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T.H.

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Latest Celiac Disease News & Research:

Everything posted by T.H.

  1. T.H.

    ARCHIVED Chocolate

    T.H. replied to dilettantesteph's topic in Super Sensitive People

    If it's not soy, I might have another possibility! I have hive issues with chocolate, too, if I consume enough. Had that before celiac disease diagnosis. No raised IgE levels, though, so doctors were stumped. Turns out, if one is a little sensitive to histamines, chocolate can set off hives in us. I don't think it's completely related to histamine intolerance...
  2. T.H.
    Actually, that's not quite true. There's a new test out now by a company called neogen that can test down to 2ppm. And while I have not tested a lot of products at home with gluten kits, between myself and others I know who do test, it's been really, really, REALLY rare that a processed food has not tested positive with at least a trace of gluten. Heck...
  3. T.H.
    I went through a huge starving phase, but I kind of wanted to eat. But pain and other issues definitely fill me with that 'don't eat' kind of feeling. The quick filling feeling - I know I've heard of some here who have that, but I'm afraid I can't recall what from! Hopefully someone who's experienced this will answer. Just a couple questions that might...
  4. T.H.
    Not on any at the moment, and I'm very grateful. I managed to cut my gluten down to much lower than 20ppm a day, and that took care of the aches and pains issue, as well as my depression. Mine looks like it's all gluten related, thankfully. But I'll be honest, I'm really worried about medication in the future. My thyroid was getting worse the last I...
  5. T.H.
    Although rice krispies are no good, Erewhon makes a gluten-free rice krispie. Just make sure to check the packaging carefully, though - they make a gluten-free AND a non-gluten-free rice krispie cereal. It says 'gluten free' on the correct box. 3. Who makes the BEST Gluten-Free BREAD? BAGELS? I have heard the best feedback from people on Udi's bread...
  6. T.H.
    I was just researching this today! I haven't found out specifics, but you might find research on black radishes and russian treatments for hypo and hyper thyroidism useful. From the little I found today, there is a chemical that is more highly concentrated in the black radish than in the red one (although red has it too) that seems to help regulate the...
  7. T.H.
    I think first, you need to find out the exact results of your biopsy. What aspects of the biopsy led your doctor to believe you may have Celiac Disease? Villous blunting? Inflammation? I would ask for a copy of the results. A lot of folks here have had a lot of various conditions and if they know what the exact results are, they may be able to offer more...
  8. T.H.
    Hugs and a big chocolate chip gluten-free cookie!
  9. T.H.
    Why can nothing on the internet match, arrrrrgh! I was just reading about natural foods that help the thyroid today, and according to a few sources, radishes have been used in Russia for a while now as an aid for both hyper- and hypo-thyroidism. "...Raphanin, the main sulphur component in radishes, is chiefly responsible for keeping the production...
  10. T.H.

