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Latest Celiac Disease News & Research:
Everything posted by dilettantesteph
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ARCHIVED Whole Grains
dilettantesteph replied to missy'smom's topic in Gluten-Free Foods, Products, Shopping & Medications
Rinsing doesn't do it for me either. I wash with soap and sometimes even that doesn't work. Thanks for the heads up. I'll be more watchful. I'm going to try growing my own buckwheat next summer, but till then, I have to make due with what's available now. Have you found a rice that you can tolerate? With a name like RiceGuy, I thought maybe. -
ARCHIVED Gluten At The Pumpkin Patch
dilettantesteph replied to GFreeMO's topic in Super Sensitive People
He uses high tunnels so animals can't get in there as much. What are high tunnels? Open Original Shared Link -
ARCHIVED Whole Grains
dilettantesteph replied to missy'smom's topic in Gluten-Free Foods, Products, Shopping & Medications
That's not what they told me. Pocono Buckwheat is made by Birkett Mills. They contract with outside growers and they don't keep track of what else they might grow. They separate the wheat by size and shape differences. Open Original Shared Link -
ARCHIVED Gluten At The Pumpkin Patch
dilettantesteph replied to GFreeMO's topic in Super Sensitive People
A farmer told me that he used alfalfa straw between his rows of vegetables. What do you think he meant? -
ARCHIVED Whole Grains
dilettantesteph replied to missy'smom's topic in Gluten-Free Foods, Products, Shopping & Medications
I've been eating Birkett Mills (Wolff's) buckwheat without problems and I am very sensitive. I've sorted quite a bit and haven't found anything looking like a gluten grain in there yet. Twin Valley Mills is the best whole sorghum source I have found, but I have found what looked like wheat berries so you do need to sort. I found only one after sorting... -
ARCHIVED Gluten At The Pumpkin Patch
dilettantesteph replied to GFreeMO's topic in Super Sensitive People
Good question. Wheat straw, alfalfa straw, oat straw, what else do they use? Maybe a farmer can tell. -
ARCHIVED Brain Fog
dilettantesteph replied to Gluten Free Traveller's topic in Coping with Celiac Disease
I get brain fog as an indication of contamination. I've recently been doing a bunch of eliminations to get rid of mine. I eliminated stuff one thing at a time for a few days each to see if it went away. I finally figured it out. It was my tea. Glad I did. I need a clear head for my work. -
ARCHIVED Celiac And Then Lupus
dilettantesteph replied to fattycat's topic in Related Issues & Disorders
You could also consider super sensitivity. There isn't a test for it that a doctor can give you. You can read up on it in the super sensitive section. You could get an idea if that is your problem by eating only produce and (non poultry) meat, packaged at the meat distributor, for a week and see if you feel better. -
ARCHIVED Feel So Belittled
dilettantesteph replied to glutenfreemamax2's topic in Parents, Friends and Loved Ones of Celiacs
Don't let people like that make you doubt yourself and eat things that you shouldn't. I had that problem with my husband. The only way to convince him was to get better. I had to stick to my diet despite him. With the improvement in health he got on board. I guess you can't blame them if you have been sick a long time and trying this and that. It is... -
ARCHIVED Reaction To Kind Bars
dilettantesteph replied to SleepyBunny's topic in Coping with Celiac Disease
I used to love those Kind bars too. I'm oat sensitive and they got to me. -
ARCHIVED Ugh! Is Anything Safe?
dilettantesteph replied to cait's topic in Coping with Celiac Disease
I'm sorry that you are having so many problems. Maybe during a school vacation you will be able to eliminate the 'contamination from your students' variable from the equation and you will be able to figure out what is going on. Before that, I don't know what you can do except to eliminate absolutely all possibilities. There are so many of them if you are... -
ARCHIVED Good Days & Bad Days -- Is This Normal?
dilettantesteph replied to BabsV's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
At the 2 month point, it is likely too soon to get worried. It can take awhile to heal. I had the same experience except that some of the bad days were really bad. They weren't quite as bad as pre diagnosis, but pretty close. I came to realize that I was a super sensitive celiac and I had to be a lot more careful about my diet. There are things in... -
ARCHIVED Horrible Fatigue And Other Problems
dilettantesteph replied to Austin Guy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For me, horrible fatigue is a glutening symptom. I am a super sensitive celiac. You could also consider that possibility. To see if that is the cause, you go on a diet of produce and meat for a few days to a couple of weeks and see if you notice a difference. -
ARCHIVED Ecover Products
dilettantesteph replied to BRUMI1968's topic in Gluten-Free Foods, Products, Shopping & Medications
Ecover posts all their ingredients on their website. For example: Open Original Shared Link -
ARCHIVED Would You Take A Drug So You Can Eat Gluten?
