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LDJofDenver

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Everything posted by LDJofDenver

  1. Many of the Progresso soups are gluten-free, along with some Stagg's chili (says gluten free right on the label). You should buy (or have your parents buy for you!) a guten-free grocery shopping guide. It will make your life WAY easier at the store. They list mainstream products (Kraft, Heinz, Kroger, Hormel, etc.) by category (soups, chips, dressings...
  2. If you have a whole foods grocery or vitamin store that carries some groceries, Arrowhead Mills has Buckwheat Flakes that are gluten free, it's a good cereal. And Bakery On Main has some good granolas. I'll often pour a small bowl of Buckwheat flakes and sprinkle a little of the granola on top for texture and added flavor. Here's a link to an article...
  3. Keep in mind, also, that there are often false negatives-especially with children. If scientific diagnosis attempts prove non-conclusive, ultimately the diet itself may give you the answer.
  4. Here is a link to the University of Chicago Celiac Center: Open Original Shared Link It discusses the different tests used and why, etc. Maybe it will help. I'd go for the blood panels first, especially since they're typically covered under medical insurance. Then if you get what you feel is a false negative, you can always go to the genetic testing...
  5. Along with all the good advice above, I'd suggest purchasing a gluten-free grocery guide. This will make your life so much easier. They list mainstream products (Kraft, Heinz, Kroger, Hormel, etc.) by category (soups, chips, dressings, spaghetti sauce, candy, etc.) Gluten-Free Grocery Shopping Guides: Open Original Shared Link Open Original Shared...
  6. My adult son swears by activated charcoal, for when he gets glutened. He says it really makes a huge difference while getting through it. Of course, make sure it's the gluten free charcoal capsules, you can get them at whole foods grocers or vitamin stores, etc. I wouldn't know what dose for a child - perhaps see what dose your Dr. might recommend if...
  7. It could be lots of things. Could be something you are eating, like a food allergy or sensitivity. Prickly feeling, itchy, can also be the onset of shingles - celiacs have weakened immune systems and many of us have had shingles a few times! Also, many celiacs suffer neurological symptoms (including skin sensations) due to nerve damage from malabsorption...
  8. Me, too. It was just a huge relief to finally know what the heck was going on with me. At least I know what I have and what to do about it. I had many many symptoms. In additional to the "usual" intestinal woes, I had migraines, roving pins and needles (neuropathy), balance problems (gluten ataxia), DH, osteopenia. Happy to say the neuro stuff is all...
  9. I've been eating the regular gluten-free Rice Chex for quite a while and have no problems with it. However, I got all excited when they came out with some new ones (gluten-free) and bought the cinnamon one. I tell you, every time I would eat it I wouldn't feel very well. Took me a few times to pinpoint it to the "new" cereal. Once I quit eating it...
  10. Yikes! Thanks for posting this, I've got a few in my cabinet and they were purchased fairly recently. I'll check them out when I get home.
  11. I'd get a new GI doc if you pursue the endoscopy. Obviously this one hasn't stayed up information related to this disease. Any of the major US celiac centers websites all list: weight loss OR weight gain among the many symptoms. I was a good 25+ pounds overweight when diagnosed. It is a myth that all celiacs are wasting away and look anorexic (although...
  12. All kinds of mainstream products are gluten free. Log Cabin syrup is gluten-free, Cascadian Farms jams are gluten-free, but there are many more that are OK for us (celiacs!). You need to pick up one of those grocery shopping guides, it will be the best $25 you ever spent. List brands by category (chips, condiments, syrups, soups, sauces, etc.), very...
  13. ...eat sandwiches and the like as long as I didn't eat the bun... I just wanted to also mention that, believe it or not, lunch meat (deli cold cuts) can have gluten. My son learned this the hard way, assuming "well, it's meat, so it's safe." Not so. Next time you're at your grocery deli counter have them hand you the big ball of turkey from which...
  14. There's a restaurant called: seven 30 south it is at 730 S. University (in the Bonnie Brae, area, just a mile or so north of I-25 on University, on the east side of the street) here is a link, they have a gluten free menu: Open Original Shared Link Also a Pei Wei (asian grill) at the corner of Colorado Blvd & Buchtel (right across the parking...
  15. Just because the alcohol (whiskey, vodka, tequila, etc.) is gluten free doesn't mean that you can tolerate it. I think you'll find a lot of celiacs on this forum just don't tolerate it well, even after healing. I've been healing for a year and I don't tolerate it much. Very occasionally, small amount (one mixed drink, one gluten-free beer, one glass...
  16. France! Lucky you. Found some hopefully useful links for you: Open Original Shared Link Open Original Shared Link This one is gluten intolerant group of France, Open Original Shared Link, but it is in French (parlez vous Francais?) and this is link to celiac.com's Gluten free Dining Cards https://www.celiac.com/catalog/product_info...products...
  17. It can be a little overwhelming at first. We
  18. I'm sure it depends on the manufacturer, as well as the type(s) of products being produced on a line. Personallly, I used to just go for it and eat things that were labelled gluten free, even if they did have the warning "processed on equipment that also processes wheat, etc...." on it. However, I've been bitten a few times with some of those product...
  19. And, heck, if you don't bake just go buy two nice-sized (usually individually wrapped) gluten free cookies and put a nice slab of ice cream between them. Yum!
  20. A lot of celiac folks have had a much smoother healing time by sticking to basic food items: meat, chicken, fish, potatoes, vegetables and fruits. And avoiding gluten-free "substitute" products like flours, breads, pastas, etc. And a lot of celiacs eliminate dairy at first as well, since our damaged intestines can have a problem digesting dairy (until...
  21. Hi Chuck, I don't know where that is exactly, but here is a link of Celiac groups in PA (from the Celiac Sprue Association website). Hopefully you'll find something near enough to you. Open Original Shared Link
  22. "(gluten free spaghetti once and Bob's Red Mill gluten free pancakes once)" Could also have been what you put on the pancakes or on the spaghetti. But if you do have celiac disease and were consuming that much gluten in preparation for your tests, you no doubt did quite a bit of intestinal damage during that period. It could take months to begin recovering...
  23. I know it's not as good as partaking in all your old favorites while at the fair, but one thing that really helps me is that eat before I go. Then I'm not overwhelmed with the "wanting" when I smell the goodies, just busy having fun, doing rides, checking out the people and music, etc. And you may find a thing or two that is safe, you just have to...
  24. Brilliant! (what a simple solution!)
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