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T.H.

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Latest Celiac Disease News & Research:

Everything posted by T.H.

  1. T.H.
    At this point, my own personal definition is that: The average celiac can have average servings of <20 ppm of gluten gluten-free food throughout the day and will not react. The sensitive celiac can have <20 ppm gluten-free foods throughout the day, but may reach a threshold and react if not careful of quantity. The super-sensitive celiac...
  2. T.H.
    I might have some ideas. :-) Distilled vinegar usually has yeast added after distillation, to help with the fermentation. And many yeasts have cornstarch (or other starches, but usually corn, here) added just before drying, because it helps in the formation of a yeast cake or the powder. So, possibly corn contamination? Sweet potatoes are often gassed...
  3. T.H.
    Oh, hon, I am RIGHT there with ya. Corn is like a freaking ninja in the food world, compared to gluten, it seems like! With re: to the plastic, I know I've spoken with a number of corn allergic folks who have claimed to have issues with that, so you're definitely not alone. Seems to depend on the sensitivity. However, from what you've been eating,...
  4. T.H.
    Well, the one sort of bright spot? If you're noticing a difference, it likely means that gluten is related to the problem in some way, at least! :-) I got worse on my gluten-free diet, too, although I was diagnosed. I know there is gluten withdrawal, yes, but I don't know if it involves gut issues like this, honestly. I've heard more of general malaise...
  5. T.H.
    I've tried a few different apps, but I haven't found them too useful. Most of the brands I wanted to know about weren't listed. I bought the shopping guide from cecilia's marketplace. --It's updated every year, which keeps it up to date. Also, on the website, it has a section to check for 'updates,' so if anything changes during the year, you can...
  6. T.H.
    Sorry that I can't share my numbers - my test results are buried in the files right now and I'm having poor luck getting my hands on them. I do recall that while my numbers were definitely above the normal range, they weren't extremely high. Based on symptoms, I've had celiac disease over 20 years, but my daughter (11 at the time) had higher blood test...
  7. T.H.
    Yup, I most definitely did. Reasons for my issues, best I can tell: 1. Some of my gluten-free foods actually contained foods I turned out to be allergic/intolerant to. It often gave me gastro, which I would think was gluten, but turned out to be this. No hives or anything. Only really showed up after I went gluten free. I had no trouble with it before...
  8. T.H.
    I've met a few people who've said the same thing. The other flavors of Chex were fine for them, but the Honey Nut ones gave them gastro issues for some reason.
  9. T.H.
    Oops - just realized I never answered the question myself. The 2nd day of my gluten-free diet was the first day I tried a processed gluten-free food, and the first time I got sick off of one. First stupid thing I tried: gluten-free chips from Trader Joe's. My first thought was that maybe I'd reacted to gluten, because I was in that 'OMG, everything...
  10. T.H.
    It can definitely be a forward and back progress on getting better, yeah. Some people just continue slowly healing. But considering how super gluten free you're being, I thought I'd ask a couple things. With all the effort you've gone to, so early, it seems like you're really motivated to get better ASAP! So, questions - on your bad days, what...
  11. T.H.
    A connection between Subclinical Hypothyroidism and Testosterone Deficiency Open Original Shared Link It's just a very short article, but I thought it might be of interest for any celiac men with hypothyroidism who may be experiencing symptoms that are not resolving as they should on medication. Especially as some of the symptoms of testosterone deficiency...
  12. T.H.
    I've only seen the Katz Challah, myself, too. I've never seen them in any of the Whole Foods I go to in in the SW, but I have seen them in whole foods further east
  13. T.H.
    Like Skylark and GlutenFreeManna - desperation was a great fuel for a really strict elimination diet.
  14. T.H.
    For me, I tried all kinds. 4 varieties of Lundberg rice (including brown), 2 different brands of thai black rice, 2 brands of thai red (cargo) rice, and I think 5 more brands of white rices (love those Asian markets!). I react every, single time, to all grains and pseudo grains, but I don't actually think it's the grains themselves anymore, necessarily. ...
  15. T.H.
    I was just thinking that - if he had gluten within a couple hours of seeing you and ya'll kissed, that can do it. Or if you kissed his skin and he had some kind of lotion/sunblock/powder with gluten on it on his skin. Or kissed his hair and his shampoo has gluten - although often that's self-correcting, as it is washing out of his hair, mostly. You might...
  16. T.H.

    ARCHIVED Glutened Again

    T.H. replied to CNV2855's topic in Coping with Celiac Disease

    Simply Orange orange juice - these are ones that my kids seem to be okay with on occasion. They are also a bit challenging to find out any information from - I've tried to contact them three separate times and never been able to get a response. Spices - Are these new spices or old ones? If they're old, could there be the possibility that some gluten cc...
  17. T.H.
    Don't know if this is what you're looking for, but my understanding is this: 1/3 of the population have the genes for celiac disease, so JUST the genes isn't a huge indicator. 1 in 133 people test positive for it, so that would mean 1 in 133 have the genes 'triggered' in some way (which we don't fully understand yet). If there is a celiac in the...
  18. T.H.
    Just make sure to rub down any of the spice jars that you commonly used with your gluten dishes, if you usually held onto the jars with gluten-covered hands (like cinnamon if you made cinnamon rolls, that sort of thing).
  19. T.H.
    Theoretically, it could contribute. Celiacs don't just absorb nutrients properly, we can potentially not absorb meds properly as well, when we're undiagnosed. So some ingredients of the meds may be absorbing at different rates than they should, or in different amounts than they should, so they might be having different effects. The side effects might be...
  20. T.H.
    Okay, let's see what we've got. 1. I hate to ask this, I mean seriously I do, but...how sensitive are you to corn? If you are really, really sensitive, it's likely that the Chex has corn. I believe all flavors have vitamin E, and most Vitamin E in the USA (if that's where you're at) is corn contaminated, as I understand it. Can't recall at the moment...
  21. T.H.

    ARCHIVED Cereal

    T.H. replied to GFreeMO's topic in Super Sensitive People

    My sensitive daughter can have a small bowl of Envirokidz a day without a gluten issue, usually. I believe they are the Nature's path cereals, yes? My family hasn't tried any of the others from that company. I react to the envirokidz, but not too badly. It's a bit hard for me to say how much, any more accurately than that, because I'm allergic to some...
  22. T.H.
    There's now a corn based BPA replacement (isosorbide) that may used in some canned goods, just started being used last year (Open Original Shared Link ). I don't know if it's much better, but it sounds like it may be. Although you'd probably have to go through some real hoops to find out if a can had this rather than BPA. I heard about this when some...
  23. T.H.

    ARCHIVED Work Week Random Cc

    T.H. replied to YoloGx's topic in Super Sensitive People

    I do that too! The kids and I automatically use it every time we get back in the car. Yeah, cotton seems safest, doesn't it? I know a lot of the rubber ones have a starch coating on the inside, so I don't feel as safe with 'em. Also have banana allergies in the family, so the doc suggested I might try to keep my latex exposure to a minimum, since...
  24. T.H.
    Not sure if it's the same, but here's mine. :-) For years, I had something that sounds very similar to what you expressed - I never even thought to describe it as vibrating, but when reading your description, all I can think is that's pretty much exactly what it felt like. Mine was my arms, and it happened when I would put them in certain positions. ...
  25. T.H.
    My father and brother both love this beer - it's their favorite gluten-free beer.
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