 
        T.H.
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Latest Celiac Disease News & Research:
Everything posted by T.H.
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	ARCHIVED What's For Breakfast Today?T.H. replied to GlutenFreeManna's topic in Gluten-Free Recipes & Cooking Tips homemade sweet potato fries, just a huge bunch of them. tomorrow's going to be leftover casserole: ground beef, green chile, and acorn squash.
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	ARCHIVED What Were Your Childs Symptoms?T.H. replied to bny06's topic in Parents, Friends and Loved Ones of Celiacs My daughter was always over the 90% in height, from birth. She was very chubby at birth, stayed that way through nursing, and then once solid foods were introduced, she slowly started to slim down, until about 3. When we introduced solids, she threw up everything and I'd go back to breastfeeding, which she seemed to handle just fine. I would think it was...
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	ARCHIVED Finally, A Soft Corn Tortilla Labelled Gluten-FreeT.H. replied to The Fluffy Assassin's topic in Gluten-Free Foods, Products, Shopping & Medications Sometimes it may be a processing ingredient that has direct contact, so it'll be in the product more than accidental cc, but since it's no officially an ingredient, it doesn't have to be listed as such. This would be for things like adding flour to the molds used to shape the tortillas so they don't stick to the equipment. I always wondered why corn starch...
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	ARCHIVED Safest Buckwheat Groats (Whole Buckwheat)T.H. replied to CSW's topic in Super Sensitive People Two in my family do seem to have trouble with BRM. But to be fair, we tend to have trouble with most processed flour mixes, too.
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	That one scares the crud out of me, too. I don't have anaphylaxis, I have something called irritant induced VCD. When the inside of my throat is exposed to certain irritants (usually gluten proteins and a few allergens, as far as we can tell), my vocal cords begin to close and start to cut off my airway. They've never gone all the way and cut off my air supply...
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	The dizziness could be an inner ear infection, but with all the other symptoms returning, that seems a bit of a stretch. If all of this is happening at once, then it seems that odds would be in favor of it stemming from one cause. I know many people here have this develop due to allergies and sensitivities. I had some that seemed to pop up only after I...
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	ARCHIVED Biopsy Confirmed Celiac Waiting On Blood Work-OverwhelmedT.H. replied to TanyaC's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease Welcome to the club, Tanya! Lots of people here who are going to right there with you - years undiagnosed, and when that first diagnosis comes in, everybody in the family starts realizing it's a problem for them, too. For recommendations: 1. For recipes, I've had much better luck on the web than I did with books. There are some awesome gluten-free...
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	ARCHIVED How Long Does It Take For Antibodies To Decrease?T.H. replied to Asharia's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease I haven't seen anything that yet that seems to have a definitive answer on this one. I was super, super gluten-free, and still testing positive a few months into the diet. I keep reading on various sites that by 6 months, there should be 'noticeable improvement.' My own doc told me it could take up to 2 years to heal, which it did for me, but partly because...
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	ARCHIVED How Big Of A Problem Is Cc With Canned Products?T.H. replied to Asharia's topic in Gluten-Free Foods, Products, Shopping & Medications There can definitely be gluten cc issues with canned goods, but at least in my experience, it depends on the product and the brand quite a bit. Some brands make a lot of their products in the same facility, so that can up the risk. But some companies that make a lot of products have separate facilities for separate products. Often seems to depend on the...
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	ARCHIVED Refractory Vs Non Responsive Celiac DiseaseT.H. replied to Coolclimates's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease Okay, here's what I know: "Nonresponsive celiac disease (NCD) can be described in terms of the clinical scenario of a lack of initial response to a prescribed gluten-free diet (GFD), or the recurrence of symptoms despite maintenance of GFD in a patient who responded initially to GFD." "Refractory sprue (RS) is defined as initial or subsequent failure...
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	ARCHIVED Reflecting Now, Do You Wonder If You Were Ever Healthy?T.H. replied to AVR1962's topic in Coping with Celiac Disease So glad to hear that you all found out what was wrong with your little one! We caught my son's at about that age, but his sister was already 11 by that point. I think she's had it her entire life, too. It's such a balance, at this point. I'm grateful we caught it when we did, but so, so wish we'd caught it earlier.
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	ARCHIVED High Fructose Corn Syrup & Corn ByproductsT.H. replied to CNV2855's topic in Super Sensitive People I honestly don't know if super-sensitives react to HFCS, but I'm thinking it's a possibility. Not even necessarily due to processing - could be due to cc in the factory. I doubt most companies are making HFCS have gluten-free facilities, although honestly, I've never checked on it. If it helps you in trying to determine your sensitivity level, the last...
