Jump to content

dilettantesteph

Advanced Members
 View Profile  See their activity

  • Posts

    2,862

  • Joined

  • Last visited

  • Days Won

    30

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by dilettantesteph

  1. dilettantesteph
    Where did you get it done?
  2. dilettantesteph
    What happens to us is that I am usually as glutened as my son and we go crazy on each other. I don't recommend that though. LOL Try teaching him some techniques to help cope. It took me most of my life to get diagnosed. I had years of behavior problems and did learn to cope somewhat. There are things like counting to ten, going to your room etc. As...
  3. dilettantesteph
    I am a super sensitive celiac and I can drink Ouzo by Metaxa. I know it's not quite the same thing as Sambuca, but it is close. I haven't tried Sambuca, I have had problems with other distilled spirits.
  4. dilettantesteph
    I find it really interesting too, but not enough to shell out the $300, or really $1200 for our family of 4. I think it must be genetic because my son is even more sensitive than I am. My husband won't get tested. My daughter had a negative blood test. Lots of people seem to think it has to do with amount of exposure to gluten and it could be that too...
  5. dilettantesteph
    I also had bad joint pain pre diagnosis which went away after gluten free. My back used to go out regularly before diagnosis. I've had it so bad I couldn't walk without pain pills. Now it only happens when I get a long term glutening and get lazy about my stretches. What helped me a lot to keep it from going out even pre diagnosis was daily stretching...
  6. dilettantesteph
    I don't know if you are having some other problem like fructose malabsorption or lyme disease. I know that I get bloated from trace gluten consumption. I get so big that I can't wear my usual pants. Sometimes I look 5 months pregnant. My GI said that it was from intestinal inflammation. I am a super sensitive celiac. I need to carefully wash my fruit...
  7. dilettantesteph
    I skimmed the replies and I don't think that anyone mentioned this. Are you getting your daily requirement of iodine? I switched to sea salt gluten free and stopped eating processed foods so I was no longer getting iodized salt. Sea salt doesn't contain enough iodine on its own. I felt much better when I started taking iodine supplements.
  8. dilettantesteph
    It's probably worth talking to your physician about. I think that glutening can have that affect on me too. Sometimes I get so that I can't think or make any decisions.
  9. dilettantesteph
    He stopped throwing up 10 times a day. The bloody noses stopped. He stopped fighting with his sister all the time. The rash went away. He was more organized at school. He was happier. But, he kept getting glutened. It took a long time to figure out which foods he could eat. He is very sensitive and we found that we had to avoid "processed in...
  10. dilettantesteph
    In my case gluten caused a lot of bloating. When I went on the gluten free diet I was able to wear smaller sizes without losing any weight. My belly became a lot smaller. Things that were in my closet from long ago fit again. Also I could wear tighter things without it bothering me. Gluten can also cause urinary incontinence. With me, the longer I was...
  11. dilettantesteph
    I am very sensitive to trace gluten cc. I did have problems with my olive oil. It took me a long while to figure it out because I didn't suspect it in the least.
  12. dilettantesteph
    My gut issues did feel a lot better right away. Even the day after I stopped eating bread and Cheerios I felt much better. I didn't realize that my neuro issues had been caused by gluten until they went away months later. Hang in there. My husband seems to think that getting better means never getting glutened again. It's been almost 3 years now...
  13. dilettantesteph
    At times I have thought that I had an intolerance. Then when I tried another form of the food, like from my pesticide free garden, I found that I can eat it without issues. Same with nuts that I shell myself compared with shelled nuts. In my case, some of the intolerances that I thought I had were actually problems with gluten cc. I am one of those sensitive...
  14. dilettantesteph
    I have had problems with nuts, but I am very sensitive. The processed in a facility...statement is voluntary, I'm pretty sure. I buy nuts in the shell and that way I don't have any problems, though it is a bit time consuming to shell them.
  15. dilettantesteph
    Do you eat products containing naturally gluten free grains? Tricia Thompson recently did a study in which she tested naturally gluten free grains and found that many were contaminated with wheat. I buy my grains whole and have found gluten containing grains in them when I sorted through them. I wash the rest with soap before eating. That seems to clean...
  16. dilettantesteph
    I get my sorghum from Twin Valley Mills. They clean their harvesting equipment for two days before harvest. Nontheless it is shared and I found a wheat berry after sorting through over 30 pounds of sorghum, so I sort and wash. Quinoa I get from Ancient Harvest and also wash (with soap), I stopped eating buckwheat, but the best source seemed to be Burkett...
  17. dilettantesteph
    I also react to gluten free oats. It was like the gluten reaction, but I think that it was more severe. I had the same conversation with Bob's and did feel better when I stopped eating their products. I felt better when I switched to gluten free pantry. Now I process my own whole grains. I hope that it makes an improvement in your health.
  18. dilettantesteph
    Before being diagnosed with celiac, I had problems with candida and I was receiving treatment for it. It wouldn't go away. Then I got the celiac diagnosis. With the gluten free diet, all my candida problems went away (as well as all sorts of other problems).
  19. dilettantesteph
    I agree with that based on my experience.
  20. dilettantesteph
    I have had reactions to some of their products, before I learned about shared processing equipment. I think that it depends on how sensitive you are. I am very sensitive.
  21. dilettantesteph
    Nicely stated.
  22. dilettantesteph
    Some celiacs are more sensitive to low levels of gluten than others. My son and I are both very sensitive. We couldn't get better until our whole household went gluten free. The other members of our household were very careful, certainly more careful than young children (sorry young children) and we still kept getting sick. Many celiacs do fine with a...
  23. dilettantesteph
    I think I have had celiac disease as long as I can remember. I missed a lot of school growing up. I was diagnosed with IBS in my late teens due to bad stomach pain. I was having uncontrolled diarrhea by my late 20's. (i.e. going elsewhere than the toilet) Nevertheless, I had two normal pregnancies with healthy babies. My son was almost 9 pounds. I also...
  24. dilettantesteph
    I haven't read about it either. I just experienced it. I just googled iodine and depression and came up with a bunch of stuff, though. My son (age 13) has DH, and we were worried about supplementing him with iodine. Then again, if there is no gluten in his diet, the iodine shouldn't affect the DH right? So we tried it. He found that the iodine made...
  25. dilettantesteph
    Have you seen this? Naturally gluten free grains can be contaminated. Are you eating any processed grains? Like pasta? It could be contaminated too. I buy my grains whole, sort, wash, dry and grind myself. I am very sensitive to low levels of gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.