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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    You can test for intolerances of questionable ingredients by eating them in a form which is very unlikely to be contaminated. We were able to rule out food intolerances in this way. Some things I grew in my garden. Some I got at a Farmer's market from growers who I was able to question carefully about their growing practices. For soy you can get edaname...
  2. dilettantesteph
    I found that working out made unnoticeable symptoms evident. I got bloating as well as GERD. I had to clean up my diet a bit more. It did make me feel better, though.
  3. dilettantesteph
    It's something I wondered about too. My son gets what we think is DH, but it hasn't been tested. We have a diet of mainly unprocessed foods and sea salt and live in the goiter belt. A friend started taking iodine with good results so we decided to go for it. We must have been very deficient because at first it was like we were high on life. The iodine...
  4. dilettantesteph
    I was able to add dairy back. Yum.
  5. dilettantesteph
    It can take quite awhile to find all the gluten that you are still eating without realizing it. It took me about a year to really get rid of everything. I also got more sensitive to trace gluten as I went along so symptoms kept coming back until I got more careful with my diet. I am now down to very few processed foods. It might be a good idea to make...
  6. dilettantesteph
    Dr. Fasano gave a figure of around 5% of celiacs who react to gluten free foods. This was an oral communication to the head of my local support group. I don't have a source for it. I am one who does too.
  7. dilettantesteph
    I often react to gluten free foods. It helps to check if they are made in a gluten free facility or on gluten free lines. After many occasions of getting sick you figure out which companies work out better. There are also various certifying programs and it can help to check if the food is certified by one of the better ones. It takes a lot of trial and...
  8. dilettantesteph
    It isn't uncommon. It happened to me too, and keeps on happening. Whenever I think it won't go any further, it does. It can be quite a challenge. I do feel healthier than I have in over 30 years though.
  9. dilettantesteph
    I just listened to a talk by Dr. Peter Green of Columbia. He said that low carnitine levels can be associated with fatigue in celiac disease patients. Maybe you could talk to your doctor about testing for that. Open Original Shared Link
  10. dilettantesteph
    It seems like there may be other skin conditions associated with gluten consumption. Maybe that's what you have. Open Original Shared Link
  11. dilettantesteph
    Considering that Chopin is the only vodka which I can tolerate it would be expensive, but maybe extra yummy.
  12. dilettantesteph
    I don't eat any processed foods by the usual definition. I do eat some foods that processed somewhat, a certain olive oil, salt, sparkling water, honey and dairy, chicken and eggs from a certain farmer. The extra time I spend on food preparation is more than made up by the less time I spend with no energy sleeping or lying around feeling sick and also...
  13. dilettantesteph
    I've had the same problem. It seems hard to wash the stuff off!
  14. dilettantesteph
    Good point. PPM is a concentration so it depends on how much of it you eat. How many years did it take you to get to a completely safe diet?
  15. dilettantesteph
    Both my son and I unfortunately seem to react to gluten below 5 ppm. This is based on reported company testing of products.
  16. dilettantesteph
    No wonder there was a cancellation!
  17. dilettantesteph

    ARCHIVED Does Anyone Feel Good

    dilettantesteph replied to ikayak's topic in Doctors

    I'd forgotten when this was and just found it again. I googled away and couldn't find that particular study. I didn't phone the Mayo Info line though. Maybe that would work. I did find where someone else gave that quote, but that person didn't site the original reference.
  18. dilettantesteph
    I thought this section is for super sensitive celiacs. Among this sub group of celiacs, my observation is that reaction to handling gluten is very common. I don't know if it goes through the skin or is accidentally ingested somehow, but it has happened to me and to my son. We are both super sensitive celiacs.
  19. dilettantesteph
    My DH does the same thing. He eats it up and then I can't get more until the next market, or I have to order it online and wait and meanwhile I go without while he gets to eat whatever he wants. He can eat up a weeks worth in one sitting. He is about twice my size. If I try to get him to not eat it he thinks I don't love him. I have to hide things from...
  20. dilettantesteph
    I got really bad anxiety from glutening until I started taking iodine supplements. I eat very few processed foods and sea salt, and I'm from an area where the soil is deficient in iodine. I must have been very deficient. I noticed a big difference when I started supplementing. You could look into that possibility.
  21. dilettantesteph
    We tried for a year to work out a system which would work with a shared household. The celiacs in the family kept getting sick no matter how hard the others tried be careful. Even now, with our gluten free house with two eating gluten out of the house, they sometimes gluten us. We are very sensitive. I was going to suggest the dorm fridge and hot plate...
  22. dilettantesteph
    I had been dairy free for years before diagnosis because it made my symptoms so much worse. Now I can tolerate dairy again. I drink milk and eat cheese and yogurt. Though only from one source. If I get glutened, even a tiny little bit, my lactose intolerance comes back. I think that most gluten intolerants have the autoimmune disease even if it hasn...
  23. dilettantesteph
    Me too. Sorry. Hope you feel better soon.
  24. dilettantesteph
    Weird thing, I can eat potatoes I get from the farmer's market, but not ones from the store. Maybe it is the sprout inhibitor which bothers me.
  25. dilettantesteph
    I don't have very much in the way of other intolerances. I have discovered one to Kumquat skin though. Glutening leads to a big range of symptoms GI as well as neuro. With the Kumquat skin I just get the GI issues. It did confuse me for a little while though. I find that glutening from smaller amounts affects me differently than larger amounts of gluten...
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