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Latest Celiac Disease News & Research:
Everything posted by haleym
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ARCHIVED Celiac Blood Panel Questions
haleym replied to haleym's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
thanks- read the Chicago center and they say 1/2 piece of bread or cracker a day for 12 weeks before test. Will look at the other centers then decide. -
ARCHIVED New Here With Test Results
haleym replied to lizcon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have Hashimoto's and will be tested for celiac soon... Hope you get some answers! -
ARCHIVED Celiac Blood Panel Questions
haleym posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi everyone! It's been a while since I've posted... I have symptoms of gluten intolerance and my doctor wants me to have the celiac panel done to check and see if I have celiac disease, or a non celiac gluten sensitivity. I ate gluten last Wednesday in the form of a glorious baguette and paid dearly for it all weekend. It was a re introduction of gluten... -
Just curious to see what you all have for a reaction time on average if you accidentaly eat gluten. I usually feel it gradually build up from within a couple hours with the worst coming the day or two after. What about you all?
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Their graham cracker mix is really, really good.... prepare to eat the dough up before even baking it. I love it... just be careful re: cross contamination (see above posts!)
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ARCHIVED gluten-free In Iceland, Finland And Estonia?
haleym replied to Coolclimates's topic in Traveling with Celiac Disease
While in Finland and maybe Estonia, look for products from Semper and Finax. Gluten free is ''GLUTEENITON'' in Finnish, and since a lot of things are writting in Swedish also in Finland, GLUTENFRI, GLUTENFRITT and GLUTENFRIA is gluten free in Swedish. Finland, like Sweden, is total gluten free heaven. I lived in Sweden for a while and got to experience... -
Mostly irritated/hot feeling... ice gives relief. Hmmm... have not gone nuts on the nightshades but I will check that out. Thanks!
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Hello everyone. Today I woke up and noticed that my thoracic spine/neck feel inflamed and it is kinda freaking me out. That's never really happened to me before and I am wondering if any of you have ever experienced this kind of thing? I've heard that certain foods have inflammatory properties and should be avoided by people who have inflammation issues...
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Yes, now I seem to get more of a total body reaction- tired, stabbing-like stomach pain, crabby, thirsty and constipation. And it starts as long as 2 days from the time I accidentaly eat gluten. I used to only get really bad bloating and pains before I stopped eating gluten. Those are still there, but with added symptoms now. Glad Im not the only one...
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ARCHIVED How To Bring gluten-free Diet Up To Md
haleym posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Guys! Thanks for reading this. Some short background before I ask your opinion and advice. A year ago I was suspected of having Celiac, and they ran a blood test and said everything looked OK and did not show evidence of celiac. I was still having really bad digestion issues so my ARNP told me to try the diet, which I did very sloppily and reported... -
I am going on 9 months gluten-free and would not go back to eating gluten again. I lost persistent stomach pain and bloating, and some other embarassing GI stuff. My acne has started to get better, thank GOD!, and I have saved money because I have been eating home-made lunches for the last months. Ive accidentaly eaten gluten once, and it has been a reminder...
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ARCHIVED Big Time Glutening & No Reaction!
haleym replied to GFLindsey's topic in Coping with Celiac Disease
Interesting, and great topic! I ate some questionable pasta salad after 8 months of strict gluten-free-ness. I had no immediate reaction but the next day I had some cramping and feel that typical scratchiness-sand paper in gut type feeling. I guess that each person reacts slightly different, but that doesnt mean that we can cheat on our diets if it only... -
Having been in the same boat, and having had a blood test come out neg. and then reacting very well to the gluten-free diet, I would say that sometimes we know our bodies well enough to know what we should and shouldnt be eating. I would imagine it would be empowering to have a dx because then you have the ''on paper'' factor on your side.
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my daily diet (I have very little variety in my diet, I know... I use Kinnikinnick brown sandwich bread- nuke it for 30 sec to make it soft. coffee yoghurt and open sandwiches with pickles, mustard and pastrami or eggs, corn tortilla/polenta, salsa and refried beans last nights leftovers coffee apple or gluten-free granola bar possibly...
