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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    I find that we are more susceptible to viruses when glutened.
  2. dilettantesteph
    I can eat their whole buckwheat groats but I haven't tried their Kasha. I react to almost everything so that's a good sign. Good luck.
  3. dilettantesteph
    Hi Bartful, you have my sympathy and support. I am fortunate enough not to be sensitive to corn or soy, but I am sensitive to teeny tiny amounts of gluten. I also have had a very hard time finding a diet that works. I don't eat anything bread like anymore, but I don't miss it now. You may already know my suggestions. Keep a food/symptom journal. That...
  4. dilettantesteph
    It depends on how sensitive you are. I know people who cook gluten for others without issues. My son and I stayed sick until we made our household gluten free. Even when I didn't touch any gluten dishes, I still had problems. I would definitely not use flour and mentioned above.
  5. dilettantesteph
    When you are first diagnosed you are likely to be lactose intolerant because of the damage in the intestine. You might still be able to drink small amounts of milk. Open Original Shared Link I wasn't able to handle milk at all long before diagnosis, but after 6 months or so gluten free, I was able to handle dairy again. One way to tell would be to eliminate...
  6. dilettantesteph
    You could try to keep track of what she is eating and see if there is a connection between any particular food and her symptoms. Sometimes it can take a day or two before symptoms show up, so that makes things tricky. You need to keep track of brands with your food journal due to possible issues with shared lines and things like that. Have you looked...
  7. dilettantesteph
    Sometimes gluten free grains can be contaminated. Open Original Shared Link You might be able to tolerate a different brand. You said you can't tolerate gluten free oats. Was the kasha Bob's Red Mill brand? They process their gluten free foods in the same facility where they process their gluten free oats. They clean carefully between runs, but if you...
  8. dilettantesteph
    I was diagnosed at age 48 and was pretty sick, but I wasn't as badly off as you seem to be. I'm sorry. I seemed to respond to the diet right away, but then got sick again within a couple of weeks. I learned from my GI doctor that some celiacs react to lower levels of gluten than others. That is described in this reference. Open Original Shared Link I...
  9. dilettantesteph
    Are you still having symptoms?
  10. dilettantesteph
    Yeah! I went running with my teenage, cross country team captain daughter and same thing. Isn't it wonderful to get healthy again? I'm also 52! It is like we are getting younger instead of older now, isn't it?
  11. dilettantesteph
    You did describe it well. I get hit badly from that tiny contamination built up over a long time. I think it is because it gets pretty bad before I pay attention to it enough to figure it out. Then it takes me a few more days or weeks of eliminating things before I get the right thing. By then I'm in rough shape. The system is damaged and needs to do...
  12. dilettantesteph
    It is possible that you need more time. It is also possible that there are still things in your diet/environment which are bothering you. In the Fasano study which determined that 20 ppm levels are safe, Open Original Shared Link one of the participants had to leave the study due to a complete relapse. In other words, those levels aren't safe for...
  13. dilettantesteph
    I found that the longer I was gluten free, the more sensitive I got to lower levels of gluten. Symptoms returned without me changing anything. I had to change things to make the symptoms go away again. What helped was to keep a food/symptoms journal. That helped connect the symptoms to certain food items. It also helped to become more aware of possible...
  14. dilettantesteph
    I was very sick when I was finally diagnosed. I was regularly not making it to the bathroom. I couldn't leave the house without fear of a huge embarrassment. I couldn't work. I couldn't take care of my kids properly. At first I felt so much better just eliminating cereal and bread I was elated. Then I realized how much harder it was. I eliminated all...
  15. dilettantesteph
    I have been over 4 years gluten free and can now eat dairy again. I still have a totally flat belly. It was huge before. I used to get asked if I was pregnant when I wasn't, and I was pretty thin too. Just wanted people to know that a flat belly with dairy is possible.
  16. dilettantesteph
    I saw a huge improvement in exercise gluten free. I do a 200,000 m rowing challenge each year between Thanksgiving and Christmas so I have records going back 10 years. I looked through them and I got progressively worse each year, as you might expect due to aging. I was diagnosed at age 47, and that year there was a big improvement. The next year I...
  17. dilettantesteph
    It's hard. It took a long time for my husband to understand exactly how small an amount could be a problem, and he's a chemist! He may get there yet. I find it helpful to relate it to people with severe peanut allergies.
  18. dilettantesteph
    Good for you. I haven't put a note on my door yet. I was hoping that if you were more careful, your vision problems would go away as mine did. I'm sorry.
  19. dilettantesteph
    I assume that she was diagnosed by an endoscopy while she was eating gluten. I can't see any reason why you should put her through the illness which would result from eating gluten for another endoscopy. It sounds like your doctor doesn't know what he is doing and you should find another one. I hope that she has at least been feeling better. Good...
  20. dilettantesteph
    Some of us find that we seem to react to the tiny amount of gluten allowed in gluten free foods. We call ourselves super sensitive celiacs. We do better on a whole foods diet. You may be in this category. It is healthier to eat that way anyway. That might be why you have the positive blood work. Which hard cider are you drinking? Is it made in a mixed...
  21. dilettantesteph
    That's what I think, but I've managed to hold my tongue so far. It's also his son, who was only 10 at the start of all this. How selfish is one who won't make an extra effort to keep his young son healthy?
  22. dilettantesteph
    Are you sure? Are you in a gluten free home on a whole foods diet? You could be one of the few who react to lower levels. Super cute baby, by the way.
  23. dilettantesteph
    I feel for you. My husband used to be like this. At first I didn't get better all that quickly due to my super sensitivity. Part of it was living with him when he wouldn't take it seriously and would leave crumbs all over the place, and leave gluten in the gluten free areas etc. It's been four years now and he has seen enough to know that it is all...
  24. dilettantesteph
    My vision went from 20/40 before diagnosis to 20/20 after diagnosis. I can now read without glasses and I couldn't before. I've been wearing glasses since the age of 20 and now I don't need them. I was diagnosed at age 48. Just because my vision problems were caused by gluten, doesn't mean that yours are too. Nonetheless, you could consider reviewing...
  25. dilettantesteph
    My kids and I have noticed the same thing. I don't know if it is because exercise makes symptoms more obvious, or if it is that exercising makes the symptoms worse. The cure for us was to be more diligent about cc. I managed to do a mini triathlon after not even being able to run around the block. My son did a 5 K after not being able to run a mile...
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