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RollingAlong

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Latest Celiac Disease News & Research:

Everything posted by RollingAlong

  1. RollingAlong
    The Pituitary Network Association is an excellent source of info www.pituitary.org
  2. RollingAlong
    yes. DH is also NCGS. We saw further improvement when he gave up casein and still later, soy. I should say that we may have confounded our variables on these last two. There was a 12 week gluten challenge in there and things got really bad for awhile... don't think so though, I've been looking into this and it has something to do with tryptophan...
  3. RollingAlong
    You might want to read up on the Failsafe diet. It is a systematic way to determine your tolerance level for food chemicals, such as antioxidants, Do you have issues with salicylates?
  4. RollingAlong
    Consider checking your blood sugar. Check the drugstore flyer for a special on a meter and a vial of test strips. See bloodsugar101.com for details on how to use test strips efficiently. You need to do this at home on your own, The fasting test at the doctor's office won't give you the info you need. Another option is to look into the Failsafe diet...
  5. RollingAlong
    Whatever you do, re: testing and docs, you are on it to keep using that blood glucose meter! Check out bloodsugar101.com for info on how to get the most out of your test strips. If you decide to eat low carb for awhile, the bernstein diabetes forum is a pretty good fit for that, even if you are not diabetic or even pre-diabetic. Great recipes! The forum...
  6. RollingAlong
    This is an interesting thread. I had read that it can take years for a B12 deficiency to develop. Here is a NHS website (UK) Open Original Shared Link Is dietary response a commonly accepted test for gluten sensitivity? Or is this controversial? It could be, I suppose, if you also change the carbohydrates in the diet. It makes sense that there...
  7. RollingAlong
    Thank you. thanks also for the b-vitamin info.
  8. RollingAlong
    I'll just list my favorite here. I had CDH - chronic daily headache - for over a year. CDH is just what it sounds like a 24/7 headache. To try to get rid of it, i went without ALL pain meds for 10 months. no aspirin, no NSAIDs, no caffeine, no triptans, nothing for the CDH or my migraines (a whole 'nother problem) no gluten, no CDH! and my migraines...
  9. RollingAlong
    my spouse had several random incidents the first few months. He ate a very limited diet our kitchen is very simple and gluten-free and I truly doubt he was making mistakes. I think some of these occurences may be things healing up.
  10. RollingAlong
    I really don't know much about them but the Paleo diet is a place to start your research. Or consider the bernstein diabetes forum. They eat a low carb diet which ends up being almost ompletely lectin free by default. There is some discussion of lectins there, and great recipes.
  11. RollingAlong
    What sort of blood test did you do to rule out diabetes? You can have blood sugar issues short of full-blown diabetes anyway, see bloodsugar101.com for details.
  12. RollingAlong
    I don't think so, I think he was talking about eating a whole sandwich or something. He was talking about keeping your immune system in a constant state of alert rather than calm most of the time, with an occasional accident. Otherwise, there wouldn't be a difference in the stats, because people do have accidents.
  13. RollingAlong
    What a wonderful story. I wonder if each of our doctors knows how many celiacs are in their practices - and statistically, how many they should have.
  14. RollingAlong
  15. RollingAlong
    What books are you reading about gluten sensitivity? They sound out of date. The latest ones, published this spring - Healthier without Wheat and The Gluten Effect would disagree with this statement: "It seems that with gluten sensitivity (which it seems I have on any level) you can have a bite now and again and only suffer short lived effects" celiac...
  16. RollingAlong
    SMR is standard mortality ratio Untreated celiac is 2x as likely to die as someone of the same age Treated celiac who eats gluten 1/month is 6x as likely Treated celiac with NO gluten is half as likely! These statistics were from a talk by Dr. Tom O'bryan. www.thedr.com I think he sells a dvd of his talk on his website, just BTW He had references...
  17. RollingAlong
    Bea, If it isn't too personal a question, could you elaborate on the "brain chemistry alteration"? Or if you have sone this elsewhere, could you point me to it? Just BTW, I don't happen to find your dietary changes radical, but I think the Paleo diet is a reasonable choice and plenty of people eat that because they want to, not because their digestive...
  18. RollingAlong
    Clearly I am technology intolerant as well as gluten intolerant. Sorry about the problematic link. Here's an excerpt, please google at will! G. Kristjansson et al., "Mucosal reactivity to cow's milk protein in coeliac disease." Kristjansson gave coeliacs casein and lactalbumin enemas and measured their inflammation response. 10 of 20 coeliacs had a...
  19. RollingAlong
    Some of that 10 pounds could be bloat or inflammation. The question is - how do you feel? > Is it all down to just fresh meat, fruit, and vegetables? That can be a great way to control your blood sugar and also a great way to heal up quickly. You will also save some cash, because the gluten-free goodies can be a bit spendy. If you are planning...
  20. RollingAlong
    Congratulations on 5 years of gluten-free! Rather than tackling both soy and dairy at once - Have you been tested for casein intolerance? (Would it help you to do so?) I think your odds are 50-50. Here's the study. casein & celiac >eliminating as much soy and dairy from my diet as I reasonably can. I'm pretty sure that, like gluten, you aren...
  21. RollingAlong
    Wangen's Healthier without Wheat is the best book I've seen so far on non-celiac gluten sensitivity.
  22. RollingAlong
    Here's a post from the Hyperlipid bog with an idea of why glucosamine works. Supposedly it fits into the receptor that gluten fits into. Hyperlipid postwith comment on glucosamine
  23. RollingAlong
    x
  24. RollingAlong
    I think mine is pretty good, but your neuro is wow-za!
  25. RollingAlong
    Hi mindwiped, panic attacks - ugh! I found that whenever I changed my Topa dose, my thyroid meds needed adjusting. My main symptom was anxiety, but no panic, thank goodness. Later I found this in the medical literature; all the epileptic type meds can affect the thyroid. Anyway, when you get down from the Topa, you might want to check your thyroid again...
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