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T.H.

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Latest Celiac Disease News & Research:

Everything posted by T.H.

  1. T.H.
    You might try roasted chickpeas. You can find lots of recipes on the web - they end up tasting rather like corn nuts, although you can make sweet versions with things like cinnamon and sugar, or savory versions with paprika, salt, pepper, etc... They keep for about a week, and while it takes a bit to make them, it's mostly soaking overnight and baking...
  2. T.H.
    Lots and lots and lots of research and massive cooking from scratch. ...it helped me a lot to find some corn allergy websites. They had some good ideas of what to do and what to avoid.
  3. T.H.
    From what I've seen, it will be something that you'll find out as you go along. There seems to be a range of sensitivity, with the most sensitive of us avoiding shared facilities and needing a completely gluten free environment at home, and those who are less sensitive doing fine with shared facilities. I have a family with 5 people who are gluten free...
  4. T.H.
    Hungry all the time - yeah, not uncommon symptom. Mine lasted about 8 weeks, and I was simply hungry every moment of the day. Yeah, that sucked. A lot. But it did go away. Nausea - sometimes that can be hunger, but sometimes it can be due to intolerances, like dairy. Most of us are lactose intolerant until we've healed. The part of the villi that makes...
  5. T.H.
    I had two Dieticians, one recommended by my first GI (hereafter known as 'clueless unhelpful idiot') and one recommended by my second GI, who knows tons about Celiac Disease, and made sure to pass on a lot of that knowledge to the Dietician...who also had Celiac Disease herself so really knew her stuff. The first one was sweet, but didn't tell me much...
  6. T.H.
    I'd rather have my gluten-free food segregated to avoid increased chances of cc AT the store. It's a matter of safety rather than convenience, IMHO. Too often, I've seen whole wheat boxed mixes or flours on a shelf develop a hole, and you can see where the flour has poured out and onto the gluten-free mixes. I don't really look forward to bringing in...
  7. T.H.
    Be prepared for the possibility of losing any food you bring with you, as well. A friend of ours who was going to south america for a trip packed a bunch of food with her - she has gluten issues and a number of allergies - and all her food was confiscated at customs. She had to get everything local, but with no research ahead of time, she ended up...
  8. T.H.

    ARCHIVED Dentist

    T.H. replied to Lexi's topic in Coping with Celiac Disease

    I didn't say the autoclaves weren't doing their job - they are. But their job is to deal with, as you mentioned, things like viruses and other living pathogens. It's not to destroy non-living proteins. And there are numerous types of autoclaves - the UV light, gas, dry heat and steam heat - and some of these are simply not as effective at completely destroying...
  9. T.H.
    If you don't mind my asking, what are your symptoms? Many people here have other conditions as well, and might be able to offer some paths to explore if they knew a few more details. For myself...I got sicker when I went off gluten, actually. For me, this was the reason: 1. I'm allergic to sugar cane, which is in less processed form in most of gluten...
  10. T.H.
    And just for a little more information on the oat front: Open Original Shared Link Yeah, it's wikipedia, but it still has some information that might be of use to you/your doctor. If you DO have trouble with oats, even gluten free ones, then unfortunately you'll want to be more careful, now. Lots of calling involved. :-( Because the oats can...
  11. T.H.

    ARCHIVED Dentist

    T.H. replied to Lexi's topic in Coping with Celiac Disease

    I'm my dentist's second celiac patient, and with his first, he looked into the disease and they called all their product manufacturers for their substances. And yes, sometimes the flavoring can be gluten derived. I, too, use the plain pumice to polish. If, however, he checks it all, it's all gluten-free, and there's still a problem? Another potential...
  12. T.H.
    Oh yeah, I've had those thoughts. I think they're the worst when you've been really careful and eaten food you didn't even LIKE and it made you sick. I always think: you know, I could have eaten much tastier food to feel this crappy. But I still stay away from the gluten, to date, because the more I get glutened (I've gotten cc'd a few days in a row...
  13. T.H.
    True. No matter the age, lots of people without Celiac Disease can have depression, stomach aches, aches and pains, asthma, etc... And yes, these can become more prevalent the older we get. But originally, our aches and pains and so on were the result of our disease. I know that doesn't mean that everything that happens to us from now on is going to be...
  14. T.H.
    That's what I've been leaning towards, yeah. I think knowing how others are doing on his diet and on a less processed food diet might help persuade him. HOpefully. :-)
  15. T.H.
    ha, mine too! I think I even got a little interest back in the transaction.
  16. T.H.
    I came across this the other day and thought is was an uplifting little piece of fun for those of us who get a bit too skinny with Celiac Disease. This is a song that's quirky, silly, a little crude, and written by a gal who was very sick, had to be on a wheat and dairy free diet as part of it, and was trying to use humor to help her get through it all. ...
  17. T.H.
    My father has been gluten free for a little over 9 years now, and for the past year or two he's started to have trouble again. He's developed an asthma-like condition. His depression has gotten worse again. His heart is having trouble. Joints and arthritis are starting to deteriorate again. When he was telling me about this, I thought I recalled seeing...
  18. T.H.

    ARCHIVED Flour Tortilla

    T.H. replied to ll79's topic in Super Sensitive People

    Yeah, friend of mine just had that happen with her midget. He had totally gluten free food, but she had picked up the gluten food and then handed him his food, and wham, he got glutened. However, with flour tortillas, there is a slight chance inhaling could do it, if they were those ones that have loose flour on the sides? Then you'd be inhaling some of...
  19. T.H.
    I'm not a doctor, at all, but honestly? You might want to dive into the research on getting the endoscopy done. You said "It's very counterintuitive as a parent to continue feeding her gluten when you know that's what's causing her issues." I think you hit the nail on the head. I didn't question it when I first ran into the concept, but then a number of people...
  20. T.H.
    So sorry it's been such a frustrating experience, especially when it is so closely tied to keeping your little one safe! I don't have much to add in the realm of the classroom - seems like everyone has some great advice and you're on top of it all. But I did have a question for you: has the doctor that prescribes your son's ADHD medication set up a...
  21. T.H.
    Aw maaaaaan. I did not know that. I would even try it, except I haven't found one I can use yet (allergies AND gluten, sigh). wouldn't be eating beans very often with that expensive of a cleaning method, though, LOL.
  22. T.H.
    Extreme constipation is a symptom, actually. And the fact that it happened after introducing gluten? That seems pretty suggestive. Both my midgets have emotional issues/tantrums after gluten. My daughter especially...and she's 12 now. She just loses it for 3-4 hours, then is on the edge of crying/angst issues for a day or two. My son will get...
  23. T.H.

    ARCHIVED Questions About Diagnosis And Tests

    T.H. replied to NateJ's topic in Doctors

    would it work? Maybe. There's no way to tell - it's pretty individual. Some folks here have eaten gluten for a few weeks and still showed negative, but did it longer and got a positive test. My brother cheated a few times on his diet a week before a re-test (he'd had one just weeks before, long story), and that was enough to show beginning damage. You just...
  24. T.H.
    There isn't currently a way to test your daughter to see if she is a Celiac for now without introducing gluten, but I wouldn't be surprised to find something in the future that will work. For example, I've seen a study where they took Celiacs and non-celiacs and injected a little bit of gluten into their mouth - the cheek, I believe. Also did a mouth...
  25. T.H.
    But they still fall into that category of 'no gluten ingredients' rather than 'gluten free and actually testing our products to prove it,' unfortunately.
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