    ARCHIVED Chocolate

    T.H. replied to dilettantesteph's topic in Super Sensitive People

    I'm in the same boat, sigh. We were just trying the enjoy life chocolate chips with my daughter the other day, and I think she did okay with a Tb of them. She mixed them in with some popped sorghum, then nuked them together for a few seconds in the microwave. Then mixed it around and she got chocolate coated popped sorghum. Looked pretty good,...
  11. T.H.
    Oh! I just thought of something - are you doing okay with skin contact with soy, or do you have allergy/contact issues as well? I just found out the other day that the majority of carpeting in the world has a soy based product on it. Another soy allergic gal filled me in. sigh. I wish they would make everything in the world out of something none of us...
  12. T.H.
    I was kind of saddened over the whole military thing, actually. If you are a diagnosed Celiac, at least in the USA, you are not allowed into the military. It is something that you will get a medical discharge for, if you are diagnosed while in the military, even. My brother, myself, and my children were diagnosed at the same time, and I had suddenly realized...
  13. T.H.
    As long as we clean it with soap and water, eh? The moment I saw a little boy eating a cookie as he sat in a grocery cart, reach out and play with some produce, and have his mom put it back with the other fruits? That kind of ruined the whole '100% safe' thought process on produce for me, sigh. Not that rare, actually. The cleaning protocols...
  14. T.H.
    I'd second that. If you know what you tend to crave, it helps to plan that for every day. Like if you crave sweets, make sure you have lots of fruit, or a little spoon of honey and such, as a snack. If fat is what gets you, make sure you have some more fattening treats that are healthy, like some types of nuts, or make some simple guacamole and eat it with...
  15. T.H.
    Actually, it might be really important for her to go gluten free right now. It won't hurt the baby at all if she goes gluten free, as gluten isn't a necessary nutrient, you know? But if she is celiac, NOT going gluten free might endanger the pregnancy, especially if she's already having issues. She can try for the blood test right away, but seriously, I would...
  16. T.H.
    When your little one was diagnosed with infantile shuddering, did they do an EEG during one of the shivering attacks? Because the way you described the shivering sounds just like I described my daughter's seizures when she was a little toddler, before we knew they were seizures. And gluten can cause seizures. You may want to quickly do some research on...
  17. T.H.
    I've never been to this clinic, but when I was looking for answers about a rather obscure celiac subject, I emailed a couple of the doctors there in the hopes they might be able to help. They were very polite, helpful, and informative - and this to a total stranger who they've never met and who is not close enough to go to them and give them money as a patient...
  18. T.H.
    Sort of, but honestly, from what I've seen, the claims of how much difference it makes haven't really been studied all that well. I could be wrong - would love if someone has any studies they've ever found that they have links to! The closest to research I've found was a summation of a study that was being presented at a conference. It had looked at three...
  19. T.H.
    Actually, you have a good opportunity to bring it up soon, too. May, at least in the USA, is Celiac Disease Awareness Month. Maybe you could talk to the person who is in charge of the meals and ask to have a food event to help build awareness for what it's like to live with this disease, or with any food allergy or limitation? ...it could be something...
  20. T.H.
    Oh definitely some differences. - farmed fish has some of the highest antibiotic residue of any meat animals sold. So, that could be an issue. - some wild caught fish has higher mercury levels than others. - Some fish has dye added - I believe dye is commonly added to salmon, for example. - they have an article that was just put on the celiac.com site...
  21. T.H.
    I get very sudden, skull pounding headaches from some of my allergens, like sugar-cane, coffee (just inhaling near the stupid stuff), and soy. I get a dizzying pounding headache that leads to vertigo when I get gluten. So far, all grains have given me the same headache, except that when I have tried some of these grains in the wild (some grow native, near...
  22. T.H.
    I have a friend who has a number of anaphylactic allergies that she developed as a small child. What your little one is going through sounds pretty similar - she said that she got very OCD about her food, because it's just so out of control, and very scary, for a little one to go through this. My daughter has been having trouble reacting, too, and...
  23. T.H.
    There's a few reasons these are called gluten-free, I believe. 1. In the USA, the law that would regulate what is required for something to be gluten free isn't in effect yet. So some companies can fudge a bit on the whole 'gluten free' label. If they don't add gluten on purpose, some companies are calling their food gluten-free. When the law was going...
  24. T.H.
    If I had not had kids (I've had two now) and was contemplating pregnancy right now, in the physical shape I'm in? I don't know if I would have done it. I do know I would have seriously considered NOT having children, but since I have them already, I sometimes think that may make it too easy for me to say 'I would adopt.' I still get glutened so easily...
  25. T.H.
    Okay, feel free to pass this on...as personal as it is! Before going gluten free, I would have bouts of constipation that were so bad I would get horrific anal fissures. The toilet bowl would be deep, blood red after a bowel movement, during the worst times. Eating more fruits and veggies never worked, because I'd eat 'healthier,' which tended to also...
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