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Latest Celiac Disease News & Research:
Everything posted by dilettantesteph
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ARCHIVED Need Brands Of gluten-free Flours
dilettantesteph replied to thleensd's topic in Super Sensitive People
I would work on the grinding it myself if I were you. I sort, wash and then grind. I can understand the texture problems. I finally invested in a good grinder. I think that it is too hard to find clean starting materials, one source of cc and then too hard to make flour without adding more cc in a facility. There are shared facility issues, and cleaning... -
ARCHIVED Chronic Anal Leakage
dilettantesteph replied to cottonsocks's topic in Food Intolerance & Leaky Gut
It means I go all over the floor before I can even make it to the toilet. I get urinary problems too. I have wet my bed even as an adult. When I am strictly gluten free I have none of these issues. -
ARCHIVED Can Gluten Cause Skin Issues Besides Dh?
dilettantesteph replied to peeptoad's topic in Dermatitis Herpetiformis
This is an about.com article about skin conditions associated with celiac disease. Open Original Shared Link -
ARCHIVED Gluten Free Kid And Still Stomach Pain
dilettantesteph replied to GFmom144's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm sorry, at this point I am off all grains. None worked for me. There is one, Wolff's buckwheat groats, but that isn't a real grain. I am very sensitive. -
ARCHIVED Chronic Anal Leakage
dilettantesteph replied to cottonsocks's topic in Food Intolerance & Leaky Gut
Have you been tested for celiac disease? If giving up gluten is giving you a lot more energy, it is a good possibility. Once you go off gluten the tests don't work anymore. You should maybe go back on it quick and get tested. Once you have been off awhile it is really hard to go back on. I get anal leakage and much worse when I eat gluten. -
ARCHIVED For Those That Are Gluten Free Oat Intolerent
dilettantesteph replied to Roda's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for posting this. I wonder how many of us there are? -
ARCHIVED Processed Meat That's Produced In A Gluten Free Facility?
dilettantesteph replied to Joe0123's topic in Gluten-Free Foods, Products, Shopping & Medications
I am highly sensitive. I stopped eating processed meats. I buy meat packaged at the meat processing plant only. They do all their cutting up in a dedicated area. That works. -
ARCHIVED Middle School Cooking Class
dilettantesteph replied to kaiess's topic in Parents, Friends and Loved Ones of Celiacs
I depends on how sensitive he is. I know of celiacs who are able to bake with wheat flour for their families without any apparent issues. Then there is my son, who has problems if he gets near wheat. He was excused from the class with a doctor's note. He did an independent study. He cooked at home and brought samples in for the teacher. -
ARCHIVED Gluten Free Kid And Still Stomach Pain
dilettantesteph replied to GFmom144's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am also sensitive to oats, and I also have problems with companies that process glluten free oats on their dedicated gluten free equipment. It eliminates a lot of gluten free companies. At this point I have become so sensitive that just about any processed food is out, but I noticed problems with oat sharing facilities early on before I got crazy sensitive... -
ARCHIVED What Are You Canning/preserving?
dilettantesteph replied to love2travel's topic in Gluten-Free Recipes & Cooking Tips
I've been freezing and dehydrating all season. I haven't tried canning yet. With freezing you can do a small batch at a time. Canning seems like such a long involved process. Shadowicewolf, you swore off canning, is that why? Should I try it, or continue to freeze and dehydrate? I bought a new much bigger freezer this year and it is still basically... -
ARCHIVED Chips For Super Sensitive
dilettantesteph replied to GFreeMO's topic in Super Sensitive People
My daughter,a super sensitive, had problems with Kettle chips. The rest of us didn't try them. I got them because they had been recommended for super sensitives. I noticed that they make both gluten containing chips and gluten free chips. Does anyone know if they are made in separate facilities? -
I believe that I react to levels of gluten below 5 ppm. That is because I reacted to a very small amount of a product which, according to the company, had been tested at just above 5 ppm. It follows, that I would react to a larger amount of something that would test just under 5 ppm. This puts super sensitives into a difficult situation. We seem to...
