Endoscopy

    cassP replied to crampy girl's topic in Doctors

    its not so hard really... it gets easier for sure... what PISSES me off is that it's not enough, that i (in my case) have to limit my dairy, limit my corn, limit my gluten-free treats, limit my grains... and now im in discomfort & will have "D" tomorrow morning because i overdid my fructose tonight sorry tmi... sometimes i feel quite superior ...
  5. cassP
    ps- PLUSSSSS our test result numbers dont always equal our symptoms... false negatives are common... and then you have the majority of celiacs with NO symptoms and HIGH numbers. ive suffered gut issues most of my life... in fact i canceled my movie plans tonight cause i overdid the fructose with my tomato sauce and my ttg was a "7". then you have my...
  6. cassP
    -so, were u able to see the ingredients for the chai??? i havent looked at them, but i used to work at barnies- and im sure the chai powder has a lot of crap in it- it could have wheat or barley, or maybe just corn byproducts???? i, personally, if i pass a certain limit on coffee or tea- i will get IMMEDIATE "D".. both coffee & tea can irritate the...
  7. cassP

    ARCHIVED Scheduled Endoscopy

    cassP replied to crampy girl's topic in Doctors

    crampy girl: i was very gluten lite for about 8 years before my 2 week challenge & tests... so im not surprised mine were so inconclusive. even if you were "nonceliac gluten intolerant"- you should know that it still warrants 100% compliance... it's still poison.. antigliadin antibodies have been linked to heart disease.. and gluten has been linked...
  8. cassP
    i follow them on twitter. i sometimes watch the videos... i think there's some helpful info on there, but also- it can be a bit alarming for me.. so sometimes i dont watch their stuff. i also really like Sayer Ji (he started www.GreenMedInfo.com ) i think ive seen him on gluten free society. i also like the stuff that Veterinarian puts out (the one who...
  9. cassP
    God Bless u Jason!!!!!! im going to print this out & get the book... this will help me a lot... plus my mom is hashimotos and she's been on synthroid 75mcg for years... she's never felt any better from it... her pcp (same as mine).. AND her doc at MAYO dont seem concerned thankyou so so so much... this is SO HELPFUL!!!
  10. cassP

    ARCHIVED Scheduled Endoscopy

    cassP replied to crampy girl's topic in Doctors

    i would imagine real squishy bread would be pure gluten... or pizza hut PAN pizza YUMMMMM good luck with that, gluten challenges can be very uncomfortable... i only did a 2 week challenge, and insurance would only help with one procedure, i did the colonoscopy just to make sure there was nothing SERIOUS.. glad i did, it was a relief. plus a ...
  11. cassP
    i wouldnt freak out- yes, genetics are passed down- but not everything... and on top of that- our genes are only 1 piece of the puzzle- then you have diet, and environment, diet & environmental triggers, viruses, bacteria, stress, emotional state, exercise.... you can lead a completely happy healthy life. it is good for us to know our genes and then...
  12. cassP
    that's really interesting.. how come it's not standard practice over here to screen for such things?? oh, because the drug companies would lose money if we were all healthier and how come we never hear of this Igm? it wasnt till the past 2 years i even knew what Iga & Igg were... and my docs only tested my Iga which was low. how come they didnt...
  13. cassP
    if you think it could be DH, i would suggest you go to a Derm you think is knowledgeable as soon as you can- have them take a biopsy NEXT to the lesion, not on the blister itself- and if that comes back positive- you dont have to do an endoscopy with biopsies. if you really have DH- then that means you have Celiac. after getting a positive on that- im not...
  14. cassP
    jason- can they tell when they test your blood if your T3 is active & normal or if it's "reverse"/inactive T3????? please explain this to me like im a 2 yr old... i would like to understand this and be able to have better communication with my doc in december. im so confused- because im on synthroid now.. tested as Hypo. but i was confused as to why...
  15. cassP
    oh, im no saint... have not been able to avoid all my intolerances... im still eating dairy.. and still indulge in frozen creamy coffee drinks- even tho they have an OBVIOUS NEGATIVE EFFECT on my intestines it was much easier to give up my high fructose foods- because the fructose put me in UNBEARABLE pain- and it's much easier to give up i worry...
  16. cassP
    YES! SWEET POTATOES! YUMMMM rice or mashed potatoes... what about some kind of Gluten Free version of a greenbean casserole ?? YUMMM
  17. cassP
    there's A LOT of info out there suggesting that Corn & Dairy make it more difficult for someone with villi damage to heal. a lot on here cannot tolerate soy. many of us feel MUCH MUCH better on very little grains. i, personally try to stick to a real healthy paleo type diet. i try to keep my sugar & grains to a MINIMUM. of course i indulge...
  18. cassP
    constipation was my main symptom too. sometimes i would have constipated "D"... or constipated "fatty/malabsorption" movements... but mainly the world's worst "C". i only got the "classic D urges" in the middle of the day if i had milk.. which im guessing was the lactose intolerance (acquired after gluten damage). good luck with all the testing!!
  19. cassP
    are you 100% gluten free? or only wheat free? years ago, i was lucky enough when going on atkins for my HORRIFIC excema to go away. i continued to eat small amounts of gluten in soy sauce or whatever. i would have wheat maybe once a month, would get itchy, but no excema. but that was just my body at the time. our immunological reactions change. im on my...
  20. cassP
    wow, im not sure if the mangos are acidic??? but if you can handle apples- then, you should switch to pears- they help even more
  21. cassP
    im 38 years old, and even tho ive experienced every gut symptom, and excema & hives, & psorasis & dandruff, and depression/anxiety.. hypothyroid.. etc etc... i just now got my FIRST episode of DH- after 38 years. i tried to do the Iodine patch test- but i could only leave the iodine bandaid on for an hour- the burning was unbearable- i even burned...
  22. cassP
    sounds YUMMMMMM
  23. cassP
    i agree! it's bs if you want to figure out if you have a gluten intolerance- you need to ask a doctor to test you- and you need to be eating gluten regularly (like 4 pieces of bread a day for 6-8 weeks at least) if you want an accurate test.
  24. cassP
    ya, DH is not "rare".. i think it's around 20% of Celiacs will get this. i didnt get it till 3 months ago! it is only now starting to fade you should most definitely be testing all your children if you have it... just figure out what you need to have them do as far as gluten challenges so the tests can be accurate.
  25. cassP
    have you seen these yet??? (only the top row in purple with gluten free label): Open Original Shared Link
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