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	ARCHIVED Just One Of The Many Reasons I Do Not Do Fast Food...T.H. replied to love2travel's topic in Gluten-Free Restaurants re: the dedicated fryer There's one practice that some McDonald's may do that can make the dedicated fryer contaminated. Some McDonald's will filter and reuse their oil for a couple days before starting over with completely new oil. Now, some McDonald's have dedicated storage at night for the oils from their different fryers. However, some store...
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	ARCHIVED Can Gluten Contamination Cause SeizuresT.H. replied to Tig's topic in Related Issues & Disorders I wonder, too, if we tend to meet more people with severe reactions when we have more severe issues with gluten ourselves. Everyone who is not having too much trouble probably doesn't go searching out answers and support as often, I imagine.
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	ARCHIVED Safest Buckwheat Groats (Whole Buckwheat)T.H. replied to CSW's topic in Super Sensitive People I have not yet tried it, but Wolff's brand whole buckwheat groats has been recommended to me by multiple people. It's on my list of foods to try out soon. :-) I believe this is the particular size/type that people have recommended. Open Original Shared Link DilettanteSteph, is this the right one? I thought I recalled you were eating this safely,...
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	ARCHIVED In Defense Of 20 Parts Per MillionT.H. replied to psawyer's topic in Gluten-Free Foods, Products, Shopping & Medications You get really used to making a LOT of phone calls, especially if you react to something and you're trying to figure it out.
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	ARCHIVED Sometimes I Want To Just Smack DoctorsT.H. replied to T.H.'s topic in Parents, Friends and Loved Ones of Celiacs ha, oh that's awesome. So true!
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	Man, you've asked the question: there is SO much that can cause symptoms, yeah? So, let's see. Thoughts: 1. You may wish to call the companies that make your supplements and determine if they test their products for gluten, if you are in the USA. Testing is not required to make a gluten free claim here, so some products may have a higher risk of gluten...
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	ARCHIVED Negative Blood TestT.H. replied to Sarah P's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Yeah...what everyone else said. Also, it might help you feel more settled about your doctor's diagnosis if you ask why she think you might have SIBO. What symptoms did she see that made her suspect this? I mention that because it's entirely possible to have both, so even if she seems ignorant about celiac disease, she might know about SIBO. Enough...
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	ARCHIVED How To Deal With Food When Not At HomeT.H. replied to Newbee's topic in Coping with Celiac Disease You know, one thing that helped us a lot with that was making our own, hmmm, easy meals? Like, a bag with salt, rice, dehydrated onions and a few dried spices. Sealed it in bags with enough for 1 serving, and then cooked it when we camped in our own pot. Brought potatoes, too, that we could just wrap in foil and pop in the fire until they were done. A...
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	ARCHIVED How To Deal With Food When Not At HomeT.H. replied to Newbee's topic in Coping with Celiac Disease I would definitely call ahead of time if you wish to bring your own food. If you make it clear that you have a food sensitivity that is sensitive enough that you feel cross contamination would be nearly impossible to avoid, AND that others in your party WILL be purchasing their food, usually they are accommodating. I know what you mean. It was...
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	ARCHIVED In Defense Of 20 Parts Per MillionT.H. replied to psawyer's topic in Gluten-Free Foods, Products, Shopping & Medications Very true. And that's kind of a comforting thought. Because whether the law ends up being good or bad, or whatever is passed, if there's evidence that it is causing trouble? It's been made clear that the celiac community as a whole is very willing to stand up and fight for changes. That actually helps somewhat, thanks for the reminder. :-)
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	ARCHIVED Why Did You Suspect You Were Super-Sensitive?T.H. posted a topic in Super Sensitive People Just a sort of 'getting-to-know-each-other' kind of question. What made you start to suspect that you might be more sensitive to gluten than average? Was there a particular moment or food? Or was it more a build-up of experiences that led you to explore the idea? And second, what did you think was causing your problems before you settled on super...
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	ARCHIVED Need Brands Of gluten-free FloursT.H. replied to thleensd's topic in Super Sensitive People I recall you mentioning that a while back. I was going to ask: did you get it direct from Country Living or did you get it through a second party site? I only ask because while looking for mills to buy, I came across a few reviews from people buying through sellers on second party sites that claimed to sell new equipment, but when the customer received...
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	ARCHIVED Estrella Damma DauraT.H. replied to josh052980's topic in Gluten-Free Foods, Products, Shopping & Medications Have you looked at New Planet Beer? I'm another non-beer drinker posting, LOL, but my father and brother claim this is the best gluten-free beer they've had. I know they've had Bard's and Redbridge, so that's probably what they were comparing to. It looks like the company is small but expanding, and so not available in every state. They do have a website...
