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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    I haven't been lucky enough to be symptom free long enough to doubt it. I am just too sensitive. Things are getting better though. I'd just think back over all those gluten reactions that you had previously and stop doubting yourself.
  2. dilettantesteph
    I independently came up with the same idea for treating gluten contamination in gluten free grains. I came up with this post when I did a search. Before I have used the sort and wash technique, but I don't think that is working well enough. I'm adding the sourdough treatment now to see if that makes the difference. I had my first batch today. Is this...
  3. dilettantesteph
    With me, cognitive problems are caused by trace gluten consumption. You can try to keep a food diary and stick to a mainly whole foods diet.
  4. dilettantesteph
    I totally sympathize. I was a PhD level science researcher. During my PhD I published over a dozen articles in refereed publications. At post doc level my brain had already become quite poorly functional. At that point I took time off to have kids and my symptoms worsened. I didn't get diagnosed for another 13 years during which time things got worse...
  5. dilettantesteph
    I am extremely sensitive to low levels of gluten. I don't know what ingredient it is in normal hams to make your daughter (and me) sick, but I made my own ham this Thanksgiving and it didn't make us sick. It was amazingly easy to do. Just google it and you'll come up with lots of recipes.
  6. dilettantesteph
    If you read the study, they got it down to 8 ppm residual gluten, which is considered safe for most celiacs. I don't personally equate that with safe, because I am sure that I am sensitive to much lower levels than that.
  7. dilettantesteph
    It is theoretically possible, perhaps, that a little bit gets through and it only bothers a few of us. After all, it isn't the whole gluten molecule that bothers us, only a small fragment, was it a 5 amino acid subunit? I can't remember. Anyway, testosterone and estrogen creams are used so those large molecules do go through the skin, and those are fairly...
  8. dilettantesteph
    She may have been referring to something like this: Open Original Shared Link in which gluten is hydrolyzed with sourdough lactobacilli and fungal proteases to make it less harmful to celiacs.
  9. dilettantesteph
    I would suggest that you remove all processed foods temporarily. Go on a whole foods only diet until symptoms go away. Then add foods one at a time, one per week. That way you will be able to find out which foods you can eat, and which foods bother you. I am very sensitive and have had to cut out most processed foods. It sounds like you will be able...
  10. dilettantesteph
    I would say that my pre gluten free alcoholic signs were much worse than yours. Now I can drink gluten free beer. I don't even get the desire to binge like I used to. I would say that the consumption of gluten seemed to be the cause of my alcoholic behaviors.
  11. dilettantesteph
    I know that Lyme was suggested to me when I continued to have symptoms on the gluten free diet. Whenever I mentioned some food I reacted too which others did not, the Lyme suggestion came up again. Then I found out that some celiacs are more sensitive to low levels of gluten than others. That cleared it up for me. Lyme disease is carried by a tick which...
  12. dilettantesteph
    Even if a study shows that gluten doesn't go through the skin for the celiacs studied, that doesn't mean that it doesn't go through the skin for all celiacs. You should definitely trust you own reactions to make decisions on what to do with your own body, as you are doing. I was just wondering about the skin issue. Thank you for clearing that up for me...
  13. dilettantesteph
    I have also found that some things have very low contamination such that they seem fine at first, but they build over time. I only add one new thing per week, and when it takes longer than that to cause symptoms it is really hard to figure out what is causing the problem. I have experienced this issue several times. Having this disease makes us have to...
  14. dilettantesteph
    If it does contain gluten, can you be sure that it went through the skin? Could you have created an aerosol during the scrubbing process which you inhaled or got on your lips?
  15. dilettantesteph
    I am sensitive to oats just as badly as wheat. The Bob's Red Mill products including their oats are processed in the same gluten free facility, so all their gluten free stuff is processed in the same facility as oats and is off limits to me. Oats are touted as a good grain substitute for celiacs so a lot of gluten free providers use oats. That makes all...
  16. dilettantesteph
    I haven't tried that one, but I react to all sorts of cheeses. Fortunately not all. I'm very sensitive.
  17. dilettantesteph
    I get them too. What helps me is to keep my back really strong with exercise. Also to keep it well supported by strong stomach muscles, also exercise, and limber, stretching exercises. I get lazy and stop doing all that and then go back to the back problems when glutened.
  18. dilettantesteph
    I had a nickel allergy before I had my ears pierced. I also eat a lot of nuts without any issues. Go figure.
  19. dilettantesteph
    I'm having trouble finding a sugar that I can tolerate. I am very sensitive. I react more to some brands than others. I don't have trouble with fruit. Try a whole foods diet. Maybe it's the cc in the sugar containing products that is getting to you.
  20. dilettantesteph
    I would do a whole foods diet, see if you get better and then try adding foods back in.
  21. dilettantesteph
    I get a rash from nickel containing jewelry. I can wear only gold, and not even white gold, which contains nickel. I have a titanium watch. The gold ones I could afford kept breaking. I take hot showers, but I do heat up water for coffee, tea etc. and don't use hot water from the tap, but cold to start. I eat potatoes without problems, but I haven't...
  22. dilettantesteph
    What a blast from the past! It was interesting to re experience my evolution as a celiac. How useful this thread was to help me figure out my problems. It contained a lot of drama too. These days I am even more sensitive to cc than I was then. I still haven't found any other underlying issue, unfortunately. It would be great if I could get treatment...
  23. dilettantesteph
    I'm crazy sensitive.
  24. dilettantesteph
    I haven't tried Bertolli, but I did have problems with Filippo Berio. I'm sure it has something to do with how much you use. I was using a lot.
  25. dilettantesteph
    I am sure that you are following the diet to a T for someone who isn't sensitive to extremely low levels of gluten. The fact that you are still experiencing symptoms might indicate that you are one of those who is sensitive to those low levels. If you are like me, you should be able to notice an improvement within a couple of weeks on a whole foods diet...
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