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T.H.

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Latest Celiac Disease News & Research:

Everything posted by T.H.

  1. T.H.
    I don't know if this would help, but I, too, always had lots of nasty reactions to medication, and went through a period where I was reacting to everything. So, just in case it might be similar, here's what it was for me. 1. I react to very low levels of gluten, so processed food is often a problem for me. I went to whole foods only. Even still, I was...
  2. T.H.
    There has been speculation for a while in the Celiac testing community that tests for gluten levels may not detect gluten as accurately when gluten is broken into smaller pieces, which happens during hydrolyzation and fermentation (like the sourdough). A new test was developed recently that detects fragments of protein more accurately than before, and...
  3. T.H.
    This is the best recipe I have found to date: Open Original Shared Link It is a step by step set of instructions on the starter AND the recipe for making the bread - you may have to check out her links to get it all, as she has a few posts. This gal is a westerner who lived in Ethiopia for a while and got lots of advice and practice from other Ethiopian...
  4. T.H.
    1. I definitely noticed thyroid improvement on going gluten free. I wasn't on thyroid meds, but I was on the edge of being referred, because my numbers continued to climb. When I went totally gluten free, after my celiac diagnosis, I retested. It took me a bit to completely eliminate gluten and gluten cc, but when I did, my numbers rapidly went back to normal...
  5. T.H.
    Tapioca flour and starch are actually the same as potato flour and starch: they are two different things. However, a couple decades ago, in western countries manufacturers started making tapioca starch only and using the term starch and flour interchangeably. So if you find tapioca starch or flour in western markets, it's usually the same thing: the starch...
  6. T.H.
    I treat them like spinach. If they are small, eating them raw is fine, but the bigger ones need some cooking or they're a bit tough. :-)
  7. T.H.
    Obviously, I'm not a doctor. However, IMO, there doesn't seem to be enough research into this disease, testing, and gluten thresholds to warrant that automatic recommendation. It may be true, but it seems possible that it isn't. You'll probably have to make up your mind on that based on your and your daughter's experiences. My son tests negative on the...
  8. T.H.
    You might be able to have some luck with an organic soda with sugarcane instead of corn syrup and no caramel color added; I see them sometimes in the health foods stores. Although how sensitive are you? Can you have citric acid? I know some corn sensitive folks can, and some can't, and obviously that's in a lot of sodas too. If you can't find ANY soda...
  9. T.H.
    I thought this was a nice explanation about what can penetrate the skin vs. get absorbed into the body: Open Original Shared Link He doesn't address issues that pertain to allergies, but it's interesting with regards to how the body works.
  10. T.H.
    I have that too, yes. I don't get OCD, but rather anxiety and depression, along with exhaustion. Mine tends to last at least a few days, but sometimes can linger for a few weeks if I take a big hit. I honestly don't know if that's normal or not, honestly. I accidentally got an injection that contained one of my allergens and I'm still a bit out of it and...
  11. T.H.
    I don't know of anything that will test a sensitivity, no. However, I know that for some people who react to some corn and not others, the issue turns out to be sulfites. Many corn derived ingredients are processed with a sulfite bath so they make sulfite sensitive folks react. Plain ears of corn are usually okay with this condition, but something like...
  12. T.H.
    Oh great! That's wonderful. Yeah, Celiacs get kind of screwed in the Catholic church, IMO. About one half my extended family is Catholic, living in countries that are ALL Catholic, and some of them are Celiac as well. It's very difficult for them. So glad that your wafers are gluten-free! :-D
  13. T.H.
    One thing that may help is the following: no studies have been done on the gluten threshold for gluten ataxia. There have been studies done on the gluten threshold for Celiac Disease, but those are focused on how much gluten it takes to set off antibodies attacking the intestines. It may be the same for antibodies attacking the brain, but it may not be...
  14. T.H.
    I hate to say this, but if you don't find any other answers, you may want to take a look at the gluten free communion host. I am assuming you are Catholic, yes? The gluten free host - for the Catholic Church - is around 100ppm of gluten. That would not be considered gluten free by the standards the FDA is considering, and does not meet the gluten free standards...
  15. T.H.
    I haven't seen this posted up here yet, so hopefully it's not a repeat! :-) This musical parody of 'One Day More' from Les Mis. is funny as heck. It's done with a food allergy/gluten free slant: 'One Grain More' I laughed my behind off, except for the very, very end, and even that I could sympathize with. Enjoy!
  16. T.H.

