Jump to content

rosetapper23

Advanced Members
 View Profile  See their activity

  • Posts

    1,270

  • Joined

  • Last visited

  • Days Won

    5

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    I would venture to guess that you're probably deficient in certain nutrients (e.g., zinc, B vitamins, and/or silicon), and that's what is making your scalp itch and your hair to fall out. For me, those symptoms were relieved by taking zinc. If you decide to take zinc, it should be chelated zinc, and you'll need to take copper with it. Perhaps your doctor...
  2. rosetapper23
    I can't speak to the folic acid, but as for the Vitamin D....well, my mother had undiagnosed celiac disease when she gave birth to me, and I was born with ricketts. Not a good way to start out life....so perhaps the Vitamin D recommendation might be good to follow. Just speaking from experience...
  3. rosetapper23
    Thank you so much for your posting! Newbies need to read about these types of successful ventures to learn that going gluten free can be easier than imagined. I think Thanksgiving is an especially easy holiday to deal with, as long as the meal is cooked by a knowledgeable person, but I can imagine newbies feeling very challenged. I'm very lucky in that...
  4. rosetapper23
    Welcome to the Forum! It sounds as though you've arrived in the right place...and, hopefully, there are folks here who can help you. You'll discover that we each have a point of view and different experiences with celiac and gluten sensitivity. Personally, once I gave up gluten, the digestive complaints receded immediately (except that I still had D to...
  5. rosetapper23
    I agree with the above poster that you'll need xanthan gum. Otherwise, your cookies will fall apart and not be at all chewy. Whenever I make cookies, I use a gluten-free flour mix (usually from Bob Red Mills) and add 2-3 teaspoons of xanthan gum. I've never had to use an "official" gluten-free cookie recipe to make cookies....so it's really easy to make...
  6. rosetapper23
    Thanks, IrishHeart--the stories warmed my heart....
  7. rosetapper23
    Because you have positive bloodwork and symptoms of celiac, you probably DO have celiac--regardless of whether or not the biopsy is negative. Your gastro should have taken between 6-12 biopsies, not several. That's a tip-off that he is not well versed with diagnosing celiac disease. Biopsies are notorious for resulting in false-negatives either because...
  8. rosetapper23
    Are you aware that there is probably soy in your mayo? Food manufacturers began adding it to mayo a few years ago--and, quite frankly, it causes me terrible digestive distress. One brand, Smart Balance, is the only mayo I can tolerate...but, to be honest, I've pretty much given up mayo. There's soy in canned tuna now, too, in case you'd like to know. ...
  9. rosetapper23
    OMG, IrishHeart! Please share your story (even if it's on another thread)! I saved my Bella as a kitten from a shelter just a month before I was diagnosed with breast cancer. She started to act "weird" between the time I had my biopsy in November and the surgery in January. During that time, my cancer had become invasive....and, apparently, she detected...
  10. rosetapper23
    Yes. IrishHeart, I have a Bella, too! And she's a special kitty: She can detect when my breast cancer returns. She's been right twice in the past year...and my oncologist refers to her daily sniffings of me as "cat scans." Thank goodness, she's only six years old--I want her to live a nice, long life...and to help me live one, too.
  11. rosetapper23
    In my family, we use some of the giblets for the gravy....and give the rest to Bella, Hunter, and Pogo (our extended kitty family).
  12. rosetapper23
    LOL! Your experience with your mom is similar to the one I had with my own mother. When my son and I were diagnosed with celiac, I happily called her up to inform her that I finally had figured out what was causing ALL of us to be ill (yes, I had suggested it to the doctor). You see, my mother had had celiac symptoms her whole life, and they'd gotten so...
  13. rosetapper23
    I agree with Skylark! Your low levels of both ferritin and B-12 indicate malabsorption problems, and these levels need to be corrected IMMEDIATELY! The damage from low B-12 can be dramatic, and your heart can be affected, too. Do you feel breathless as though you're gulping for air (either at night or during the day)? Does your heart pound occasionally...
  14. rosetapper23
    This is an excellent topic to raise--many of us continue to seek answers, especially the medical community is still pretty much in the dark about celiac and gluten sensitivity. Your post answered a burning question I've had for about four years. I had chemo for breast cancer in 2007, and prior to starting my treatments, I'd had to receive iron infusions...
  15. rosetapper23
    Two possibilities: thyroid problem or B-12 deficiency. I have both problems, and when either gets out of hand, I end up with hot flashes and my heart pounds. These can both easily be tested for and are common in people with celiac, so perhaps your doctor would be willing to do them. Or....you could buy some sublingual Vitamin B-12 in the meantime and...
  16. rosetapper23
    I've been plagued with DH, hives, and dermatographia. The DH has been under control for the past eight years because I followed a strict gluten-free, iodine-free diet. However, when my thyroid failed four years ago and I started taking thyroid meds (which always contain iodine), I ended up with hives across my back and on my butt. Nothing helps get rid...
  17. rosetapper23
    Many celiacs canNOT eat soy...and, besides, soy is not good for humans to eat. I could provide many citations here, but I don't want to type pages and pages of information on this topic. What you're describing, though, is possibly cross-reactivity. This happens when your body begins to identify other foods as containing gluten when, in fact, they don't...
  18. rosetapper23
    I recently read somewhere on this forum how the nerves to the bladder can be affected by gluten in a form of neuropathy so that a person with celiac is unable to "feel" the urge to urinate and is unable to control the urge. You might do a keyword search on this.
  19. rosetapper23
    Yes, it's possible that your villi are so blunted, a few weeks on a gluten-free diet won't matter. Quite frankly, though, I have very little faith in endoscopies anyway. Articles have been written by experts stating that the experience of both the surgeon and the pathologist can affect the results, and the damaged section may be beyond the reach of the...
  20. rosetapper23
    I don't know whether I have any more advice for you, but your story took me back to when my son was so ill from celiac at age 15 that he couldn't go to school. I understand your heartache and need to know how to make him feel better. Yes, it's impossible for him to attend school while he is vomiting and having D 24/7--that was also my son's problem. Finally...
  21. rosetapper23
    At first, you may be experiencing what's called cross-reactivity, which is your body's reaction to gluten-free foods as though they contain gluten. Your body's immune system may be on high alert because of its sensitivity to gluten, and it has identified other foods that are structurally similar as containing gluten when they don't. If this is the case...
  22. rosetapper23
    I'm concerned about the reflux issue. Yes, it's common with celiac, but there may be other things in play here. I would STRONGLY recommend that you (and your son) read, "Primal Body, Primal Mind," which goes to the heart of how our bodies process foods. It is the most important body of work that I have ever read (and believe me, I've read a LOT about nutrition...
  23. rosetapper23
    Oh, thanks for explaining about the egg yolks. I hadn't realized that they contained much iodine. They've never bothered me.... Go glad to hear that you feel better without the soy, though--that stuff really isn't good for anyone.
  24. rosetapper23
    As the poster above indicated, a colonoscopy will show NOTHING related to celiac. Please ask them to do an endoscopy instead of, or in addition to, the colonoscopy. Regardless of the results, though, you should definitely go gluten free for life. I'm so glad that eating gluten free helps you!
  25. rosetapper23
    I thought that all of the Van's gluten-free waffles contained soy flour--am I wrong? I got really sick from eating them the first time and then read the ingredient list. I was sickened by the fact that a gluten-free waffle would contain soy flour--it just didn't make sense. For breakfast, I either make a smoothie that contains all of my supplements....
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.