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T.H.

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Everything posted by T.H.

  1. T.H.
    I don't have a high platelet count, no. I had low grade fevers almost daily for about 2 years before I was diagnosed, but I had contracted a disease three years before then that can stay in the system and resurge quite easily. With no elevated platelets, we all thought it was this disease. However, going gluten free had the fevers stop, and now the...
  2. T.H.
    Oh yeah, depression city here. I tend to start feeling very stressed and incapable, that kind of hopeless thing depression gets you with, you know? Then overwhelmed by everything around me. If I get glutened a few ties in a row, as has happened on vacation a couple times, then depression really sets in and it's pretty bad. My daughter has the exact...
  3. T.H.
    Oh man, there is so much on this thread to talk about! Oil first: I use Bariani olive oil. They are another company that only makes olive oil on their lines, and I have to order them on-line, although some Whole foods and other health food stores in California carry them, I believe. Mcdonald's information: here's something I heard on a Celiac...
  4. T.H.
    Jeesh that is so much better! WHY can our doctors not do this? do you recall which countries do this? I'd be interested to reference it the next time I'm talking to my son's doctor, actually! And EatMeat4good - honestly, I wish I had more time to research! I find myself very frustrated sometimes when I look back our the history of my family...
  5. T.H.
    I'd say oh yeah, get tested. my father was diagnosed 9 years ago. His doctor said 'eat gluten free' and that was the end of that. No follow ups, no more info, nada. 8 years down the line, as I"m getting sicker and sicker, I get tested only because I was getting an endoscopy for something completely different and knowing about the celiac disease, asked...
  6. T.H.
    You might want to call them up to check. They have no legal obligation to mention that the lines process or don't process wheat, unfortunately. So if they don't say it..doesn't mean it isn't happening. Also, what is processed in their facility? I know that nuts are quite often a gluten risk for me, and I get the neuro symptoms as well, but I only get that...
  7. T.H.
    A test may not necessarily catch what she has, either. This is a good link to an article about a recent study on non-celiac gluten intolerance. Open Original Shared Link There are not tests for this other than food journal and gluten challenge, I'm afraid. Considering her reaction, I'd keep her off the gluten for a few more months and challenge again...
  8. T.H.
    Both my daughter and I have sensitivity to sound more when we get glutened, yeah. It's most noticeable in crowds, but I've had low music, a squeaky door, or even someone whistling feel like an assault on the eardrums. My daughter also tends to get the same thing with her skin, where the slightest touch is perceived as uncomfortable or painful. I haven...
  9. T.H.
    This is probably old hat for some of you, but it was all new to me! My kids both have dairy issues, but unlike me, they don't test positive for dairy allergies. We think it might be intolerance. However, I keep finding lists of dairy foods that should be 'low lactose,' like yogurt, and my kids still react to them. I just stopped trying and we ditched...
  10. T.H.
    could be either, I'd say. Only way to tell is if you try it again, I imagine. Maybe you could have the same foods, even. For me, I get neuro symptoms within about 20 minutes, at the latest. My father reacts with gut issues the next day or the day after.
  11. T.H.
    I believe so, yeah. I had a diagnosis, but I know a number of sensitive folk who don't, and I believe some of them were negative, yes. But we'll have to wait for them to chime in to make sure. Cross contamination seems to be able to really zap some folks who are moderately sensitive, oh yeah. How high the 'dose' is really kind of depends on...
  12. T.H.
    I can pass on words of wisdom from my hubby, at least. :-) First, this last Christmas at his mother's house, my hubby was talking about what we do to stay safe, how careful we are, what we can and can't eat/touch/and so on. His mother is very skeptical that we need to be THAT careful. His reply was this: sometimes, I might not always feel like it's...