    ARCHIVED No Processed Foods

    T.H. replied to GFreeMO's topic in Super Sensitive People

    A Open Original Shared Link was finding that a pretty large percentage of Celiacs aren't healing, actually. 57% of the study's Celiacs who stuck to the diet, plus the 34% who didn't stick to the diet. I would be happier with the results if the study had been larger, but it was still larger than many Celiac studies, with over 200 Celiacs participating. ...
  17. T.H.
    Just wanted to pass on a few other things to check out, if you are still searching. 1. Sulfites. I noticed that you react to corn. I had to avoid corn for a long time, but eventually discovered that I react to the sulfites that are involved in corn processing, so even minute amounts make me sick. And wow does it affect my thinking and my head. There's...
  18. T.H.
    This has happened to me too, yup. I've been doing this not too long, really, about 3 years now. But so far, most of the time, I eventually find a reason for my aversion that makes total sense, once I figure it out. Now I've learned to trust that feeling, even if it makes no sense. Sometimes it's the food itself, but most times, it's contamination of...
  19. T.H.

    ARCHIVED How Do You Do It?

    T.H. replied to GFreeMO's topic in Super Sensitive People

    First, HUGE virtual hug. So sorry it's dragging you down, hon. I know, it's freaking hard as heck. The whole sulfite thing I've run into ensures I've got to avoid all corn, too, even if SS celiac disease didn't do it - processed corn is all sulfited before processing. Kicks my butt completely. Some things I've been trying to do to keep my spirits up about...
  20. T.H.
    I couldn't get better until I went corn free. I've been avoiding corn now for over a year, and if I get it? Hoo baby do I notice! I'll suffer from anxiety and depression issues, insomnia, low frustration tolerance, high irritation levels. And my ability to think is compromised. I know what you mean with that scattered kind of thinking. It's like what I...
  21. T.H.
    Retention and concentration was the biggest difference for both my children (1 celiac and 1 gluten intolerant). My son especially struggled with reading (he is the non-celiac). You could see him enthusiastically learn letters and sounds, and then the next day, he not only couldn't remember what he'd just learned, he couldn't seem to even figure out the...
  22. T.H.
    1. Yes. 2. Yes. Very soon after what I think of as 'symptoms' start, I ended up unconsciously changing my diet's focus. I started avoiding the sandwiches and pasta that made up most of my diet when I was young and tended to eat a lot of Asian rice based or coconut based dishes. I never noticed feeling better or worse; these just tasted better to me...
  23. T.H.
    I know for both my daughter and myself, a couple of our allergies frequently trigger nightmares galore for a couple nights after we get zapped with them. I couldn't prove the connection, but both my daughter and I view them as a side effect of an allergic reaction for us, at least. Obviously this isn't the case for everyone. Personally, I'd just note...
  24. T.H.

    ARCHIVED Silent Celiac

    T.H. replied to txgal748's topic in Coping with Celiac Disease

    I know for myself, there are many symptoms I kind of think of as 'side' symptoms that aren't the initial reaction. I wonder if they might be present even in officially 'silent' celiacs? I don't honestly know. Some of the ones that I've experienced that I have seen at least a few other celiacs mention are: -- the urge to pee, all the time. I was tested...
  25. T.H.

    ARCHIVED Pain Relievers

    T.H. replied to GFreeMO's topic in Super Sensitive People

    If you're in a spot and can't get the compounding pharmacy yet, there's a plant that I've been using. Datura. You can buy it and there are many native versions across the country. It has quite pretty and showy flowers that tend to bloom in the evenings. You can also crush the leaves/petals and use them as a contact anesthetic for some types of pain. ...
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