dilettantesteph replied to GlutenDude's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It might be a nice way to avoid those accidental glutenings. I wonder if a drug created for the average celiac would work on a super sensitive celiac? -
ARCHIVED What Does Super Sensitive Mean?
dilettantesteph replied to Di2011's topic in Super Sensitive People
Sometimes it is called hyper sensitive to gluten. It means that you react to lower levels of gluten than the typical celiac. The Fasano study used to establish the safe level of 20 ppm for typical celiacs excluded someone from the study because that participant suffered a full relapse. That person was probably a super sensitive celiac. Super sensitives... -
ARCHIVED Why Did You Suspect You Were Super-Sensitive?
dilettantesteph replied to T.H.'s topic in Super Sensitive People
My levels were negative after one year. Despite that, I was still experiencing symptoms which went away when I removed more gluten from my diet. Positive numbers indicate that you are still reacting to gluten, but negative numbers don't necessarily indicate that you aren't reacting to gluten. There are plenty of cases where, upon diagnosis, celiacs have... -
ARCHIVED Anyone Ever Feel Like Giving Up?
dilettantesteph replied to Gfresh404's topic in Coping with Celiac Disease
Your symptoms, low energy, depression, negative tests for other things, etc. sound to me like they could be celiac symptoms. Have you looked into super sensitivity? To test for that you would try a produce and meat only diet for a week or so. Eat nothing that comes in a package,bottle or box, except the meat. Non chicken meat should be packaged at the... -
ARCHIVED Any Almonds Not Cc'ed W/ Cashews?
dilettantesteph replied to momof2peanutz's topic in Super Sensitive People
This is a small farm that just grows almonds. Open Original Shared Link -
ARCHIVED How Much Food Is Enough?
dilettantesteph replied to rain's topic in Related Issues & Disorders
That sounds like a big meal to me. You may be underestimating your caloric intake. You could try to measure things carefully and look up caloric content of foods and keep an accurate account. You may find that you are eating more calories than you think you are. Don't forget drinks. I don't know your age. As we age an especially if we exercise less... -
ARCHIVED Sick To Starving/can't Break The Cycle
dilettantesteph replied to DianeSeekingInfo's topic in Coping with Celiac Disease
It would be good to find some foods more dense in calories that you can eat. I was vegan for about 30 years before my celiac diagnosis. I am extremely sensitive and my diet is extremely limited. I did add back dairy and some meat, just to have enough to eat. You might consider that. For dairy, I can only manage pasture fed. Meat, I get packaged in the... -
ARCHIVED Gluten Is Still Sneaking In On Me
dilettantesteph replied to Roda's topic in Coping with Celiac Disease
Canola can be grown in rotation with wheat: Open Original Shared Link Open Original Shared Link Open Original Shared Link That might be responsible for enough cc to bother a super sensitive. -
ARCHIVED Fda Seeks Comments From Super-Sensitive Celiacs
dilettantesteph replied to U Gluten Free's topic in Super Sensitive People
Just to clarify, the levels talked about above are mainly ones considered safe for celiacs by the Fasano study. This is the super sensitive section. Don't want to freak out the newbies or the mods. LOL -
ARCHIVED Sharing - What Supplements/vitamins Work For You?
dilettantesteph replied to T.H.'s topic in Super Sensitive People
I had the same problems with vitamins. There are so many vitamins and supplements recommended here, it makes me nervous, but I haven't tried all of them to know that I react, but just about everything I tried, I did react to. They aren't well regulated and I think that it is difficult to get things really gluten-free when there a lot of ingredients, especially... -
ARCHIVED I Have Gone gluten-free W/my 15 Yr Old And I Feel Terrible!
dilettantesteph replied to maitrimama's topic in Parents, Friends and Loved Ones of Celiacs
You might want to consider what you are eating. Are you eating a lot of gluten free juck foods? It might just be the increase in junk foods. How about having omelets, stir fries with rice, fruit and yogurt, meat and veggies. If you are eating a healthy diet you should feel well.