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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    So true. If it's possible to grow yourself, that would be a good possibility. Can you give names of plants that have helped you?
  2. dilettantesteph
    Sometimes it is just better to feign illness and stay home. If you go you will get sick, so it's not really all that made up.
  3. dilettantesteph
    If you are having villi problems, you are probably reacting to some gluten contamination from somewhere.
  4. dilettantesteph
    I explain that "gluten free" actually means "gluten lite" and some of us can't eat it. That gets the message across.
  5. dilettantesteph
    I act like a crazy person, refusing to shake hands and hug if someone has been eating. I also jump up and leave if there is too much gluten around. Last event I went to was a wedding. I was sure I looked absolutely crazy. When I next communicated with the bride she apologized for not being more sensitive about the gluten crumbs, that she hadn't realized...
  6. dilettantesteph
    I had always been iron deficient and took iron supplements. After going gluten free my iron levels were high so I stopped the supplements. I think that avoiding gluten may be more important than taking supplements when it comes to getting our vitamin levels where they should be.
  7. dilettantesteph
    How about this article: Should Celiacs Eat Oats? Depends on the Oat https://www.celiac.com/articles/22470/1/Should-Celiacs-Eat-Oats-Depends-on-the-Oat/Page1.html
  8. dilettantesteph
    My son gets reflux two days after eating the problem item. It takes me a day to notice most symptoms. I think that it is different for everyone and for each symptom, and varies depending on how much cc you get. Isn't it fun how hard this is to figure out!
  9. dilettantesteph
    I can't even find any dried beans that are O.K. I have started to grow my own. You are probably less sensitive than I am. Try them.
  10. dilettantesteph
    Glad you are improving. If you aren't already, keep a food journal. Write down what you eat and how you feel. It makes it easier to figure things out. Keep track of brand names too.
  11. dilettantesteph
    Some of us, super sensitive celiacs, react to lower levels of gluten than the rest. There is a section on this forum about that. You could try a diet of meat and produce for a week or so to see if that helps.
  12. dilettantesteph

    ARCHIVED Family

    dilettantesteph replied to T.H.'s topic in Super Sensitive People

    It's interesting how they start off not believing it, and then they end up gluten free themselves. They find out that they had been very sick without realizing it. My dad had always had D problems, and so had his dad. When I got them, it seemed like some inherited thing, which it was. We just didn't know that it could go away. It's funny how you...
  13. dilettantesteph
    I sort my food. I have found wheat grains in millet and beans so they are not safe for a super sensitive. Many beans are processed together with wheat. I haven't been able to find a safe bean source which I can tolerate.
  14. dilettantesteph
    Super sensitive means that you react to small amounts of gluten cc and need to avoid processed foods and probably grains too due to shared harvesting and processing equipment. You can also be super sensitive to casein etc.
  15. dilettantesteph
    I am a super sensitive celiac. I had to go on a whole foods diet to eliminate all symptoms.
  16. dilettantesteph
    I didn't know how sick I was until I got better. It is amazing what we can think of as normal.
  17. dilettantesteph
    Thank you. Here's the link in case anyone is interested. Open Original Shared Link
  18. dilettantesteph
    If you post in that section we can give you a big list of recommendations. You can also PM me. I've written up recommendations for super sensitives that I can send you.
  19. dilettantesteph
    According to Dr. Peter Green of the Celiac Disease Center of Columbia University, if you have the antibodies, you are still eating gluten. This does not mean that you have refractory sprue, it means that you need to clean up your diet. Dr. Peter Green video: You need to look at the things that super sensitive celiacs have to do to not get sick...
  20. dilettantesteph
    Can you please give some references for this Purkinje cell information? I see now that you mentioned Science this month, but could you please post the actual reference. It makes it easier to find. Thank you.
  21. dilettantesteph
    If I were you, I would consider super sensitivity to gluten cc as a possibility. You can read more about it in that section.
  22. dilettantesteph
    I'm still working on it too - growing my own.
  23. dilettantesteph
    This is a video of a presentation by Heidi Schwarz a neurologist, who thinks that it is an autoimmune reaction, and not nutritional deficiencies.
  24. dilettantesteph
    I'm still looking for safe beans too. They could be the source of your problem, especially if your doctor thinks that you might be super sensitive. One thing that you could try is sorting them carefully. I have found wheat particles in beans before. Then wash carefully before eating. If that improves things, I think you found the source of your problems...
  25. dilettantesteph
    It looks like you know what you have to do. There are several of us who are on this diet. You aren't alone.
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