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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    My skinny son gained weight gluten free. It was evident within a couple of months. The doctor checked it on his growth chart and you could see how he had been going off the line and then he was back on it again. It's been 4 years now. We have gone through periods where he was getting some cc and started to fall off his line again. Then we figured it...
  2. dilettantesteph
    What did you fry them in? If you are super sensitive, you might want to consider your oil.
  3. dilettantesteph
    I think that I get different seeming symptoms from low level cc than I do from higher level cc. If I continue with that low level cc for longer, days or weeks, they symptoms develop into the high level cc ones. I am also intolerant to oats and I can't tell my oat intolerance from my wheat intolerance, from the barley or rye one. Of course I don't know...
  4. dilettantesteph
    I actually really enjoyed "Master Chef" this summer. They do a lot of scratch cooking, which is what I need to do as a super sensitive. We got some good pointers from them. Like sear the meat in the fry pan before cooking it in the oven. Yum. I just ignore any flour stuff. There really wasn't that much.
  5. dilettantesteph
    Yes, depression and anxiety and also a lack of interest in sex can be related to gluten problems. Things will get better soon.
  6. dilettantesteph
    When my son was first diagnosed the school wouldn't accept the diagnosis despite doctors letters and meetings. This was middle school and not college. They kept exposing him to gluten in the classroom by not letting him leave when passing it around. He was required to handle it and he is sensitive enough that it made him sick. They took him out of classes...
  7. dilettantesteph
    I use homemade yogurt. I found a whole milk source with nothing added. In addition the cows are pasture fed and not supplemented with gluten grains or oats. I use their yogurt for first culture, but make my own from my own four more times. How much more can that be stretched? The sources I read said three, but I've taken it to four so far. Maybe I'll...
  8. dilettantesteph
    I don't think that she was talking about gas when she suggested the charcoal liners. Some of us have pretty severe symptoms when we're glutened.
  9. dilettantesteph
    I'm not offended. I'm glad to be appreciated. I can't tolerate that brand, but you know that I am crazy sensitive. Maybe you'll be able to.
  10. dilettantesteph
    I have definitely noticed differences in reactions to different boxes of the same thing. I am so sensitive that it feels like I'm playing Russian Roulette every time I open a new box. Companies change processing facilities, lines, add new products, change suppliers etc. all the time, and they don't tell us first. How dare they! LOL
  11. dilettantesteph
    Yeah! Glad you figured it out. We have continuous ups and downs, but by trial and error we will get this thing! My life seems like one continuous elimination diet sometimes.
  12. dilettantesteph
    What a good idea for a thread! I get the idea that some people in this forum think that we are not super sensitive at all and that we really have other illnesses that are as yet undiagnosed. The fact that we are in very good health between glutenings, and that we are usually able to identify the source of our glutenings is good support for super sensitivity...
  13. dilettantesteph
    I have eyed "hay" with suspicion before. Sorry. Hope you feel better soon.
  14. dilettantesteph
    Does your wife eat gluten at home? You may be getting cc. Even if she doesn't eat it at home, you can get cc from kissing. You may need a gluten free house, I did. You may need to give up eating out. I did. Since you are at the meat and produce only stage, I would suspect that would be an issue for you. I couldn't get rid of all my symptoms until...
  15. dilettantesteph
    The study done by Fasano to determine safe gluten amounts looked at amount of gluten per day. Ppm amounts are concentrations. Concentration times amount eaten will give you amount of gluten consumed per day. It definitely will add up, even for someone who isn't super sensitive.
  16. dilettantesteph
    Watch out for the oat fiber in that supplement. Some celiacs are sensitive to oats!! I feel for you. I have felt like nothing is safe to eat too.
  17. dilettantesteph
    That buckwheat is one of the few processed things I can eat. I go through it and I've never found wheat in it yet. I have found what seemed to be lentils and sorghum, though. It's the only "grain" I am eating at present.
  18. dilettantesteph
    I kept reacting to things that others here didn't react to. People kept telling me that I had another illness or other sensitivities. Then I'd search through old posts and I'd find others who had the same issues. It was usually people with DH. They seem among the most sensitive. Or, maybe it was just one particular group that formed here at one time...
  19. dilettantesteph
    It was new. I talked to the vendor and they do that to show you how well it works. There is a little sample of the wonderfully fine wheat flour in there. They sent me a new one and used rice to demonstrate it. I'm guessing it was done in the same facility since it was still contaminated. It was possible to take it apart to clean.
  20. dilettantesteph
    Another possibility to consider. Some of us are sensitive to very low levels of gluten and need to stay away from processed foods and most grains (due to shared harvesting, etc. equipment).
  21. dilettantesteph
    You're welcome. It isn't the nicest thing to talk about. It took me awhile to even mention it to my doctors. Not that it did any good. They told me that it was consistent with IBS. I hope you get it figured out. No one should have to live like that.
  22. dilettantesteph
    In our household, it seemed that no matter how careful the gluten eaters were, were still got cc'ed. We are extremely sensitive however. Maybe it isn't a problem for you. Do you wash dishes in the dishwasher together? I know that I sometimes find bits of food left over on dishes in the dishwasher. I would think that if I can see some, that there might...
  23. dilettantesteph
    So true. I still keep finding out. I hope you feel better soon. As time goes on you do heal more quickly.
  24. dilettantesteph
    That gluten cross reactivity stuff seems to be unsubstantiated. I spent a lot of time checking references and none of them seemed to substantiate it. I have problems with a lot of coffee, but do fine with Wegmans organic, washed whole beans. Coffee is one of my treats.
  25. dilettantesteph
    I have a hand cranked Country Living Grain Mill. Caution: when it came it had a sample of wheat inside which they had used to test it. I sent it back and got another, which was still fairly contaminated. It took extensive cleaning. I have ground corn, millet, sorghum, buckwheat, amaranth, quinoa, garbanzo beans, lentils, rice, I can't remember them...
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