 
        T.H.
Advanced Members- 
                Posts1,692
- 
                Joined
- 
                Last visited
- 
                Days Won15
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by T.H.
- 
	ARCHIVED Is Anyone Else Seeing A Rise In The Number Of Kids With This?T.H. posted a topic in Parents, Friends and Loved Ones of Celiacs I'm a homeschooling mom. Both my kids are gluten free. And it's been really fascinating, and a bit disturbing to me, that in the last year and a half, half of the people I'm close to within my homeschooling group have had to go gluten free. I should probably clarify and say they went gluten free for medical reasons vs. fad diet ones. Asking around,...
- 
	ARCHIVED Why Get Tested?T.H. replied to Bostonkate's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Damage to the gut can be done with no obvious symptoms appearing in an individual, so how bad we feel is actually not a good indicator of what damage is being done, unfortunately. Be much nicer if our bodies would give us a bit of a break and be more like computers, yes? Eat this, and react like that, and it's easily solved. But, as people have said...
- 
	ARCHIVED Cross Reactivity And Rotation DietsT.H. replied to knf's topic in Food Intolerance & Leaky Gut The rotation diet was one I was put on, but I had so few foods I could eat that it was difficult to do. However, when I started? I found it easiest to come up with some similar recipes, that I could substitute foods for and still have it work. That way, I could not have to 'think' to much about the food, but not eat the same thing over and over, you know...
- 
	ARCHIVED Confused. Sceptical About Diagnosis.T.H. replied to AliSko's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease There's a rather recent study that might be applicable in your case, as well. They tested celiacs with positive blood tests and positive biopsies, and compared them to people with positive blood tests and negative biopsies. They found that both shared some metabolic problems. The speculation is that the blood test may be catching people with this disease...
- 
	ARCHIVED Soy?T.H. replied to adab8ca's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease It could also be gluten cc of the soy, too - crazy, this stuff. I know what you mean about the challenge when there's no tummy stuff; I'm mostly neuro, too. Some soy is grown as a rotation crop with wheat, in the same fields, and tends to be a bit gluten cc'd. If you are curious if this is the case, you could always try to get some fresh soy beans still...
- 
	ARCHIVED Something Is Still Not Right :(T.H. replied to ChristyL's topic in Parents, Friends and Loved Ones of Celiacs Okay, here's just a slew of things that come to mind. I would ditch the dairy - many new celiacs are lactose or dairy intolerant, and there is just so much dairy in your little one's diet. The cheese, the butter, the milk, the yogurt, what's in the muffins and mashed potatoes, even the veggie shreds - they have dairy added too. Kind of defeats the...
- 
	I would second this. It sounds like your docs are looking at the more serious potential issues, too, so that at least takes that worry off the table. One thing that can help you figure out what it could be? If it were me...I would fast for a day or so. Maybe just have some water and squeeze a little orange juice into it (from fresh oranges, to...
- 
	ARCHIVED Your One Best Money Saving IdeaT.H. replied to aeraen's topic in Coping with Celiac Disease So sorry it's been so tough on you! And you definitely can make it cheaper, but it's unfortunately like a lot of things: it'll take more work. But it's absolutely do-able! Firs, though, I'd second the question of supplements and such. Are there any probiotics mentioned? You may want to google: make your own probiotics. There are some very interesting...
- 
	ARCHIVED 3 Days Of Allergic ReactionsT.H. replied to JSegura226's topic in Food Intolerance & Leaky Gut Much sympathy on losing a food! Yeah, I had the same thing. Started reacting like crazy to some allergies, and then to gluten, until it was crazy trying to tell which was which for a long while! Just to help you avoid a problem I had, though, you might want to make sure you check what brands you were eating, if possible. Probably don't really want to...
- 
	ARCHIVED Does Having Other Food Allergies Do Damage Also?T.H. replied to Macbre's topic in Coping with Celiac Disease Thanks for that link. I had not heard of this before. Very good to know.
- 
	If someone can help with the kids, I tend to try and sleep a lot when I get brain fog. Lots of music that is upbeat or soothing helps me, personally. I also enjoy getting my hands dirty - gardening stuff is a big one for me. I hate to cook with brain fog, because I almost always burn myself or slice myself with the knives. Or forget the stove is on and...
- 
	ARCHIVED Did I Screw Up With Thai Food?T.H. replied to color-me-confused's topic in Coping with Celiac Disease Yeah, that's kind of what we're attempting to do. I'm growing lemon grass, thai basil, and thai coriander in my herb garden (well, maybe not growing. I'm kind of sticking them there and hoping I don't kill them, is more like it. ) Now I just need to find an awesome recipe and get to it! :-)
- 
	ARCHIVED Eat For LifeT.H. replied to imisskitkats's topic in Gluten-Free Foods, Products, Shopping & Medications I haven't heard of these - although, maybe you were thinking of Enjoy Life products? I wondered as those are free of the 8 major allergens, so thought that might be it. :-) They are independently certified by the GFCO, which means they should test below 10ppm of gluten. HOWEVER, I could think of a couple things. 1) you could be really sensitive to...