  13. T.H.
    So, so sorry you're having such trouble. It is very overwhelming, goodness, yes. IMHO, if your little one is very sensitive, the easiest way to stay safe is to basically change the way you approach your food. We had to drop corn as well, not for allergies but other reactions from cc, but...the only way to avoid all the 'bad' in our food supply has involved...
  14. T.H.
    You might want to double check on the gluten free thing. A lot of gluten free products now are gluten free enough for those who may be sensitive to gluten, but not gluten free enough for Celiacs. A good question to ask is if it tested for gluten levels. If you are getting the runs, feeling worse, and increasing the amount of a food you are eating that...
  15. T.H.
    If you have a serious allergy, it'll make your heart beat significantly faster when you are exposed. However, this only applies to a serious allergy, not to mild allergies or intolerances. With those, I don't think a pulse test will do much better than random guessing. And I can say this one with experience, actually. I was reacting horribly to a lot of...
  16. T.H.
    Just in re: to picky eaters - curiously, that has actually turned out to be one of my kids' symptoms! My son had a negative blood test, no scoping done. But 2 of the four of us were gluten free, and he was very small, lots of emotional control issues, and had a bloated tummy, so we tried it with him, too. At this point, if he accidentally gets gluten...
  17. T.H.
    Yeah, afraid the test will be negative if you've been gluten free for a year. Since it's not an allergy, the allergic reaction to corn wouldn't affect the test, though. Was your doctor aware of your gluten free status when the test was ordered? If they were, and are still trying to diagnose you this way, they are simply very celiac ignorant. A...
  18. T.H.
    My family had four of us who didn't - that we knew of - get any symptoms when we ate gluten. After being gluten free for a few days to a few months, all of us slowly began to have symptoms when we get glutened. That happens to a lot of people, but not all. Unfortunately, symptoms, or lack thereof, don't seem to correlate with the damage done, so yeah...
  19. T.H.
    Here's how I understand it: Some celiacs respond well to a gluten free diet, some don't. If they don't, and they seem to be gluten free, then it is often considered refractory and steroids are currently the main method of curing this. However, in a study on refractory celiac disease, quite a few were helped by dropping more gluten from their diet (some...
  20. T.H.
    Do you have any issues with corn? As I recall, many people with corn sensitivity tend to have trouble with canola oil - can't remember if it's cc or processing. I'd just say, if canola oil is bothering you...just avoid that crud, yeah? Although you could possibly see if there is a company that actually tests its oil for gluten levels - I don't...
  21. T.H.
    Okay...see what I can do. :-) 1. One easy thing is put all your gluten free stuff, and pots and pans, on the top shelves. This way, nothing can drip or crumble down on top of your food. Also, the little bitties can't get into your gluten free stuff this way. If you can have, say, a little cleaning station set up for when kids and you leave the kitchen,...
  22. T.H.
    Oh that would definitely do it. A good friend has a toddler who is celiac, and she's only been doing the diet for a few months now. They were very careful because he gets really sick off gluten. He went out with us to a mall. She ate gluten, he didn't (had gluten free snacks my family brought from our gluten-free kitchen, so we know they were okay). The only...
  23. T.H.
    I honestly don't know if you can, not with such small little ones, unless you are confining the gluten to a specific area and they have to wash their hands as soon as they eat. That said - have your little ones been tested for Celiac Disease as well? If your doc hasn't mentioned it yet, there's a good chance they either do have it, or will have, even...
  24. T.H.
    Many health food stores may carry more gluten free products than other places, like Whole Foods, sunflower markets, or Wild Oats, if those are familiar to you. But all grocery stores will have some things that are gluten free. If you google 'guide to going gluten free' there are a number of sites and resources that will pop up, including a book you can...
  25. T.H.
    It could be the healing, yeah, although many people also experience more intense gluten symptoms to gluten after they start dropping it. Did you check to make sure your advil, benadryl, and vitamins are gluten free? I know some advil and benadryl is, but I wasn't sure if it all was. Also...there's a couple nasty viruses going around right now that...
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