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ARCHIVED Is Low Blood Pressure/being Extremely Cold
haleym replied to SLB5757's topic in Coping with Celiac Disease
I have hypothyroid, very low bp and ALWAYS cold hands and feet! Im on meds for the thyroid and I am still cold, but Im not so dang tired as I was before I was dx'd with thyroid issues. Ha ha people always say it's because Im thin, but that's not true! Ive talked with people of all builds who have cold hands and feet. But its especially troublesome... -
ARCHIVED Taking Food On Plane... Suggestions?
haleym posted a topic in Traveling with Celiac Disease
Hello! Im traveling Icelandair in a few weeks and since I chose to have the rock bottom cheap tickets, they dont come with a meal like they usually do when flying to Europe. Has anyone got any suggestions for items to take on board for dinner/breakfast. Im worried about the liquid issue, because Id would like to bring some of those Allergaroo spaghetti... -
ARCHIVED Whole Wheat / Whole Grains
haleym replied to Canadian Girl's topic in Coping with Celiac Disease
Well, theres whole grain teff, corn, rice, and other gluten free grains. Not all grains have gluten- for example, buckwheat, quinoa, corn, teff, rice, millet and others are gluten free! Yes, buckwheat has a name that may put us off but it has no gluten... I think buckwheat is actually a seed! Its confusing at first but keep researching things and the fog... -
ARCHIVED Benefits Of Living Gluten-Free
haleym replied to Glutin-Free Man's topic in Coping with Celiac Disease
Well, Id say that I get a lot of satisfaction from making all of my food from scratch at home, especially bread. There is a lot to be said for bringing a sandwich to work and eating it and remembering that it is home made, and high quality, without additives, and perfectly tailored to what your body needs. Its not something I would be saying had I not found... -
ARCHIVED Different Symptoms, Different Form Of Gluten?
haleym posted a topic in Coping with Celiac Disease
Hi there! I have experienced a couple of glutenings since first starting, and I am wondering if the following is anything any of you have had also. Ive noticed that the ''form'' of gluten I get seems to affect the symptoms I have. I had soy sauce in some thai food last week and I think it caused me to have a horrible headache for days. Other times I... -
Yeah, I am with you on the lining things with parchment and tin foil! You dont want cross contamination. And good for you for wanting to introduce people to gluten-free food. My family used to be afraid of it but now my mom and sister and friends think ''my'' food tastes better than a lot of what they have! LOL! OR perhaps you could preorder some of...
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Hello all! Im going to Iceland for the first time in April and will be staying a couple of days in Reykjavik before heading on to Sweden. Have any of you gluten-free-ers ever been to Reykjavik? Anyone know what to look for in the grocery stores as far as gluten free. I am thinking they will have a lot of stuff similar to the Scandinavian countries....
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OMG I just had a major realization about how serious this whole gluten thing is. I ate some soup the other day and after seeing that it was gluten-free (ingredients in the list were gluten-free and it was at a health food store, so they are aware of gluten issues), I start eating it and taste something mildly crunchy-chewy that had a familiar taste of wheat...
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ARCHIVED Other Food Intolerances Went Away After Being gluten-free?
haleym replied to Jennifer2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I remember that when my gluten problems were coming to a head I could not even have yoghurt without some repercussion. Now I can have straight milk in smaller quantities a couple times a week without too much issues. I just think I am a slow lactase producer and have to pace myself with the dairy now. -
ARCHIVED Random Bouts Of Dizziness/loss Of Balance
haleym replied to UnhappyCoeliac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My sister and I get that also, and my sister says that it can be related to hypoglycemia, so you may want to watch that. I am a massage therapist, and I got a horrid dizzy spell in the middle of working with one of my patients... it's a good thing I was sitting on my stool because I really could have fallen on my patient, the room was spinning so much! Good...