-
Posts
1,569 -
Joined
-
Last visited
-
Days Won
1
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by cassP
-
ARCHIVED Refried Beans Revisited
cassP replied to Lalo's topic in Gluten-Free Foods, Products, Shopping & Medications
some people find beans hard to digest... i can do a small portion of pintos... also- a lot of people have problems with pig products. if it's not those- you may just be sensitive to sodium or fat? if you're digestive system is compromised because of wheat-> then it's likely that many things can be difficult to digest if even just temporary and as... -
ARCHIVED Almost Diagnosed, Plus Some Questions About Celiac
cassP replied to MarkR555's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
sounds like you have celiac to me Mark- so, you're already done with your endoscopy & blood tests????? if i were u- i would cut all wheat & gluten out now... if you're one of those people who needs the official diagnosis to start the diet- then please consume very very very minute amounts. and YES- the Dairy is BAD- if you've got GERD, and villous... -
ARCHIVED Suggested Supplements
cassP replied to India's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
that the industry is allowed to label things as gluten free even with minute amounts PISSES ME OFF- why is that ok AT ALL?????? oh & PS. India- i mentioned B12 shots- which i DO swear by- but unfortunately not every shot is the same... some are very "clean" & of course BENEFICIAL to u- i didnt think i needed to be investigative about it- but... -
ARCHIVED What Is Your Response When People Say.....
cassP replied to sahm-i-am's topic in Coping with Celiac Disease
oh no- im so sorry - but i DO say it to myself all the time... and i would probably say it to someone else- for me anyways- it's way better than Diabetes or Lupus or MS... BUT- YOU deserve some major understanding tho- cause Lymphoma is HUGE.. and "iron infusions".. that doesnt sound delightful... it is a big pain in my a tho- & NO LIE- i thought... -
2 weeks is not a long time at all- you should definitely expect more healing & feeling better... and weight gain hopefully hope u figure out what works for u
-
ARCHIVED The Barium Contrast Fot The Ct Of The Abdomen?
cassP replied to Simona19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ohhhh- the prep is a ROYAL PAIN.. altho honestly the actually drinking the liquid and having the "D" aren't as bad as the NOT EATING for 24 hours (hard for me!) the procedure itself is a BREEZE. the painful gas (for me) was MISERABLE- untill i was able to get home on a heating pad- -
ARCHIVED I'm So Sick Of This
cassP replied to ouchmyintestine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
WOW.. Diverticulosis/Diverticulitis? is a big deal- no wonder u feel the way u do- hope this alleviates some of your anxiety- u KNOW your body was telling u something- it's not "all in your head". so glad u got those tests done.... we're waiting to hear about your biopsy -
ARCHIVED The Barium Contrast Fot The Ct Of The Abdomen?
cassP replied to Simona19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
REALLY??? only SOME docs inflate with gas- i thought they all did to see better??? oy vey- unneccesary discomfort... i dislike doctors -
ARCHIVED Elimination Diet - Making Me Sick?!?
cassP replied to lucia's topic in Food Intolerance & Leaky Gut
just make sure your beef doesnt have wheat or corn starch & MSG, etc.... and what about trying some things that the Raw Foodies do.. like blending raw stuff in a Vitamix & reaping the enzymes???? idk... also could u handle some Spirulina mixed with water or a juice u can do?? i just learned that Spirulina has B12.. ?? hope u feel better soon -
ARCHIVED The Barium Contrast Fot The Ct Of The Abdomen?
cassP replied to Simona19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
in continuation of what u said about feeling crampy afterwards.... *and anyone else chime in if u want! - did u ever have a colonoscopy??? and took a while to recover afterwards?? for example- MOST people either feel NO cramping/painful gas after one... and some people have painful cramping for the rest of the day... i HOWEVER had painful cramping/gas for... -
so, how long have you been gluten free?? it's possible that once your small intestine heals - you WILL start to put on a healthy weight because you will be absorbing more nutrients. and how underweight are u??? do u know your fat percentage? as far as diet- i dont know how to direct u. i personally do better on a meat & veggies diet. for ME-> the...
-
ARCHIVED People Not Taking You Seriously
cassP replied to LePandaRouge's topic in Parents, Friends and Loved Ones of Celiacs
yes! you need to drag your mother to get tested.... im "THIS CLOSE" to dragging my dad in .. i COMPLETELy understand- in addition to family- its everybody else too.... looking at u like you're looney- oh i totally am there with ya -
for those of u that have had DH- how long after going Gluten Free did yours go away??? im pretty sure ive only had psoriasis & excema, but once had suspicious bumps on my forearm... and now (even after 5 weeks gluten free)- i have something new around my navel... but not sure if its DH- cause pics on google are the EXTREME pics... ???? its possible...