- 
	ARCHIVED Your First 3 Weeks..T.H. replied to JSegura226's topic in Gluten-Free Foods, Products, Shopping & Medications I started with Kirkman lab's vitamins - ordered them online here: Open Original Shared Link I was actually great when I went gluten free - all my vitamin levels were good, but mostly because I overate like crazy, and doing so, I was managing to get enough vitamins. Too many calories, though. After going gluten free, though, when I couldn't eat as much...
- 
	For those who react to citrus - are either of you dairy or soy intolerant/allergic? Most of the citrus you'll find in the stores, organic or not, has a wax coating on it (it can be considered organic because it's based on an insect, as I recall). But the particular wax on the citrus uses soy or dairy casein to help get the texture right. I get...
- 
	Do you usually have a delayed reaction like this, or are your reactions more immediate? If it's delayed for you more often, then I'd say it could definitely be an issue. But usually, I'd agree with RiceGuy's supposition - if she is using flour, that dust gets everywhere. Unless everything nearby was cleaned thoroughly afterward, it could have gotten...
- 
	ARCHIVED Night Time SleepT.H. replied to katiekay's topic in Parents, Friends and Loved Ones of Celiacs Oh heck yeah. On gluten, my daughter has a terrible time falling asleep. She has huge panic/anxiety attacks, she sleeps lightly and keeps waking up in the middle of the night and crying for me, being scared of the dark and such. She actually doesn't have nightmares - she says she doesn't remember her dreams at all when she has gluten, only when she doesn...
- 
	ARCHIVED Dizziness, Disorientation For Two Weeks After Glutening?T.H. replied to viaggiatrice's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease It would probably be worth checking with a neurologist, or a specialist, just in case, but if you can, I'd find one who is knowledgeable about 'gluten ataxia.' What you're describing is pretty similar, mind-wise, to what happens to me and my daughter both. Headaches, conversations and experiences I can't remember, zony/spacy feeling, vertigo and dizziness...
- 
	ARCHIVED Did I Screw Up With Thai Food?T.H. replied to color-me-confused's topic in Coping with Celiac Disease Yup, it's highly likely you glutened yourself with the fried rice/soy sauce issue. :-( However, true thai cuisine used to use soy sauce that is made from actual soy without the wheat. As I understand it, though, in the USA, more and more they are using the wheat based soy sauce. Thai is definitely a place to call around to and see if you can find one...
- 
	ARCHIVED Biopsy/scope Showed Damage But Not Celiac?T.H. replied to brendab's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease What exactly was the reason she gave for it not being Celiac Disease? So far, if I understand what you were saying, everything you describe would lead to the opposite conclusion. Was it a negative blood test, or just inflammation and no blunted villi in the intestine? What was the damage exactly?
- 
	Pretty sure my daughter reacted to them, early on, but it's sometimes I wonder if I'm remembering right, LOL. But honestly, but if you think you got gluten off of them, I'd ditch 'em and see if it resolves, you know? If it doesn't, then it's something else. Currently, they test their products, but I don't know if they test every batch, or every week, or once...
- 
	ARCHIVED Where Do I Start With A Dairy/gluten Free Diet?T.H. replied to Jessica28's topic in Coping with Celiac Disease I'd definitely try both at first, for the exact reasons mushroom mentioned. For starting off, here's what I would say is a concern, and then an easy list of foods to try for a couple weeks, anyway. You have to treat gluten like you'd treat raw meat - wash anything that touches gluten before it touches your food, and that includes your hands. Use...
- 
	ARCHIVED Kidney Stones Linked To Celiac Disease?T.H. replied to keithceliac2010's topic in Parents, Friends and Loved Ones of Celiacs I likely had small kidney stones for years, and just thought it was horrific gas pains for about a day - you know, all centered in my lower back - until I had a bigger one that passed and was quite a bit more intense. As I understand it, kidney stones can be a problem in some celiacs, yes. There's an article on it here: Open Original Shared Link...
- 
	ARCHIVED Husband Going Gluten Free In Support Of My CeliacT.H. replied to Brigit's topic in Parents, Friends and Loved Ones of Celiacs Good news is that gluten isn't a required nutrient in our diet, so there's no issues there. The gluten withdrawal typically doesn't effect anyone who doesn't actually have some gluten issue to begin with, so that's good there, too. If your husband eats a lot of cereal and grain products in his diet, though? He may want to either be aware of his vitamin...
- 
	...could be the stomach flu that's going around. There's a really nasty one that just knocks people flat, and so far, I have friends in three different states that were all seeing it in the schools and around their cities. These things just get around so easily these days with airplanes and such, you know? So sorry you got sick! Although on the...
