
rosetapper23
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by rosetapper23
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ARCHIVED Food For Flight/airports?
rosetapper23 replied to granolagal's topic in Traveling with Celiac Disease
I recently flew to Australia (14.5 hours), and I took those individual-sized containers of Jif peanut butter (I usually eat only organic PB, but I was desperate for protein!), boiled eggs, gluten-free crackers, sandwich bags containing olives and nuts, a package of salami, gluten-free Chex cereal, and See's chocolates (so I wouldn't feel so deprived). I... -
Oh, yeah--that's what mine looks like. However, you'll probably get varying responses, because some people describe their DH as looking quite different. Have you tried eliminating iodine yet? If you have but the rash continues to erupt, you might try changing the brand of dairy that you eat/drink, because some brands are high in iodine. That's what...
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ARCHIVED Kinda Don't Know What To Do
rosetapper23 replied to Gfresh404's topic in Coping with Celiac Disease
Okay, I've read your original post several times and the responses that you've received to date. The one thing that no one has addressed is that you're trying to find a girl in a world filled with gluten-eating people. Wouldn't it be wonderful if you could find a girl who also has celiac? Have you tried registering with Meetup.com to meet girls who also... -
ARCHIVED Lunchables Question
rosetapper23 replied to 1974girl's topic in Gluten-Free Foods, Products, Shopping & Medications
Have you ever looked into GoPicnic products? Here's a link to their gluten-free page. They're a bit pricey, but the meals tend to be good (I can imagine they would be great to take on a flight): Open Original Shared Link -
I'm so sorry to hear this. Are you assigned a doctor, and then you're unable to make a change where you live? Can you ask for a referral to an endocrinologist? If you've researched this possibility, then you also know how dangerous it can be to just let it go without medication. I believe in using natural means to treat my maladies before resorting to...
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ARCHIVED I'm Feeling Hopeless
rosetapper23 replied to Bubba's Mom's topic in Related Issues & Disorders
Regarding the doctors, FIRE the lot of 'em!! My gosh--so much incompetence, it makes me scream! First, I do NOT agree with the physician who says that you don't have celiac. If you've been following a gluten-free diet, then your bloodwork is, of course, going to come back negative. It sounds as though a lot is going on with you, and I don't know if it... -
Hi right back at you! The last few times I visited Redding, I ate dinner at Outback, but I didn't know they also have a Mary's Pizza Shack (we have several nearby) and a Red Robin. Do you have a PF Chang's yet? My trip was absolutely the greatest! Would you believe that on my first evening in Sydney, my daughter took me to a Brazilian BBQ place where...
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ARCHIVED Another Question
rosetapper23 replied to looking for info's topic in Coping with Celiac Disease
I, too, only order wine (unless gluten-free beer is available)...and wine is considered gluten free. I recently read that some vintners "clarify" their wine using wheat, but I spoke to some local vintners, and they told me that that would be extremely rare--at least, here in California. I don't bother ordering mixed drinks because I don't trust them. ... -
ARCHIVED Possible Affects
rosetapper23 replied to shoehorn's topic in Introduce Yourself / Share Stuff
Some of us get a pain just under our left ribcage, which I assume is the beginning of the small intestine where the lining can be damaged. I've always considered it to be an inflammatory response to eating gluten, since I get it within a short time after accidentally ingesting it. It usually goes away in a few weeks' time. As for recovery time, that varies... -
ARCHIVED I Am So Worried
rosetapper23 replied to kaity's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The period of time varies with each person, but I'm hoping that your son's youth will hurry the process along. For me, it took 18 months for the diarrhea to completely cease. It got better little by little, but the stool was still soft. However, after being prescribed Metagenics UltraClear Sustain Medical Food (which is a powdered product that can be added... -
ARCHIVED False Negative?
rosetapper23 replied to ChristineWas's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One of the leading experts on celiac, Dr. Alessio Fasano, has spoken on this very topic many times and has written several articles in which he has challenged whether endoscopies should be considered the gold standard for diagnosing celiac. The reasons for this is that the scope may not reach the damaged area, there may not be enough damaged area to get... -
I would suggest that you speak to your doctor right away about getting tested for Addison's Disease, an endocrine disorder. You've described some of the common symptoms, including hyperpigmentation. This can be a serious condition, so please seek medical advice very soon.
