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T.H.

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Everything posted by T.H.

  1. T.H.
    Did you ever do a food journal, by any chance? That helped me AND my kids significantly. For them, we dropped the 8 most common food allergens from their diet and then recorded their foods (including brands, in case there was a common contaminant) and reactions. We found some foods that are definite issues, but they weren't always the 8 allergens. However...
  2. T.H.
    So sorry it zapped you so badly! My friend's little 2 year old just shared a straw one time with her, when she'd eaten a burger earlier, and THAT got him. It's bizarre to realize it can be so little and do so much damage, yeah? My daughter would sympathize with the change in symptoms, though. Before going gluten-free, she didn't even have gut issues...
  3. T.H.
    Yes! This was very much me. I'm someone who would rub my lips when I was thinking, or I also tend to put things in my mouth to hold. I sew, and hold the sewing needle in my mouth so I don't lose it when I'm tying a knot, or lick a drop of sauce of my finger when I'm cooking or...list goes on. And that was REALLY hard for me to stop doing. I still catch...
  4. T.H.
    I can't have soy either, and we ended up having to buy separate flours and mixing our own mixes. They have proportions for this type of thing on the web in many places, and some don't use soy. Or, you can use another bean flour instead of the soy flour, like chickpea flour, for example. We found these flours much cheaper at ethnic markets. Asian markets had...
  5. T.H.

    ARCHIVED Allergist?

    T.H. replied to dube's topic in Doctors

    I have, and I'd recommend finding a doctor who specializes in food allergies. There are usually one or two in a city, at least. The others? They tend to focus more on environmental allergies and allergy shots, these days. I went to the latter first, and it was awful. My food allergies were, essentially, 'all in my head' and the fact that I started having...
  6. T.H.
    My son had a negative blood test, but we ended up putting him on a gluten free diet anyway. In part, because it was easier to cook that way (we have two diagnosed celiacs in the house anyway). And he had symptoms I didn't even know WERE symptoms that went away on the diet. We did a short gluten trial at 1 year gluten free, and the symptoms came back, so now...
  7. T.H.
    could be related to your celiac disease, yes. You also might want to check out 'paradoxical vocal cord dysfunction' and see if that sounds possible for you. Especially if it's 'irritant induced.' Also, you may really want to check out information about some of the dangers they are finding in gluten challenges - there was an article on here within...
  8. T.H.
    The blood tests DO often come back negative at this age, and they are finding that many people have gluten intolerance without having Celiac Disease, so the tests are always negative for that, anyway. And I think your last statement says it all. What is going to happen if you put him back on gluten and you take the test and it's positive? You'll be putting...
  9. T.H.
    It's bizarre when that happens, isn't it? I ended up fasting a few times just because I felt so miserable and nauseated, but I ended up having water with a little fruit juice that I juiced myself, just to be sure. At first, I used to think I was having a stomach flu, LOL. Mine turned out to just be neuro for my gluten issues, and I had unknown food allergies...
  10. T.H.
    It's really kind of hard to think about it sometimes, you know? I have a friend whose little 2 year old has this disease, and the more they are cleaning, the more she finds how little an amount can get him. At first, he was getting into the dog food (being 2), and he'd get sick from that. They got rid of the dog food, and he'd still get 'gluten sick' periodically...
  11. T.H.

    ARCHIVED Dill?

    T.H. replied to jststric's topic in Coping with Celiac Disease

    Pretty much what everyone else asked: what are you eating with it? Where did you get it? What has it come into contact with? And where did you prepare it? Dill from my garden, where I don't use any fertilizers or sprays- no problem. not going to be a gluten issue. Dill from a farmer's market or grocery store where it can be touched by gluteny...
  12. T.H.
    That was mine as well. Your doc sounds, forgive me, but he sounds very ignorant. Very unaware of just how the 'real world' works, if he thinks that just eating a gluten free diet will somehow protect your from gluten cc in your life so that everything will be all happy and good now. And, you know, healing at a rate that may defy the laws of physics. ...
  13. T.H.

