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OptimisticMom42

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by OptimisticMom42

  1. I have the short fifth finger but didn't find anything when I googled so do you have a link to share?
  2. Hello Richard, I always like reading your posts because you are very direct and informative. On this issue though I would like to add that IMO celiacs should not handle gluten containing flours. Just breathing the dust is enough to make many of us very ill. And the chances of cross contamination are just scary. Thanks RA
  3. Hmmm so not everybody has a short fifth finger?
  4. This was covered by a couple posters last week. One of them fantastk? said her daughter's results were like your daughter's and her doctor recommended a gluten free diet. Not much help but it's all I've got... RA
  5. Hi JasonD2, If you actually send it you are braver than I am. I've thought about sending at least an email out to my relatives but....... most of them are so stuck up ......... my uncle told my mom that she DID NOT have diabetes. None of us are allowed to be ill, we are just lazy, crazy, welfare cases, ect. regardless of the fact that we all went to college...
  6. My dr. didn't run any of the recognised tests. After being told I was allergic to wheat and barley, I removed them from my diet. I have never liked rye so it wasn't an issue but oatmeal was. So I went back to the dr. and described my reaction to oats. He diagnosed celiacs then. He never even suggested that I have testing done. If gluten makes you sick...
  7. You used the term wheat gluten twice. You'll have to do some reading. It's wheat, rye, oats, barley and any of the crazy names they go by like natural flavoring. It would be best if for awhile you only ate freshly cooked unseasoned meats (you have to replace all your seasonings), fresh veggies and fresh fruits. Once you are feeling better you can add more...
  8. Just wanted to add that for us soy and dairy free celiacs the Helman's Canola Mayo is pretty OK.
  9. Hey JasonD2, I've been glutened a lot. The smallest amounts will get me. I react to Bob's Red Mill gluten free oats, dog food dust, the jelly that got doubled dipped by a bread eater, tomatoes carried in a used plastic grocery bag......... it's an on going learning experience. I agree with you that the occasional glutening is probably just going to be...
  10. Thought you would all find this interesting. On NPR tonight I caught a short story about a writer for Wired, Evan Ratliff. He intentionally disappeared and offered $5000.00 to the first person to find him. He was found in a gluten free pizza place in New Orleans. Open Original Shared Link
  11. Anyone have any thoughts? I want to make sure we have the proper screening done this time. Would elevated gliadin antibodies without elevated tTG be enough evidence to go gluten free? Copied from a post by Frantastk Your results sound very similar to my daughter's results. She had a negative ttg blood test, but positive antigliadin IGA. She says...
  12. Hello Fluffy Assassin, You can buy test strips to find out if you are in ketosis. The current listing on amazon offers ...... 4 boxes used or new for $22.05 Go for the new ones LOL RA
  13. Were you already gluten free previous to this diagnosis of IC? Could the IC be from sneaky gluten? We have a family member who was diagnosed with IC and after reading the post written by Ravenwoodglass on the subject she went gluten free and all the IC stuff went away. She has tested it twice (chicken McNuggets and pizza) and yep it was just the gluten...
  14. My first go-round with celiacs, I dropped to under 100lbs and a size 3 was to big, I'm 5'6". I was going through a divorce and working at a job I hated. The dr's decided I was depressed. I set some ground rules for the ex, changed jobs and got better for almost 10 yrs. This time round, I suddenly became dairy and soy allergic when my eldest child was...
  15. I have a son who I suspect is just as celiac'ed as the rest of the family. He's 17yrs old now and has always had hypoglycemia. We recently tried him on L-glutamine. It comes in grape chewables. It's suppose to help stabilize sugar, build muscle and prevent the loss of what muscle you already have. He like it and commented that it seemed to help him work longer...
  16. Celiacs does get worse......if you keep getting contaminated.....that's why I can't digest dairy.
  17. Sorry, mine has citric acid, I use Nature's Bounty.
  18. You have to give yourself time to heal. I'm 6 months or so into this and still have problems digesting grains. Some days I feel great, then I eat corn or some gluten free snack and we are back to feeling like I've got a rock in front pocket of my hoodie. But no itching or other glutened problems. Oh, have you started a probiotic? Everytime you have "d...
  19. I think most of us had a good case of hind sight visible gluten sensitivity. I had migraines as a child. The dentist said I was brushing the enamel right off of my teeth! That's one kind of funny! I'd like to go back in time and yell, "What kid brushes to much? Maybe I never had any enamel!"
  20. Will you do a gluten challenge regardless of the results of the testing?
  21. I'm finding it very interesting that regardless of the laws in place we are not able to trust the labels. We have to rely on common sense and each other.
  22. Hi Roda, I don't know anything about the tests but I did wonder what your reason was for retesting? Why just your oldest and not all your children? This whole thing has made me so paranoid I want everyone I know to be gluten free just incase..... but my kids think I'm going a little bit over board. RA
  23. Wings are pricey here also. You could use bite size peices of chicken breast pan fried in olive oil and spices. What kind of sauces did she suggest? I'm thinking bbq, salsa, ranch, honey mustard?
  24. Hello, things that came to mind while reading your post....... Many of us have a hard time digesting the gluten free snacks. A lot of us intially got better only to relapse because of other food intolerances. I noticed her only protein was tuna. Tuna, even the packed in water ones contain soy oil. And many of the gluten free snacks do also. If you...
  25. It very easliy could be. You should know that the blood tests and scopes are rather unreliable. A negative test result does not mean that your child does not have celiacs. It means that evidence of celiacs wasn't found. Positive response to a gluten free diet IMHO is the only way to know for sure. The diet can be very easy to follow if you stick to the...
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