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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    At one point I stopped probiotics as I didn't think they were working. When I realized I may have SIBO I started up again and they made me very nauseous during the day, so I took one at bedtime for a short time then two at bedtime. Eventually I was able to take them during the day again with no issue -- fight thru the nausea they are very important to the...
  2. GottaSki
    Have you tried cooked vegies? Sometimes raw vegies are quite hard on the inflamed system. Maybe start meat with making some chicken broth and adding some mild vegies to it? If you can tolerate that - add some chicken in next. If you have been without meat for a long time, I'd suggest starting with chicken, turkey and fish - followed by lean cuts...
  3. GottaSki
    Can you call the lab and ask how long it will take to release the results?
  4. GottaSki
    No one can really answer this. The level of antibodies may be reduced from that amount of time gluten-free. If you happen to be weakly positive, nine days could be enough to put you in "normal" range. I was weakly positive after decades of undiagnosed celiac - it was enough to trigger endo which found severe/total villous atrophy and every sample came...
  5. GottaSki
    You say that you have done the research and are now aware that there are no current medical tests to diagnose Non-Celiac Gluten Intolerance. The only option you have is to eliminate ALL gluten for a period of at least six months to monitor symptom improvement. Forgive me, but you have been going back and forth about whether your problem is gluten for...
  6. GottaSki
    Not to worry - if you choose to have an endoscopy - they can make you nice and sleepy - I have no memory of anything going in or down - I've had three and have severe gag reflex.
  7. GottaSki
    Welcome! Many items labeled gluten free do taste awful. Sticking with whole foods is the best way to go gluten-free. I'd suggest tasting any gluten free items you purchase first - if you think it tastes good, then offer it to your son. There are many brand name foods that are gluten free - when in doubt google "the item + gluten free" - most times...
  8. GottaSki
    Welcome! How long were you gluten-free? Your doctor is correct that the tests lose their accuracy with any time gluten free. If you are unable to continue to eat gluten because the symptoms are obvious and severe - I'd talk to your doctor - it is possible that you will still be positive for celiac antibodies or if negative perhaps if you test...
  9. GottaSki
    Just read your post regarding giving up milk. This would mean you need to give up cream as well. You can make sauces with rice milk, almond milk or coconut milk.
  10. GottaSki
    Welcome! Your PCP is wrong - glad you are pushing to be tested. Keep eating gluten until testing is complete and if the testing should all be negative - remove all gluten for at least three months. As you have already found - elimination is often the best test. Good Luck to you
  11. GottaSki
    It is gluten free. The person referenced in the wiki answer sounds like she might be dairy intolerant. No need to avoid dairy unless you are finding you are having trouble with it - some folks need to avoid dairy when first gluten-free because it is hard to digest when the villi of the small intestine are damaged.
  12. GottaSki
    It is great that your doc has recommended an endo even with negative celiac blood tests. Given your reaction to gluten and nutrient deficiency it will be good to rule out intestinal damage. Good Luck
  13. GottaSki
    You are looking for keywords like tTG, Gliadin, Endomysial, IgA and IgG -- below are the names of the tests in the celiac panel, many labs do use slightly different names and abbreviations. Total Serum IgA Tissue Transglutaminase IgA and IgG Gliadin IgA and IgG Endomysial Antibody IgA Deamidated Gliadin Peptide IgA and IgG Also any tests that indicate...
  14. GottaSki
    You should continue to eat gluten until the endoscopy is complete. Aside from the endo, your GI may want to order more specific blood work and any time gluten free can cause these tests to be less accurate. I know it is frustrating and counter-intuitive but for the best possible results from the available tests, you need to keep eating gluten. If you haven...
  15. GottaSki
    Both of your positive tests should have reduced numbers on subsequent tests. Depending on how high the positive numbers were originally it may take some time for them to be in negative range, but is likely they will be in the negative range at three months and even lower at six months. I wouldn't suggest testing before three months gluten-free. My doc...
  16. GottaSki
    No - your analogy is incorrect. If gluten is the "trigger" by removing it there will not be smoke to begin with. If you have Celiac Disease and are not making enough antibodies for current blood tests or you have NCGI, you will not improve until you remove all gluten. You have every right to desire answers - unfortunately you may never get them....
  17. GottaSki
    As long as it doesn't bother you - go for it - a little chocolate can go a long way to easing transition frustration. The chocolate you have sounds like a very good product and much better for you than highly processed foods - but may be good to keep in mind that many mainstream candies are gluten free - M&Ms are always easy to find when the mood...
  18. GottaSki
    I ate my homemade apple bread-like substance this morning - I make it from the few ingredients I can eat and have done so many times. Anyway this morning the second small square I ate didn't taste right, so I tossed the rest. Within a half hour I was bloating up and now I look like a balloon , but don't have any other food intolerance symptoms. Have...
  19. GottaSki
    Welcome! Squirmy is spot on - we come in all shapes and sizes - unfortunately many in the medical community were taught that Celiac Disease is a childhood disease that must include being underweight or short in stature - looking healthy can be the most frustrating thing in the doctor's office - especially when you have years of "normal" blood tests....
  20. GottaSki
    I don't believe anyone can answer this question. No one heals at exactly the same rate and many have different tolerance level - certified gluten-free foods need to be 20 ppm - this can be enough to cause the immune response in some with Celiac Disease. I happen to be one of the unlucky folks that has hardly healed in over three years completely gluten...
  21. GottaSki

    ARCHIVED Dr Has Results

    GottaSki replied to smpalesh's topic in Doctors

    I am so sorry - that is just wrong. I'd call back and ask for a return phone call from the doctor or minimally his nurse - sometimes the nurse can fit you in for a earlier appointment - dismiss the receptionist if she gives you attitude - simply be clear you need to talk with the doctor or his nurse - if she tries to dismiss you, tell her you have new pain...
  22. GottaSki
    I'll give it a shot: Gluten Allergy = IgE / Histamine reaction to gluten which can cause allergy symptoms - flushed skin, itching, rashes, breathing problems, etc. Allergy is diagnosed by blood &/or skin tests. Celiac Disease = IgA and/or IgG antibodies are produced in reaction to ingestion of gluten proteins - these antibodies are in reaction...
  23. GottaSki
    This is normal and will help make your transition to gluten-free a bit less stressful after testing is complete. Those that have no reactions often have a very difficult time believing that they really need to remove ALL gluten. Hang in there
  24. GottaSki
    It is possible to have symptoms for a few days after. If you suspect these items, remove them for at least a couple of weeks, then trial each one separately with at least three days to a week between trials.
  25. GottaSki
    I think this is a good idea. Just make sure you don't miss days. Gluten-lite can even reduce the chances of positive blood work and biopsies.
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