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ARCHIVED Bj's Brewhouse Louisville Ky
rosetapper23 replied to egallag's topic in Gluten-Free Restaurants
Yes, BJ's is my fav place to go for pizza--and it's nice to have a gluten-free beer, too. -
ARCHIVED Herpes Outbreaks Since Stopping Gluten
rosetapper23 replied to lulumonkey's topic in Dermatitis Herpetiformis
You're smart to take Lysine....and it's possible that it's not working well for you right now because you're eating a diet that is rich in Arginine. In order for the Lysine to stop the herpes virus from erupting, your body has to be low in Arginine. It is the balance of high Lysine and low Arginine that keeps herpes outbreaks at bay. You might do a word... -
My mother, uncle, son, and daughter have celiac (as I do), and my son, uncle, and I have DH, whereas my mom and daughter do not. This tells me that, while celiac and DH are hereditary, it doesn't necessarily mean that you'll suffer from BOTH maladies.
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ARCHIVED Please Help Chronic Severe Insomnia
rosetapper23 replied to MarEB's topic in Related Issues & Disorders
I strongly suspect nutritional deficiencies. I suppose your doctors have tested you for the most common ones (iron, D, and B12); however, alopecia and insomnia can both be caused by deficiencies in certain B vitamins (B2, B5, Biotin, and folic acid). Take a look at this website and see if certain vitamin/mineral deficiencies describe your condition: Open... -
ARCHIVED Symptoms Changing?
rosetapper23 replied to GlutenFreeAustinite's topic in Coping with Celiac Disease
Okay, I admit to being on the paleo/primal diet....and it has helped me a LOT. -
ARCHIVED Am I Being Glutened?
rosetapper23 replied to suziq0805's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, Lay's potato chips are gluten free--their website clearly states this (and I've never been glutened by them). However, when it comes to french fries and hash browns, I've read that sometimes such products are packaged with flour to keep them from sticking during the freezing process. I don't know if Orida does this, though. Is there any chance that... -
ARCHIVED 'glutening' Symptoms With No Explanation
rosetapper23 replied to LGC88's topic in Coping with Celiac Disease
I also suspect the soy. Speaking of soy, I recently had diarrhea for an entire week and couldn't figure out why, since I'd prepared all of my own food from natural sources. However, when I started getting worse rather than better, I examined every single ingredient....and it turned out to be the chopped garlic. Usually, I would use only fresh garlic, but... -
ARCHIVED Favorite Gluten Free Haircare Products?
rosetapper23 replied to abaker521's topic in Gluten-Free Foods, Products, Shopping & Medications
I use Dessert Essence Organics shampoos as well as EO shampoos from time to time. EO is made with essential oils and can be found at places like Whole Foods. -
ARCHIVED Symptoms Changing?
rosetapper23 replied to GlutenFreeAustinite's topic in Coping with Celiac Disease
Geez...your symptoms sound very much like mine when I get glutened--I think you may very well celiac. With regard to the soy, I also am intolerant of it. I'm feeling lousy right now because I felt sick after eating a tasty chicken dish I've made dozens of times in the past. I kept going over the ingredients in my mind and wondering what could have made... -
ARCHIVED Additional Food Allergy, Or Something Else?
rosetapper23 replied to SafetyDancePants's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
After my posting, I read the following on another thread: It's been a while since I've posted, but thought I would add my experience as well. I was dizzy for about a year. It started when I rolled over in bed onto my right side. This was called BPPV. Everything was spinning and was horrible. After that episode I had both vertigo and dizziness for about... -
ARCHIVED Glutenfree In Punta Cana Dominican Republic
rosetapper23 replied to red island's topic in Traveling with Celiac Disease
Can you contact the resort and restaurants ahead of time? Oftentimes, high-tourist-traffic vacation spots are ahead of the curve regarding catering to gluten-free guests. Definitely try to call ahead.... -
ARCHIVED Additional Food Allergy, Or Something Else?
rosetapper23 replied to SafetyDancePants's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The symptoms you describe can be caused by many things. Regarding the nausea, it may very well be that you need to avoid soy, dairy, nightshades, and oats for a while and then add them back in after three months. When your immune system is healing and then reacts to gluten contamination, it can then become confused and start identifying other foods as containing...