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Korwyn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Korwyn

  1. Korwyn
    Blood work has a high rate of false negative. I had repeated blood work which came back negative. I was later diagnosed with Celiac as a result of response to a gluten-free diet and my Enterolab results which showed very high tTG, Gliadin and Casein IgA. My Dad's 1st blood work was negative. They redid his blood work after I got my diagnosis and got a 'borderline...
  2. Korwyn
    Hi homemaker, Just though I might chime in too. I'm sorry about your losing your mother so early. There is some research showing links between some forms of Alzhiemers and celiac disease. Also untreated celiac disease carries a higher risk of infertility, and other reproductive issues, spinabifida, neuro-degeneratve diseases and a whole host of CNS conditions...
  3. Korwyn
    Wow....Lisa I'm glad. In the 7 months I've been on this forum and gluten-free I never saw this thread. It has given me great hope since I've actually gotten quite freaked out. The brainfog and speech and memory things that others have mentioned came for me after going gluten-free (like they have for a couple other people) and have been quite bad at times...
  4. Korwyn
    One of the problems I had with a food log was that I didn't realize that you can react to foods any time from ingestion and up to four days later. So my initial attempts at an elimination diet were non-productive and frustrating to say the least. Then I had started getting detailed on the ingredients in the foods and that became impossibly overwhelming. So...
  5. Korwyn
    I too learned this the hard way. I read the ingredient list every single time, even if I just bought the same item yesterday. It might be from a different lot from a different facility or the formulation may have changed between lots.
  6. Korwyn
    Hi Shelby, I know that some of my issues turned out to be additional allergies and severe intolerances to casein (milk protein), and soy (in any form). Soy is in almost as many things as gluten. When I first went gluten-free, I felt good for a few days, but then gradually started feeling worse. As my system began healing a little bit from gluten reaction...
  7. Korwyn
    Oh, yeah, I guess that could be. But honestly, once you've cooked it down into broth and/or soup stock you don't see any of that. There is a book on gapsdiet.com (which I bought) and read through that helped a lot. It helped me understand not just what but why, and the first half goes very in depth into the technical medical side of gut function. It actually...
  8. Korwyn
    Hi Nathan. Several people posted here but I want to re-iterate, get your vitamin levels checked! D, B, K, A, E, Iron levels, etc. It is VERY rare to find someone with Celiac who doesn't have some type of deficiency, and if you have been diagnosed as gluten-intolerant, it is possible you actually have Celiac disease. There is also some substantial research...
  9. Korwyn
    I'm super sensitive and I have been eating them as well (though not the Cinnamon ones). I would strongly suggest you get to a Dr. You could simply have broken a blood vessel, or you could have torn something from vomiting and have internal bleeding. Better safe than sorry. I would not wait it out for something like that.
  10. Korwyn
    I developed neuropathy and myoclonus after going gluten-free. Turned out I developed an allergy to Soy which was causing CNS inflammation and damage. Refined sugars in any form cause my RLS to reappear.
  11. Korwyn
    Soy caused(causes) a number of neurological (CNS) and muscular issues for me. Also, I have a very hard time tolerating any refined sugars (sucrose, refined fructose or corn syrup in any form). Raw honey, pure maple syrup, raw agave seem to be ok, but anything else sugar wise causes problems. Any large quantity of carbs also will cause problems. Look...
  12. Korwyn
    Yes. I gone on the gaps diet for three months. I have a friend who has had their kids on it for an extended period as they have a number of intolerances (gluten-free/CF/Egg/Yeast), delayed growth in one of their sons, etc. My boss has both of his kids on it, one on the strictest version of the GAPS diet. In ever case (including my own) it has made tremendous...
  13. Korwyn
    Hi Becci, I had the same issue after I was gluten-free for a while. Turned out that much of the psychological and neuro symptoms I had were actually soy, and in fact they are even worse for me than when I get glutened. I also have issue with some of the nightshades, peppers especially (chili, etc). Tomatoes and Potatoes are OK for me in small quantities...
  14. Korwyn
    It it quite easy to make, the only hard part is getting a starter (SCOBY). Once you obtain one (and some starter tea) you need only the following: 1 Gallon glass jar, tea, sugar or raw honey (if you can't get raw honey just use pure cane sugar), and a nylon or piece of cheesecloth that will cover the top of the jar securely. I use the continuous brewing...
  15. Korwyn
    Hi pewpew, Have you done a completely strict elimination diet, dropping back to the most minimal diet you can, possibly a BRA type diet (Bananas, Rice (or gluten-free Oats), and applesauce diet)?
  16. Korwyn
    Yes. I live about 25 miles from their plant and have toured it. They use no gluten ingredients in their processing.
  17. Korwyn
    Well, the water could certainly be an issue. A few years ago I began trying to make sure that I drink no less than 1/2 a gallon of water a day, and I average .75 a day. It has made a tremendous difference in my health as well as my ability to fight off various illnesses. I used to get strep every winter like clockwork (often twice), at least two severe colds...
  18. Korwyn
    Something that stands out to me is the yogurt and the acid in the pickle juice. The fact that the two seem to both have a positive effect seems to point toward a bacterial imbalance and low acidity in your intestinal tract, possibly indicative of candida. Have you tried a good healthy series (3-6 months) with an anti-candida diet, an anti-fungal/anti-candida...
  19. Korwyn
  20. Korwyn
    Funny you would mention that. I'm currently taking Dr. Wilson's program for severe/moderate adrenal fatigue. My lab work from ZRT came back indicative of adrenal fatigure. I'm super sensitive to soy and gluten, casein intolerant, intolerant of refined corn (corn starch, corn syrup), and react to refined cane and beet sugar. My wife reacts to any corn, dairy...
  21. Korwyn
    Sylvia, I was wondering if everything went OK with your consultation? Haven't seen any posts from you since that. :/
  22. Korwyn
    Hi Darlene, A friend of ours has son who is autistic, and they have been having wonderful success with a variant of the SCD called the GAPS (Gut And Psychology Syndrome) which comes from a center in England where they are studying the linkage between intestinal flora and the psychological anxiety disorder spectrum, including autism, certain forms of depression...
  23. Korwyn
    I would seriously look at soy and glutamates. When I get any soy intake at all it manifests with neurological and psychological issues, much the same as gluten does for me. Irritability, restlessness, anxiety, panic attacks, myoclonus, insomnia. When I first went gluten free these started improving, but after a couple months started getting worse. I have...
  24. Korwyn
    Because I react so strongly to soy I have found that I can eat very few factory canned or processed meats. We buy fresh chicken, fish, beef, pork, spend a Saturday to BBQ, broil, or bake as appropriate, and the freeze meal sized portions. A single Saturday can prepare our lunches and dinner meat for a month or more when we do it ahead like that.
  25. Korwyn
    Wow. Let me know how it goes. I know that after about the first 6 weeks on the GAPS diet (I didn't include any of my known food sensitivities) I started testing certain foods limited foods that I had been reacting to before and found that I could tolerate small amounts of some of them which was encouraging as I was able to add back in small amounts of homemade...
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