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RollingAlong

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Latest Celiac Disease News & Research:

Everything posted by RollingAlong

  1. RollingAlong
    1. SO, do I consider myself officially diagnosed as celiac? No. If you want to know if you have celiac, and you have had a complete panel of celiac blood tests, including total IGA, the only thing you can do next is an endoscopy. With the postive dietary response, you can consider your self diagnosed as gluten intolerant. You may want to challenge...
  2. RollingAlong
    Open Original Shared Link This document from the USDA lists all ingredients allowed in meat and poultry products. This was posted on the Slow Food USA blog. They would say that not being able to eat Tyson's is no big deal, because it is easily the most non-chicken flavored substance known to man!
  3. RollingAlong
    Milk (Casein) Ab SIgA Positive Soy (Protein) Positive Don't overlook these 2 positives. You could try eliminating these from your diet now. It might help you feel better while you await further tests to confirm celiac. I don't know a lot about the various blood tests and which are considered definitive. I've read conflicting information about the...
  4. RollingAlong
    There are limitations to all the tests. Confirming food intolerance with a challenge is standard.(I am talking about intolerances, not allergies that require epi-pens.) That said, after your reaction to barley, I wouldn't bother testing wheat or rye. I wouldn't spend the money on the celiac gene test either. The elimination/challenge process does...
  5. RollingAlong
    The Bernstein Diabetes forum also has discussion on Gastroparesis. He believes the nerve damage can be reversed with time and recommends supplements to assist with this. Open Original Shared Link
  6. RollingAlong
    I agree, I've read quite a lot here in the last 18 months and the usual tone of posts is generally very friendly and supportive. My spouse had a lot of trouble during the first week of CF. He felt terrible, mentally and physically and he didn't eat that much. You are almost through that first week - hang in there!! I eat Gluten-free Casein-free (not...
  7. RollingAlong
    I agree with ravenwoodglass - having withdrawals from a food is not a good sign and you should eliminate dairy. I actually think casein is even sneakier than gluten.
  8. RollingAlong
    my spouse had withdrawal symptoms for only about 2 days. I think it started on day 3. Those 2 days were really weird for him - he said he felt like his head wasn't completely attached. By the end of two weeks, he started feeling really good, but it was only those 2 days that were especially hard. But after that he had a lot of random occasions when he...
  9. RollingAlong
    Just an aside, there are many T1's eating "just salad and steak" and thriving. Examples are either following the Bernstein diabetes plan or the Paleo diet. There's a good forum for the Bernstein plan if anyone is interested. And here is a very interesting blog by a recently diagnosed T1 who's off insulin now by way of the Paleo diet. Don't know if it...
  10. RollingAlong
    There's some research discussing celiac and testosterone levels. Age and other factors can influence the ability of the sex hormone
  11. RollingAlong
    Not an expert, still trying various meds and dosages to get my thyroid straight. I have found some of the postings at the Heartscan blog to be helpful. As I understand it, he aims for about 1.0 TSH for his patients. Open Original Shared Link Your #'s look good to me; but the important thing is - how do you feel? Congrats on getting that ferritin...
  12. RollingAlong
    epigenetics "processes that lead to inheritance that is not reflected in the sequences of the nuclear DNA."
  13. RollingAlong
    coconut milk custard! Not kid friendly for the cooking (water bath) unless you can find a way to do this in the microwave. But the prep is very simple. Here's an interesting sweet potato pudding with coconut milk Open Original Shared Link Miracle noodles with ghee? I bake sweet potatoes ahead of time and serve small amounts of that, again, with...
  14. RollingAlong
    Does he like coconut milk? Do you have any ghee? Can he handle the carbs in potatoes or sweet potatoes or gluten-free oatmeal? If so, the potatoes can be baked ahead and make good snacks with lots of ghee. If the carbs are a problem, Cauliflower "rice" with ghee is good eating and I think quinoa would work too. Maybe you could try one CF dish...
  15. RollingAlong
    Many people report weird reactions to all sorts of things when they are first on the diet. This is considered normal and indicates that things are healing up. Leter, you may see a more consistent pattern to reactions. If you wouldn't mind keeping us posted, I would be interested to know if other family members see any changes, particularly postive ones,...
  16. RollingAlong
    Here's a link to a book on Google Books that seems to say - yes, any food causing an intolerance can cause withdrawals. It gives a detailed description of possible symptoms and the timeline. Just FYI, I have never heard of this phenomenon myself. My spouse had withdrawal symptoms from casein, but not gluten or eggs. Open Original Shared Link if...
  17. RollingAlong
    Does anyone notice that eggs affect their mood?
  18. RollingAlong
    do you use a dishwasher rinsing agent? Eliminating dairy, even for just 6 months, can really help from everything I have read. Clarified butter or ghee is another option for butter. Good luck.
  19. RollingAlong
    when you say that eggs made you "feel yucky" are you referring to GI type stuff or something else? There's a separate egg thread right now and everyone seems to mention GI type symptoms. But my spouse recently challenged eggs several times and he reports a negative reaction involving mood. A negative mood sort of washes over him for most of the day. He feels...
  20. RollingAlong
    I don't have any good ideas about your general recovery questions, but I've seen posts recently where a neurologist recommended a casein free diet for migraines and chronic headache. It worked too. So it is certainly possible. I took the enterolab test for casein for just this reason - I needed motivation to give up dairy. I tested negative, my headaches...
  21. RollingAlong
    *** 1. What does having an "immunologic sensitivity" to a food really mean? I tend to think of allergy as meaning - "must cary epi-pen to avoid anaphalactic shock" and all the rest as intolerances or delayed allergies. Reading up on the terms innate and adaptive immunity may help you understand it better. There are 4 types of immunoglobulins - IgE, IgG...
  22. RollingAlong
    Congrats on your detective work. I am not sure I've ever read anything about copper deficiency and/or zinc toxicity having anything to do with blood sugar. I have seen some writes suggesting that zinc deficiency can lead to diabetes. Anyway, I just want to reiterate that you could have several factors contributing to the neuropathy, and of course the IGT...
  23. RollingAlong
    Carrboro - just west of Chapel Hill, takes a few minutes at peak traffic: Weaver Street market has a cafe (some prepackaged items available if you prefer to picnic) and a restaurant. The name Panzanella is a bit scary, but the food is good - definitely worth a look for a light lunch or they also serve dinner. There's a classic French place down the street...
  24. RollingAlong
    Most of the recipes I've seen for cheese sauce contain flour. Are you talking a standard bechamel, or white sauce, flavored with cheese? But you made a gluten free version? Do tell....I'm not planning on using the cheese, just the white sauce.
  25. RollingAlong
    You were ahead of the science. This blog post discusses a study showing co-morbidity between celiac and CF. Open Original Shared Link
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