    ARCHIVED No Processed Foods

    T.H. replied to GFreeMO's topic in Super Sensitive People

    Ain't that the truth, phew!
  14. T.H.

    ARCHIVED No Processed Foods

    T.H. replied to GFreeMO's topic in Super Sensitive People

    I'm hoping I might be able to do that soon, too. We haven't been able to find any shelled peanuts that didn't make us a little sick, so I have some unshelled, unroasted ones I ordered that might work - I'm hoping, anyway! A little more effort, needing to shell, and then roast, and then process - but I do miss peanut butter a lot! Think it might be...
  15. T.H.
    I'd second that. Gluten free just means 'below X amount of gluten,' where X is defined by a country's laws. There are no laws in effect in the USA to say how much this is and regulate it. :-( The assumed level is 20ppm daily, but without regulation, a lot of companies are pretty much on their honor system. And products like lipstick and soap and shampoo...
  16. T.H.
    There doesn't seem to be any consensus on this, but most people here would say at least a few months. If you have neurological symptoms, even longer. My son was negative and we did a gluten 'trial' at 1 year gluten free, if that says anything. And for the symptoms - do you have symptoms that are not going away? With my 2 children, they went gluten...
  17. T.H.
    All righty, I'll try to be pithy (which is nearly impossible for me, LOL.). Short answer is: it's likely not gluten. Many people find that they have previously unrecognized food allergies/intolerances that come to the fore once the gluten is eliminated. That could definitely be these. There are also a few conditions that span a broader spectrum...
  18. T.H.
    Honestly, I'd ask this question: What are you going to do after the test? Are you going to go gluten free or continue eating gluten? Because at the moment, it sounds like you're getting a pretty positive 'gluten is bad for me' reaction. And if so...why put yourself through this? Is it going to change your lifestyle at all? Your diet? Because if not,...
  19. T.H.

    ARCHIVED Vinegar...

    T.H. replied to dube's topic in Super Sensitive People

    Re: wine. Here's just a couple studies on the feasibility of fining with plant proteins, but they mention it: Open Original Shared Link Open Original Shared Link It sounds like hydrolyzed wheat might be in wine making now, since the mad cow disease scare, considering these studies are almost a decade old and were looking at the possibility. ...
  20. T.H.
    Definitely could be - see if the doctor knows anything about gluten ataxia. However...if he is having neurological problems on gluten, here's the problem: current thinking is that damage done by gluten to the nervous system can be permanent. His current issues seem like those that resolve, but if there is further damage that you are not aware of - numbness...
  21. T.H.
    I think sometimes finding hobbies that also encourage healthy habits/eating can make it more likely you'll find someone who 'gets' eating a certain way. Sports hobbies, like biking, mountain climbing, hiking clubs - those might do. Health conscious folks there, ya know? Gardening clubs, too, that are focused on organic gardening, at least. Cooking...
  22. T.H.
    I've had a GI doc AND an allergist say essentially the same thing: prick tests and RAST tests have a lot of false positives and false negatives, both. Part of the problem is simply the fact that things are, well, kind of messy in the world. When the serums are made for the prick test (or to be used with the RAST test), the companies do not, say, grow...
  23. T.H.
    The deli meat could be a definite gluten contamination risk. Some luncheon meats contain gluten, but even if it doesn't, if it's been sliced at the deli counter, it's at risk for gluten cc. Kroger (which Smith's, Fry's, and Ralph's grocery stores are under, among others) has a recommendation on their own site that says if you are very sensitive, don't buy...
  24. T.H.
    Yes and no. When I got the test results of foods I was reacting to, my doctor said something that has seemed to bear up after a little over a year of this: the tests aren't all that accurate. Some things may test positive that absolutely aren't. Some test negative that you'll find you have trouble with, and some become problems, and some stop being problems...
  25. T.H.
    I would go with your gut on this one, no pun intended. So far, all the doctors I've come across who think I'm a 'worry-wart' seem to think it because I don't want to follow all of THEIR advice without thinking for myself, you know? That's ego talking, not concern for their patient, and that's usually not a good sign. And for all of them, I found another...
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