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T.H.

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Latest Celiac Disease News & Research:

Everything posted by T.H.

  1. T.H.
    To the best of my knowledge, no. Quite a number of Celiacs have H. Pylori infections, so it's pretty common to have the biopsy while infected with this. I have two in my own family, actually. I have never heard of any damage by the H. pylori that mimics the damage done by our own bodies when we have Celiac Disease. Someone might have other information contradicting...
  2. T.H.
    Although I don't believe it's been studied, my GI doc specializes somewhat in Celiac Disease, and he told me that his Celiac patients seem to be more sensitive to artificial additives and preservatives, pesticides, and dyes. More of them have trouble or feel sick when they eat them. Also, same higher level of problems with genetically modified foods,too....
  3. T.H.

    ARCHIVED No Processed Foods

    T.H. replied to GFreeMO's topic in Super Sensitive People

    I'd say I eat that way, yeah. Are you thinking of just dropping the special gluten-free processed foods, or are you thinking all the way to dropping mustard, ketchup, spices, that sort of thing? I'd say we're at the far end of the 'no processed food' spectrum at the moment. No pre-made foods, essentially. No sugar, no gluten-free flours, no...
  4. T.H.

    ARCHIVED What Do You Eat?

    T.H. posted a topic in Super Sensitive People

    Just realized, with a bunch of us together, maybe we can help each other find safe food or share brands that we use regularly. :-) So, again, starting off. What works for us: Field Day Mediterranean sea salt Bariani Olive oil Ancient Harvest Quinoa - in the 25 pound bags - grain for the 1 pound boxes are shipped to the USA and packaged...
  5. T.H.
    Thank you for the recs! I'll have to go hunt these down and check 'em out. I managed to find Afterglow for the one lipgloss I own now...which I never get to use as it somehow ends up in my daughter's bathroom more than mine, LOL. shauna
  6. T.H.
    Okay, my thoughts: 1)I'd start keeping a food diary, tracking what you eat, and what your symptoms are. Often, this is easier if you eat one thing at a time - like a one ingredient snack, so you can make sure that it really IS bloating after anything, and not you getting a number of foods all at once. Even salt tends to have additives, these days. Oil can...
  7. T.H.
    I've ended up still having trouble with some beans, even triple washing with gluten-free soap, even, and massive rinsing. So far, we've tried a little of the Rancho Gordo beans ourselves and they seem find for my daughter, so far.
  8. T.H.
    Any recommendations on these? We've been looking for some, especially as I have a minor wheat allergy, too, but having a difficult time finding good ones, to date.
  9. T.H.
    My guess - and it's just utter guessing... - Did the doctor say whether you had a lot of intestinal damage? If so, it might be your body is a bit overwhelmed because most of its resources are being used to heal your body and gut. I had a period of exhaustion after going gluten that seems to have been due to that. Although just normal healing might be...
  10. T.H.
    You were saying you feel like you're allergic to it - so do you have a different response to the building than you do to gluten? What's your reaction? Because honestly? Oh heck yeah you could be allergic to your building, but not necessarily the gluten, although an allergy to wheat would do it, too. They are making plywood in the last few years...
  11. T.H.
    There are some celiacs who will have a positive blood test after a few weeks gluten free, but there are also some who won't, so it's a crap shoot, really. My brother, for example, had a negative test (he was already diagnosed, though), and then he cheated for about three or four days before another test, later on, and that was enough to give him a mild positive...
  12. T.H.
    Sadly, your story is not that rare. From what I've seen, there are two choices for you. 1) Find another doctor, ASAP, and get tested. or 2) Screw the doctor, go gluten free anyway. Either way - ditch the doctor. If they won't listen to their patients, they don't deserve any patients. Often, people here tried going gluten free even...
  13. T.H.
    I'd say it's very possible she has Celiac Disease. I'd say it's more likely than plain old gluten intolerance, mostly due to the dizziness, which sounds like it could be the neurological problems that some Celiacs can have. - lactose intolerance is pretty common for celiacs who are eating gluten, as the body attacks the part of the intestines that produces...
  14. T.H.
    So, so sorry you're having such trouble. It's highly likely you will end up with less diagnoses by the end of this. Which is good, really good, but you may want to prepare for potential frustration and anger over how long it took to be diagnosed. I could be wrong - obviously I don't know your health - but IBS has a good chance of being missed Celiac...
  15. T.H.

