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RollingAlong

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Everything posted by RollingAlong

  1. RollingAlong
    Congratulations! DH's blood sugar issues (much milder than yours) improved when he went gluten-free. All his tests and biopsy were negative. The only postive test was with Enterolab. And of course, excellent response to the diet. I read a book called "Life without Bread", which is really about a lower carb diet, not necessarily a gluten free diet like...
  2. RollingAlong
    A fasting blood glucose test can be perfectly normal and you could still have a problem. www.bloodsugar101.com explains this and other pesky problems with blood sugar testing. Good luck with it and keep us posted!
  3. RollingAlong
    Thank y'alls. I had seen several forums on Google, but most had very little traffic. CureZone seems to have a critical mass.
  4. RollingAlong
    The allergist tells me I am allergic to phenols and formaldehyde. And I thought it was the cat - oops! Can anyone recommend a good online forum for Chemical Sensitivity? Where do those folks hang out? I have really basic questions and my allergist wasn't a lot of help. Questions like - I got a new book for Christmas, but it smells! How can I prepare...
  5. RollingAlong
    Please post your test results. The folks here have gobs of experience with those. All of my spouse's tests were negative, except for Enterolab, which is its own brand of controversial. He's gluten-free/CF and feels so much better. The diet is the ultimate test. I don't think he would ever have considered trying dairy free without the input from Enterolab...
  6. RollingAlong
    I can only comment based on your description of your symptoms. I've read the symptom list for Food Chemical Intolerance because I'm planning to try the diet myself. I think the diet is worth your time and effort, and Rachel, who has tried the diet successfully, thinks it is worth your time and effort. You've already seen some improvement when you've successfully...
  7. RollingAlong
    I don't know, Mr.Moore, but I think it is possible that it could be any or all of those 3 items (turkey, milk (ultra-pasturized?), bread) depending on how they were prepared. I don't know enough about it to tell you for sure. I do know that Boar's Head brand has no MSG. I think you would find the Sue Dengate book, Fed Up, which explains the Failsafe...
  8. RollingAlong
    I haven't heard of a pill that blocks glutamate. Some people stay on the Failsafe diet indefintely and some people use it temporarily as a way to determine if their problems are amines or salicylates (or both) and where their tolerance level lies. This varies widely from person to person and even seasonally, perhaps due to sunlight and exercise variation...
  9. RollingAlong
    Does this include the soups at Jasons? When I checked last year, the ingredient list had "chicken base" and I couldn't get any info beyond that as to the exact compostion of "base." I had not even heard of gluten at that time, but I read labels carefully for migraine triggers. Chicken "base" almost certainly has some sort of glutamate in it. But if Jason...
  10. RollingAlong
    Mr. Moore, have you tried the Failsafe diet? I am prepping to try it. There are several Yahoo discussion/support groups or see the Plant Poisons and Rotten Stuff forum.
  11. RollingAlong
    If you suspect blood sugar problems you need a meter. www.bloodsugar101.com can help you sort out that angle. But possibly it is the salicylates in the juice. You could try a low sal juice to see if you have similar symptoms. You would need to make pear juice from pears canned in syrup or ripe peeled pears (the details are important). Read up on the Failsafe...
  12. RollingAlong
    I can't eat dark chocolate, gluten-free or not, in any significant quantity. Did you use to eat such dark chocolate? There's a lot of salicylates and amines in chocolate and those 85% bars are pretty intense. if you try another brand (gluten-free, like Dagoba) try the same portion size and see how you feel. I've got my fingers crossed for you!
  13. RollingAlong
    What book was that, please?
  14. RollingAlong
    The Pituitary Network Association www.pituitary.org has a lot of helpful info and they feel that these sorts of issues are often handled incorrectly. "Incidental little nothing." is something they would probably disagree with unless you've consulted a pituitary endocrinologist, a true specialist. If the tumor is affecting your thyroid, you can adjust the...
  15. RollingAlong
    Do you notice a difference in your rash when you eat foods with lots of amines, particularly histamine? My skin sounds similar and it seems to get worse if I eat those foods.
  16. RollingAlong
    Would baseline blood tests possibly be useful for somebody like Scully, to see how things are going with diet? Might be more convenient, long run, than Enterolab.
  17. RollingAlong
    I don't understand what I am reading about casein. I read that 50% of all celiacs have trouble with it (Pubmed) but I couldn't tell if this was long term or not. It doesn't seem to me that anywhere near 50% avoid it. I read that it looks a lot like gluten so the body confuses it with gluten (same with soy). I've read that if you're digesting...
  18. RollingAlong
    I think the Enterolab tests gave you some useful info. 1st, you have 2 gluten sensitivity genes and you don't seem to have any celiac genes. (Enterolab genes tests aren't complete, they only do the beta units.) 2nd, DQ5 is one of the genes that is loosely associated with mood and neurological issues related to gluten. (I don't follow the lit on DQ7,...
  19. RollingAlong
    We're trying to avoid all of those foods. We're pretty new at this and I think he's reacted to soy (a gluten-free cookie, not a terrible reaction) and casein (caramel color) but I'm not sure. An item can be dairy free, but then they can add something to it that contains casein (caramel color) or sodium caseinate or something like that. The best source...
  20. RollingAlong
    Did you get the ingredient list? The only thing I can think of is that the foods you mention are high in amines.
  21. RollingAlong
    There are several blogs devoted to this sort of cooking. You could try those for awhile. here's a couple: Open Original Shared Link Open Original Shared Link Here's a online magazine from one of the chapters Open Original Shared Link I have the book and it is a real mixed bag. I can recommend your buying a used copy, but don't shell out...
  22. RollingAlong
    The initial endoscopy report said that the duodenum had valuvulae with "diminished prominence" and the muscosa was friable, but the final report said that everything was negative or within the normal range. Beats me. The report came with pics so we can see that his duodenum doesn't look like the ones in google, but that's about it. Next we'll try...
  23. RollingAlong
    I DID ask about the celiac panel, I must have misunderstood... because after a 3 month gluten challenge (following a year of gluten lite because of very low carb) my husband's blood work shows only an Endomysial which was negative and some other tests I hadn't expected: WBC 3.2 (range 4.5 - 13) RBC 3.74 (4.5 - 5.3) HGB 11.8 (13.0 - 17.5) HCT ...
  24. RollingAlong
    Wallace McGrew, gastroenterologist Frist Clinic www.fristclinic.com I don't think the enzymes work if you're having an autoimmune reaction to gluten. they help your body digest it better, but your body still reacts to the smaller digested bits, if that makes sense.
  25. RollingAlong
    check out the failsafe diet also. Don't worry, there's plenty to eat and it may help you find a pattern to this.
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