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I think that some of the answers you are getting are from conventional celiacs and not super sensitive celiacs. Often one clicks on new content and then doesn't pay attention to the subsection of the forum. It is a good idea to mention again in the post that you are super sensitive. I don't know of a good rum for a super sensitive. I'd like to though...
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I've eaten a banana a day for most if not all of my life. I think that is an old wives tale about developing sensitivities to stuff we eat every day. Otherwise none of us would be able to drink water anymore. You should add stuff, but wait till you are feeling better and then add just one thing a week so that you can be sure that you don't react. You...
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ARCHIVED Days Like This I Feel Like Giving Up
dilettantesteph replied to rgarton's topic in Super Sensitive People
Back when I was able to tolerate "gluten free" cereals, I didn't have any problem with wax on veggies. You probably don't need to worry about it. There is a variety of sensitivities among super sensitives too. -
ARCHIVED Super Sensitive Please Help.
dilettantesteph replied to GFreeMO's topic in Super Sensitive People
Last I checked it was just harvester and not processing equipment. They clean the harvester for 2 days and then use the first large amount (I forgot how much) for the animals. Nonetheless, I have found both corn and wheat in it. -
ARCHIVED Not Sure Should Get Pregnant--Too Old?
dilettantesteph replied to glutout's topic in Related Issues & Disorders
I had my second child at age 38. He is now 14 and very healthy (except for celiac) and intelligent, mainly A's in school. He was almost 9 pounds at birth, though I gained less than 25 lbs. The pregnancy was uneventful and I had him with no medications. I was able to exercise throughout my pregnancy. I hadn't been diagnosed with celiac yet, but had... -
ARCHIVED Are These Products Really Gluten Free?
dilettantesteph replied to suziq0805's topic in Gluten-Free Foods, Products, Shopping & Medications
Do you ask the question for reassurance? In that case, read no further. Do you ask because he has symptoms? There are different levels of sensitivity. While the majority might handle those foods just fine, there are a minority of celiacs/gluten intolerants who react to foods like that. We are the super sensitive celiacs. You need to be watching out... -
ARCHIVED College Cafeteria Eating Is More Difficult Than We Thought
dilettantesteph replied to carecare's topic in Parents, Friends and Loved Ones of Celiacs
I suggest you find a doctor who will diagnose her based on response to diet. With recent news about gluten intolerance being a real condition this shouldn't be difficult. -
ARCHIVED 3 Years Gluten Free And Not Any Better
dilettantesteph replied to CBare88's topic in Coping with Celiac Disease
What have you been eating? Do you know that some celiacs get glutened by gluten free foods? Is your diet produce and meats? -
ARCHIVED Acid Reflux?
dilettantesteph replied to shadowicewolf's topic in Coping with Celiac Disease
Acid reflux was ds's main glutening symptom. We had to cut out almost all processed foods to get rid of it. -
ARCHIVED Newly Diagnoses/gluten Free/still Sick
dilettantesteph replied to Denise91860's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You might want to try cutting out grains and processed foods. It sounds like you might be a super sensitive celiac. Have you checked toiletries and medications? You can try adding things back in after you heal. -
ARCHIVED Gluten Free Kid And Still Stomach Pain
dilettantesteph replied to GFmom144's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Some celiacs are sensitive to lower levels of gluten than others. More sensitive ones can have problems living in a house with gluten, using gluten containing soaps and toiletries, or even eating processed foods. You may need to make some changes. Some become more sensitive to lower levels as time goes on. My son was diagnosed at age 10 and couldn... -
ARCHIVED It's Baaaaaccckkk!
dilettantesteph replied to pricklypear1971's topic in Food Intolerance & Leaky Gut
I hope you feel better soon. -
ARCHIVED Super Sensitive Please Help.
dilettantesteph replied to GFreeMO's topic in Super Sensitive People
Yes, there are others who are that sensitive. I react to rice chex too. I haven't even tried those other things. Last winter I found that I even had problems with store bought produce. I'm trying to grow more of my own. I've been freezing stuff like crazy to last over the winter. At least I have control over what I eat. It's harder to control exposure...