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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    I was the healthiest sick person many doctors in many disciplines met for nearly three decades....the first symptoms I approached a doctor with at 18 were the same ones I had at diagnosis - just to a far worse degree. since all the tests they chose to run were normal it must have all been in my head --- right? wrong --- it was all in my gut -...
  2. GottaSki
    I too had elevated liver enzymes at diagnosis - they improved at each draw after removing gluten - 3mo, 6mo and at a year mine were perfect and have stayed there for nearly three years. Celiac is taxing on many systems - the digestive organs all have to work much harder. Elevated liver enzmes is quite common for us.
  3. GottaSki
    Exactly! Time - never thought it would take so much time to heal - luckily most folks heal more quickly than I. Hope you are feeling better - drink lots of water and do keep a log - sometimes you will find a pattern - sometimes you'll find hidden gluten and other times it is just a one off. Hang in there - it does get better
  4. GottaSki
    If gluten is making you ill and you cannot tolerate consuming for testing -- I still think the Celiac panel has value -- better now than when you have been gluten-free for longer. Many folks question the need to remove gluten as time passes - this is why I think it important to get tested if at all possible. You may be negative, may be possitive, but...
  5. GottaSki
    Both worked -- Thanks K!
  6. GottaSki
    I get this on laptop and Full Version on Cell/Kindle - none of the work-arounds are working for me this AM. Mobile version is working
  7. GottaSki
    In my opinion - testing is always worth while - of course it is most accurate if consuming gluten and that should happen if at all possible. Again IMO get all the blood data you can at every draw with young children especially - all nutrients and full celiac panel along with CBC & CMP - for us it is all about distraction - the first stick is the...
  8. GottaSki
    I have used F5 a few times myself during this flip. Many others may not have needed it with the last. Long way of saying - F5 can help.
  9. GottaSki
    I have not had that problem on laptop (both chrome & firefox) nor mobile. Anyone else?
  10. GottaSki
    I'm interested and thankful you shared - rising from the rubble - you have experience both personally and now your city. The best is yet to come for you both!
  11. GottaSki
    Very nice that you found a doctor that looked at the puzzle and suggested Celiac Disease - this warms my heart. I agree with Nicole - get all the blood tests before removing gluten - this data may become very valuable to you.
  12. GottaSki
    IMO it is a very complex equation. Some factors include but are not limited to: Length of time undiagnosed/misdiagnosed. Level of immune response within one's body. Level of inflammation throuout the body.
  13. GottaSki
    Gluten Free Aebleskievers - spelling ? - but yummy and easy to make once you have the pan - oh wait - dairy? The recipe I use has buttermilk as base.... Personally I smell many foods I can't eat right now and it does bring me joy - in the early days - not so much.
  14. GottaSki
    This makes sense - would not want to be in a cloud of glutenous flour - again not concerned about smell -- just ingesting minute amounts.
  15. GottaSki
    I've never had this happen with gluten - I have had severe anaphalactic type reaction from accidentally inhaling something I am intolerant of. Needed red pepper powder for something I was making my fam - thru some rp flakes into a grinder - opened too soon - bam inhaled dust thought nothing of it until throat closed - this is a very rare incident and I have...
  16. GottaSki
    Oh goodie. For now I just click on new content which bypasses the error message on the main forum page. From there I can click on the blue link back to main forum page. That probably isnt clear - sorry sending from kindle/mobile version
  17. GottaSki
    Welcome Anna! Roughly 30% of population carries DQ2 and 5% of population carries DQ8. Neither statistic means much if you fell better without gluten. As long as you have had the full panel of antibody tests - it is time to remove ALL gluten for three months (six is better) to monitor symptom improvement. Hang in there -- seems like you are...
  18. GottaSki
    I'm ok...I'll drive the rig until you are all feeling better boo....flu, gluten, muscles, joints and seasons we don't like!
  19. GottaSki
    not sure...think I'm being misunderstood -- I am not dismissing the cited journal -- I meant I could not take the time right now to look up the other research I have seen that agrees with proteins other than wheat/barley/rye causing T-celll reactions in some with Celiac Disease. sorry for any confusion -- my main laptop crashed so i will refrain from discussing...
  20. GottaSki
    These look delicious -- can't wait to get a bunch of the ingredients back to try them -- thought you might like to if you can do bananas and citrus, etc. http://www.livingwithout.com/recipes/banana-cupcake-banana-buttercream-chocolate-glaze-3196-1.html?ET=livingwithout:e102354:70661a:&st=email
  21. GottaSki
    And I dislike summer -- we can swap sometime
  22. GottaSki
    Perhaps...I have heard of this T-cell response in Celiac Disease with other foods, but cannot find any science to back this up right now. What I know for certain is many foods that are high in lectins are difficult for my damaged gut to process - quinoa is one of these items for me.
  23. GottaSki
    Oh Bummer!!! So sorry you got bit L2T -- it happens -- glad you are looking at the rainbow peeking out of the whole deal. Feel better everyone.... Irish, Addie, L2T - am I forgetting someone? and this poor server - my miscellaneous digital devices are not happy with the flip -- this too shall pass.
  24. GottaSki
    Quinoa is safe and gluten-free. Some of us have problems with other foods - the extremely high lectin in quinoa is the reason my damaged gut can not digest it now - I hope to add this nutritous food back into my diet at some point.
  25. GottaSki
    These are the type of posts that are most common on this board. Even posts that argue passionately come from a root of caring and wanting to help or prevent folks from trying things that have failed for others. When I have been feeling my worst I have misinterpretted intent as this format is easy to misun derstand folks as you cannot see their exp<...
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