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Latest Celiac Disease News & Research:
Everything posted by dilettantesteph
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ARCHIVED Short Stature And Celiac Disease
dilettantesteph replied to maramelia's topic in Parents, Friends and Loved Ones of Celiacs
With my son I'd say 3 - 6 months. -
ARCHIVED Identical Twins?
dilettantesteph replied to TBelle's topic in Parents, Friends and Loved Ones of Celiacs
There are identical twins in my local support group who are in their 60's or so. One has it and one doesn't. -
ARCHIVED Picky 4 Year Old, Transitioning To Gluten-Free
dilettantesteph replied to lil'chefy's topic in Parents, Friends and Loved Ones of Celiacs
My kids were also very picky. Now they are teenagers. What worked for us was to give them choices. I'd give them choices in different food categories. For instance they needed to have a veggie and a fruit and then they could have a cookie. It helps for them to feel in charge of what they eat. -
ARCHIVED Still Symptomatic After 6 Months Of gluten-free Diet?
dilettantesteph replied to DanPatch's topic in Introduce Yourself / Share Stuff
You might want to look into the possibility of being a super sensitive celiac. Some of us react to processed foods. What you would need to do is eat only produce and meat for a few days and see if you notice a difference. Then you could look into the particulars further. -
ARCHIVED Diarrhea Not Related To Gluten
dilettantesteph replied to GFreeMO's topic in Related Issues & Disorders
You might want to look into the facility where the tomato paste is made. I found that I couldn't eat store bought tomato sauce while I could eat my own. Again, I am super sensitive. I don't think that tomato sauce is a problem for the mainstream celiacs who frequent this site. -
ARCHIVED Diarrhea Not Related To Gluten
dilettantesteph replied to GFreeMO's topic in Related Issues & Disorders
Do you know that it isn't gluten related? Different levels of gluten will lead to different severity of symptoms. Open Original Shared Link I am a super sensitive celiac and I have had problems with certain naturally gluten free foods from some sources while I can eat them without symptoms if I get them from other sources. I think that sometimes they... -
ARCHIVED Celiac And Poor Growth
dilettantesteph replied to AnthonyinMaine's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiac disease can delay puberty. Here are some references. Open Original Shared Link Open Original Shared Link Open Original Shared Link My son was diagnosed at age 10. He is now 14. He has had periods of symptom reoccurance including delayed growth which we treated by dietary changes. In those cases his growth returned to normal. He went back... -
ARCHIVED Freaking Out, Can't Figure Out What's Causing Itchies In My Son
dilettantesteph replied to amberskids's topic in Super Sensitive People
Yes, I have had problems with those processed foods. I am extremely sensitive and have problems with most processed foods. I would first look at what you changed. Change it back and see if that helps. If not, and you really want him to get better, take out all the processed foods and see if that works. Then add back one food at a time, one per week or... -
Me too. So true!
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There's been some press lately about how vitamins aren't regulated very well. That might have something to do with it. About an earlier remark you made: I definitely notice a hormonal effect on my gluten reactions. They have always seemed worse when I am having my period. I noticed this even before I had heard of gluten.
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ARCHIVED Health Insurance Declining Coverage For Celiacs
dilettantesteph replied to azgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that without a positive biopsy you can say that you have not been diagnosed with celiac disease. That is the gold standard for the diagnosis. They say that there can be other reasons for a positive test. The fact that a follow up test was negative could be considered confirmation that you don't have celiac disease and the previous positive test... -
I made a health breakthrough when I dropped all vitamins and supplements. Counter intuitive, isn't it? I MENTION THIS REACTION AS A SUPER SENSITIVE CELIAC. SORRY TO BE IN THE REGULAR SECTION, BUT I WAS SPECIFICALLY ASKED A QUESTION. PLEASE DISREGARD IF YOU AREN'T A SUPER SENSITIVE CELIAC. I try hard to eat a balanced diet and get everything I need...
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Thank you. (I think LOL) I'm sorry, but no. I'm trialing almonds from Anderson Almonds currently, but don't have a definitive answer yet. They are shelled and I really hope they work. I do know someone else who is very sensitive who recommended them, which I why I am trying them. In general nuts work better when you shell them yourself. That...
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ARCHIVED Need gluten-free Brands Of Wild Rice
dilettantesteph replied to Joe0123's topic in Super Sensitive People
They sell dried veggies and fruit too. They look interesting. I don't see any gluten grains on their site. -
ARCHIVED Need gluten-free Brands Of Wild Rice
dilettantesteph replied to Joe0123's topic in Super Sensitive People
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ARCHIVED Persistent Depression, Irritability, Lack Of Focus
dilettantesteph replied to jumpingjuniper's topic in Super Sensitive People
I think that it was towards the beginning. The whole thing is a good read anyway. It is only 46 or so pages of text. The rest is references, tables and stuff. -
ARCHIVED Persistent Depression, Irritability, Lack Of Focus
dilettantesteph replied to jumpingjuniper's topic in Super Sensitive People
That has been my experience. Symptoms from higher level contaminations are different from symptoms from lower level contaminations. That was also the finding of the recent FDA analysis of gluten challenge studies. Open Original Shared Link -
ARCHIVED Refractory Sprue, Super Sensitivity, Prednisone, And Comorbid Autoimmunity.
dilettantesteph replied to CNV2855's topic in Super Sensitive People
I used to cry in the grocery store looking at all the food I couldn't have. It gets better. Now I really enjoy many foods I didn't eat before diagnosis. I hope that you all improve more fast. -
That's when I get my worst GI symptoms too. Sometimes very early in the morning. For me it can be anything I had the day before. I would eliminate almost everything to figure it out. For a few days you can go without toothpaste, soap, laundry detergent etc. If that doesn't help, then you know it's your food. Start using that stuff again and start eliminating...
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ARCHIVED The Hair Is Gone Now, But I Dont Have To Shave My Legs!
dilettantesteph replied to bonnie blue's topic in Coping with Celiac Disease
What a good job of looking on the bright side! I remember when my mother's hair fell out by the handful. She didn't mention the legs. She liked going around bald best. She didn't like the feel of hats. She didn't like the looks she got though. Scarves were a good compromise. -
ARCHIVED Need gluten-free Brands Of Wild Rice
dilettantesteph replied to Joe0123's topic in Super Sensitive People
This was about wild rice harvested by canoe. I can't remember the name of the one I got. I did a google search and a bunch come up. Edited to add: I forgot that I have the name written down somewhere. It was Fanci Food. It was much better priced than a lot of the others too. -
ARCHIVED Food Dehydrator
dilettantesteph replied to GFreeMO's topic in Gluten-Free Recipes & Cooking Tips
I make a nice chip from 1 c. cooked potato, 1 c. cooked greens, 3/4 c + 1T water, 2 T oil, 1 T vinegar and a little less than 1/2 t salt. Blend together and that does one pan of my dehydrator, but you need inserts like for fruit leather. -
ARCHIVED Need gluten-free Brands Of Wild Rice
dilettantesteph replied to Joe0123's topic in Super Sensitive People
I got a kind of wild rice that was grown traditionally and harvested by native Americans in canoes. You should look for those kinds. -
ARCHIVED Ocean Spray Cranberry Juice
dilettantesteph replied to Marilyn R's topic in Gluten-Free Recipes & Cooking Tips
I do make my own juice, and while it is easy, it is very time consuming. It's not for everyone.