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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    Gluten contamination of gluten free grains have been found to be an issue in a study by Tricia Thompson. Why don't you try going grain free for a couple of weeks and see if that helps. I sort (and remove gluten grains) and wash whole grain before grinding and eating. I'm sensitive to very low levels of gluten.
  2. dilettantesteph
    Thanks. I've been washing pretty carefully with soap, but maybe I need to be even more thorough. Ultrasonic cleaner, here I come.
  3. dilettantesteph
    I have noticed a big range of tolerance levels of gluten even among those who call themselves super sensitives. Some think that they react to a crumb. While some think that they react to an invisible bit of flour dust in the air. Just because something doesn't make someone else sick doesn't mean that it won't make you sick. I have learned this the hard...
  4. dilettantesteph
    I've seen posts here about super sensitives reacting to laurabars and dates, and how flour can be used to pollinate dates.
  5. dilettantesteph
    I do much of those things too. It is well worth it. In my case, I haven't found a sugar which I can tolerate. Different brands bother me to different extents so I don't think that it is a sugar intolerance. I'll keep trying, and I'm also going to try growing my own next season.
  6. dilettantesteph

    ARCHIVED Does Anyone Feel Good

    dilettantesteph replied to ikayak's topic in Doctors

  7. dilettantesteph
    I plan to buy a big freezer and stock up next summer as well. I didn't realize this last summer how much of a problem it would be. I stocked up a bit, but not enough. I do fine with most farmer's market stuff. Message me and I can give you a link for citrus that you can get by mail order which has only bugs and dirt. No pesticides or coatings. Does...
  8. dilettantesteph
    I got sensitive to lower levels of gluten as time went on. I became unable to eat things like hot dogs and flour mixes. I also have problems with tomatoes from the store though I can eat them from my garden. I stick to a whole foods diet. I try different things only one per week so that I can tell if it bothers me. Best wishes.
  9. dilettantesteph

    ARCHIVED Does Anyone Feel Good

    dilettantesteph replied to ikayak's topic in Doctors

    It's been over three years. I feel great much of the time, but still bad sometimes. I stay away from processed foods., and a lot of other stuff too. I'm very sensitive. I started feeling much better right away and since then it has been a roller coaster of ups and downs while I have been figuring what I can eat, and what I can't. My life is series of...
  10. dilettantesteph
    It may not be that food which was previously uncontaminated is now contaminated. It may be that you have become sensitive to lower levels of contamination. I don't know the answer, but I know that it happened to me too. What I do with grains is this. I buy them whole. I sort them grain by grain and remove ones which don't belong. I have found lots...
  11. dilettantesteph
    I'm not sure that washing helps because I have never not washed, but I think so. It isn't always enough though. Peeling I know helps because we were having problems with unpeeled peaches last summer, and when we started peeling them the problems went away. Peeling doesn't always seem to be adequate either.
  12. dilettantesteph
    I found out that I reacted to gluten free oats by trying them at about 6 months gluten free. I had about half a cup and was sick for about two months. That's how I knew that it was the oats and not cc. At that point cc made me sick for about a week. When I looked into it I found that lots of gluten free companies carry oat products. It was helpful to...
  13. dilettantesteph
    The whole foods diet should be totally safe for super sensitives, but there are still problems. Early on I had problems with mushrooms and with investigation I found out that they are often grown on wheat straw. Wheat straw shouldn't contain gluten, but I guess there can be enough left over grain in there to cause problems for the highly sensitive....
  14. dilettantesteph
    You aren't alone there. It makes it so much harder to figure things out.
  15. dilettantesteph
    I'm glad to see a sub section for super sensitives! I found out by trial and error too. I kept reacting to things that others didn't react to. It was extremely frustrating to read about how safe and delicious something was and then react to it. I reacted to something that was tested by the company to below 5 ppm even. Then I knew I was super sensitive...
  16. dilettantesteph
    What on earth makes you think that chicory root is not gluten free? It is the root from the plant Cichorium intybus. It is not wheat, barley or rye or derived from them. Of course, during processing it could get contaminated with gluten as anything can, but it is naturally gluten free.
  17. dilettantesteph
    The warning is there for celiacs like me who are sensitive to extremely low levels of gluten. I am happy when companies are conscientious enough to put such labels on their packaging. I would not eat them. Not all celiacs are the same in how much trace gluten they can handle without noticing symptoms.
  18. dilettantesteph
    Sometimes we get more sensitive to gluten when we stop eating it. Sometimes we notice symptoms which we didn't notice before. I had joint pain before diagnosis which went away gluten free. It comes back fairly easily when I get trace gluten consumption. It is possible that there is still enough gluten in your diet to be causing joint pain.
  19. dilettantesteph
    Different celiacs notice symptoms at different levels of trace gluten contamination. Many become sensitive to lower levels as time goes on. Just because others eat something without experiencing symptoms doesn't mean that everyone can. If you react, don't eat it. Hope you recover quickly.
  20. dilettantesteph
    My memory improved greatly on the gluten free diet, but it took awhile. I think that memory problems fall under the "brain fog" category.
  21. dilettantesteph
    I don't react to soy and I did react to Van's waffles. They might have some low level gluten cc. Are they made in a mixed facility?
  22. dilettantesteph
    I agree with itchy based on my experience. DH seems to appear at lower levels of gluten contamination and can require a more strict diet. Then again, it is a great indicator of cc and can probably help prevent serious complications from developing. I don't know if that is worth all the itching though.
  23. dilettantesteph
    I have found largely the same thing. In my case I found others who have the same issues I do. We believe that we are sensitive to very low levels of gluten. Working together we have managed to find many more foods to eat than we could have working separately. Sometimes it is the source of the food that is important. For instance like you, I couldn't...
  24. dilettantesteph
    I have had problems with coated apples. I do fine with uncoated apples which I can get at the Farmer's Market.
  25. dilettantesteph
    I know that my son has trouble paying attention when he gets glutened. There are also many other possibilities which have nothing to do with celiac. Has he had a follow up blood test?
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