-
ARCHIVED Do You Think My Asian-Adoptive Child Could Have Celiac?
cassP replied to VitaminDGirl's topic in Parents, Friends and Loved Ones of Celiacs
as long as your daughter is not too uncomfortable or sick- i would try asap to get a complete Celiac blood panel- BEFORE u take her off the gluten. -
ARCHIVED Are These Products Ok?
cassP replied to jasonD2's topic in Gluten-Free Foods, Products, Shopping & Medications
i REALLY HOPE they're safe- i LOVE their breads -
ARCHIVED The Barium Contrast Fot The Ct Of The Abdomen?
cassP replied to Simona19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
omg hilarious- you're actually correct to write "spelt" (an alternative to "spelled")- but all i saw was SPELT as in an ancient form of wheat... & does anybody know what exactly a barium & ct does that an Endo or Colonoscopy cant do??? isn't Barium toxic??? i'd love to understand it all -
ARCHIVED Brainstorming, Help Me Sort Through Potential Clues
cassP replied to brendab's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
YES- as above poster stated- u definitely need to get yourself and kids checked for Celiac, etc.... but also to MAYBE calm your nerves a little (of course u need to get checked- as hair falling out can be a symptom of celiac or thyroid problems)- i ALSO read- that u shed excess hair after having a baby- that while you are pregnant- u dont shed any hair-... -
ARCHIVED Are These Products Ok?
cassP replied to jasonD2's topic in Gluten-Free Foods, Products, Shopping & Medications
i think everyone's different- some enjoy the fiber effects from grains... i dont. i actually went 3x a day when i was on a paleo type diet years ago. and in recent times- ive experienced better regularity from eating certain fruits than grains. but again everyone's different. -
ARCHIVED Is There Any Definitive List As To What Causes High Ttg Besides Celiac?
cassP replied to adab8ca's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ive only seen the ttg related to Celiac, Crohns, and autoimmune liver disease. um- your numbers are PRETTY HIGH- and im not so sure i believe in a false positive- i understand wanting a "diagnosis", but as long as your liver & thyroid are fine- i would presume u have Celiac. at the very least i would presume u need to be 100% Gluten Free. of course stay... -
ARCHIVED Are These Products Ok?
cassP replied to jasonD2's topic in Gluten-Free Foods, Products, Shopping & Medications
all the recent posts & articles about CC is making me so sad... i DID in fact feel GREAT years ago when i wasn't eating ANY grains... just mostly meat & veggies. im not up to par now- dont know if it's CC or grain intolerance... omg im not ready to be that strict yet- so hard ... im so emotionally attached to food -
omg- i'll try to keep this short- it just depends on how much, what kind, and for how long i eat it... the norm is to feel like i have huge rocks in my stomach & intestines like even 10 min. after eating it. i dont get the "D" or floaty fatty movements unless ive been on gluten regularly. i usually get some "C" & how do i say this.... um... white...
-
ARCHIVED Are These Products Ok?
cassP replied to jasonD2's topic in Gluten-Free Foods, Products, Shopping & Medications
Lara bars bloat me up horribly- because they're mostly made of Dates- and i can't digest excess fructose -
ARCHIVED Do Probiotics And Enzymes Help You For The Most Part?
cassP replied to sweeeeet's topic in Food Intolerance & Leaky Gut
good for u!!! i havent been able to give up the dairy yet in my personal opinion- i've noticed more positive change from actually eliminating wheat & gluten from my diet than the probiotics or enzymes.. i think they most definitely help- but i think the biggest change comes from the diet. -
ARCHIVED Worried Parents
cassP replied to alaskagal67's topic in Parents, Friends and Loved Ones of Celiacs
Hi Gidget! i'm Iga deficient- i have a "sensitive" stomach, and have had H.Pylori & of course several stomach bugs- but i dont think any more than the average person.. but i dont know. as long as i eat right- i think i feel healthier than most people so dont feel disheartened. you do have to figure out tho whether or not your child has Celiac ... -
ARCHIVED When A Loved One *might* Be Celiac
cassP replied to cdog7's topic in Parents, Friends and Loved Ones of Celiacs
OMG- i COMPLETELY relate... i have been obsessingly worried over my family- wanting them to get tested... problem is most of my family is pretty gluten free or gluten lite- so they would probably get false negatives. except my Dad- he STILL eats reg. pasta everyday- i want him to get a blood panel NOW while he's still eating enough gluten- but he's SO stubborn...