    ARCHIVED New Here

    T.H. replied to EvelynE's topic in Food Intolerance & Leaky Gut

    ....is there any connection between this and OAS, possibly? Oral Allergy Syndrome is when you ingest something that's not an allergen, but is close enough to it in structure that your body reacts. Strong burning/stinging pain in the lips, tongue, cheeks, sometimes down the throat. However, that fades. But I was just wondering if there might be something...
  16. T.H.
    I thought it might be nice to have a brief roll call of sensitivity, as it were. If a product is recommended, or recommended against, it makes it so much easier to know how that can relate to my own life if I know whether the person posting is about the same level of sensitivity as me, or more, or less, if that makes sense? Thought it might help everyone...
  17. T.H.
    We were trying the ghiradelli stuff (for my celiac kiddoes) until the company had that one addition with barley, yeah. At the time, I thought that I'd stay away from it due to the risk, low though it might be. My father, also a celiac, seems to eat it just fine, however. I'd say if you are fairly sensitive to gluten, you might want to avoid it, but if...
  18. T.H.
    That was me, too. Never had nausea with eating, and then suddenly, I had it after going gluten free, within days. For me, it turned out to be two things: 1 - I was more sensitive to gluten than average and reacted to many gluten free foods' level of gluten. 2 - Turns out I have food allergies and intolerances. No signs before this, no hives, no nothing...
  19. T.H.

    ARCHIVED Over 50

    T.H. replied to over50's topic in Super Sensitive People

    My own experience wouldn't agree with that, I'm sorry to say. I have no allergies to nuts, but I've gotten glutened from unseasoned, unroasted nuts multiple times (lovely vertigo reaction - loads of fun). Haven't really found any nuts at the regular grocery store that haven't given me at least a small reaction. Unfortunately, quite a few nuts are processed...
  20. T.H.
    I think aliens explain it all. Yup. *whispers* and they have started a secret doctor mind control experiment to keep us from getting diagnosed, too. I swear, sometimes I think that is the only explanation of how seldom we get answers on this stuff!
  21. T.H.
    It's surprising how often people think that's the answer, isn't it? My favorite was an acquaintance who thought all my troubles with gluten would be solved if I went on a macrobiotic diet...the one where grains are the main source of nutrition. Then proceeded to give me all these whole wheat and barley recipes.
  22. T.H.
    Convenience - oh goodness yes do I miss that! But I think I miss the spontaneity more. I used to love to go out with the kids and we'd just visit friends, pick places to go on a whim, and so on. Now, I always have to wonder if we have enough food to last for as long as we'd be out, where to eat, and think ahead by a fair while to make sure we can eat safely...
  23. T.H.
    Oh goodness, and that's a tricky one! I have a friend whose daughter has an allergy to annatto, too. I'll pass on the tidbit I remember from conversations with her: anything that's colored, you'll want to check out. You'll probably have to make a lot of phone calls, because you will have the following 'fun' issue to deal with: In the United States, annatto...
  24. T.H.
    Thank you very much for this! My daughter is 12 and she's just starting to look at this sort of thing. I'm just going to be tucking this tidbit of information away so we can use it when she starts buying makeup. :-)
  25. T.H.
    Usually, soap and water will do a good job on eliminating enough gluten for average sensitivity. You might want to double check your laundry soap and make sure it's gluten free. And...hmmm...if she's really sensitive, I could see a couple potential issues, like if some really glutenated sauce soaked into the cloth, and wasn't cleaned as well as it should...
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