cdford
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Latest Celiac Disease News & Research:
Everything posted by cdford
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I make it a point to contact restaurant companies when I have a positive experience as well. I knew I was getting somewhere when one of the VP's I spoke with let me know that a group of restaurants in our area were meeting together to discuss ways to meet or special needs. Apparently they were getting a lot of calls. Not too long after that, I went to one...
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ARCHIVED Milling Own Flowers?
cdford replied to VydorScope's topic in Gluten-Free Recipes & Cooking Tips
I appear to be the "resident expert" on this one since I milled my own flours long before becoming gluten-free. Here is some pertinent info. A grain mill is a smaller version of what the large mills use to break up the grains into flour. The ones we discuss here are generally electric and sit on the countertop. You can get manual ones for when you do not... -
Jenn's take longer to show up and end more quickly than mine. Her's usually show up within a couple of days or so and are gone within a couple of weeks except for the dh spots which can last for months.
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ARCHIVED Bread Machine Or Mixer?
cdford replied to Emme999's topic in Gluten-Free Recipes & Cooking Tips
If you want quick and easy bread, get the bread machine. If you don't mind allowing your bread to rise in the pan and then baking it, the mixer is a more versatile machine. Just be sure to get a good mixer. You will have to pay more, but it will be worth it, especially with the heavier doughs we use. A little research and you can save a lot of money. If... -
ARCHIVED How Many Parents Found Out After Their Children..
cdford replied to key's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Jenn was diagnosed years after I was fully disabled with what we now know were long term complications from the celiac disease. When she was diagnosed, my doctors just shook their heads at a possiblity so simple that they had overlooked in me. Sure enough, one set of blood work and I was diagnosed as well. Now if I can just get some other very symptomatic... -
ARCHIVED Gf Antibiotic?
cdford replied to jmengert's topic in Gluten-Free Foods, Products, Shopping & Medications
There are several antibiotics that we can use and the appropriate one will vary by what particular critters you need to kill. Julie, if there is a Kroger near you, check out their pharmacy. We have used two different ones over the last few years and their pharmacists have been diligent about checking meds for us. If they are really busy, they will let... -
Be sure your sun screen is gluten-free if you have dh. Not all are.
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Mine reacts to the sun, but also to the sweating. Another possibility is that you may be reacting to something that you might not otherwise react to dripping onto the skin as you sweat.
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I'm just glad to know the info was valuable enough to someone for them to go searching for it!
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We have multiple celiac disease folks in our household. It can become a "family plan" to get into the house before one of us loses it. Dad, you park the car and run ahead to unlock the doors. Son number one, you get mom's wheelchair lift down. Son number two, you make sure there are no obstacles between the girls and their respective bathrooms. You get the...
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ARCHIVED Which Tends To Be Cheaper?
cdford replied to VydorScope's topic in Gluten-Free Recipes & Cooking Tips
The grain mill will make a fine flour where the spice/coffee mill will give a course grind that is not really suitable for baking. You need both because you cannot mill oily or really soft stuff in a grain mill. The mill will cost around $200 but that is quickly recouped when you calculate the cost of buying either a pre-baked loaf or even a mix from... -
ARCHIVED Which Tends To Be Cheaper?
cdford replied to VydorScope's topic in Gluten-Free Recipes & Cooking Tips
Sorry it took so long to get back, I am still recuperating from my son's wedding! I use a WhisperMill for milling grains and a Black and Decker Coffee/Spice grinder for the flax. There are several available options on both. You need a mill that will handle everything from rice to beans and will mill finely. Check out some of the web sites that handle them... -
ARCHIVED I Need A Crash Course In Fibromyalgia.....
cdford replied to Jnkmnky's topic in Related Issues & Disorders
My doctor gave me an Rx for: 2ml vials of mag sulfate 50%, 1 gram/2ml (the pharmacist orders a box of them) American Regent brand if gluten-free NDC 0517-2602-25 20 mg of 2% xylocaine Astra Zeneca brand is gluten-free NDC 0186-0120-01 1cc regular insulin needles (box of 100) alcohol swabs The mag sulfate bottles are single use vials but... -
ARCHIVED Which Tends To Be Cheaper?
cdford replied to VydorScope's topic in Gluten-Free Recipes & Cooking Tips
A few thoughts... - Your grocery bill will stabilize over time. You mentioned Kroger. Many of their store brands are gluten-free. Put their dietician's phone number in your cell phone or keep a separate area of you cart for questionable items and take them to the customer service counter for them to call the dieticians for you. Soon you will find that... -
ARCHIVED Left Sided Pain, Low Back Ache?
cdford replied to mjbonsais's topic in Related Issues & Disorders
I get them on both sides of the lower abdomen. My back is in bad shape because of the fibromyalgia, so it hurts all the time. I also get a different pain in the lower back after being glutened. -
Our systems can balk at anything they are not used to, but unless there is a medical concern such as intolerance, allergy, or celiac disease, ingesting gluten should not be a problem.
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ARCHIVED On Line Shopping
cdford replied to Jnkmnky's topic in Gluten-Free Foods, Products, Shopping & Medications
I finally got it down to mostly one retail grocery (Kroger). Many of their store brand items are gluten-free and they have great dieticians available by phone. If I have to go to another one for something specific, I try to purchase a lot at a time. I go to Sam's club once a month for meats, cheeses, etc. since I cannot afford them at Kroger. I use only... -
I have bought even the expensive non stick pans with the 75 yr warranty on the coatings and they did not hold up. They are no longer non stick after just a year and a half. As soon as I can afford it, I am going to try the 18/10 stainless good stuff (I got a cheap set last year and they were useless because they did not have the heavy bottom insert thing...
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ARCHIVED No More Diarrhea
cdford replied to Ally2005's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I use it regularly to control D. It works better than some of the meds designed for this purpose because it does not spring you to the other extreme. I find that using half a dose at a time but more often works better for control purposes that a whole dose at a time. For those of you on Qestran--if you are like me and just cannot get that stuff down,... -
If there is a Kroger in the area, they often have a gluten free section. Also, many of their store brand items are gluten-free. Their dieticians are available 7am - 3pm ET by phone and are great. One suggestion...you may want to order ahead and have some items you are familiar with sent to your location here. It is always good for our systems to have...
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ARCHIVED Grill Contamination
cdford replied to Emme999's topic in Gluten-Free Recipes & Cooking Tips
I have had restaurants refuse to cook something on their grill for fear of cross contamination as they used gluten containing seasonings. They fixed for me, just differently. I have been glutened by a grill experience, but I am not sure if it was carelessness on the part of the family member cooking or a true "grill problem". I had no idea that the charcoal... -
Is this the same one that got hit by a truck last week and is trying to figure out how to finish the ride? I saw the article and have been praying for her ever since.
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ARCHIVED How Long Are Typical Reactions?
cdford replied to aidansmom's topic in Parents, Friends and Loved Ones of Celiacs
Hope your little one gets to feeling better soon. Our reactions can last anywhere from a few days to a few months according to how much we got into. A simple french fry kind of thing would usually take two or three days to fully kick in and then be a problem for a couple of weeks or so. If we get into several small things like that over a period of time,... -
ARCHIVED Buying In Bulk
cdford replied to celiac3270's topic in Gluten-Free Foods, Products, Shopping & Medications
I checked out the xanthan gum at Blue Chip. Their price for one pound is about the same as what I paid for 8 oz at the store last week. Sure wish they would package it in something more than 1# but less than 25#! I would probably use the whole 25#, but coming up with that much money at one time would be tough. Note that their price list is downloadable... -
ARCHIVED Buying In Bulk
cdford replied to celiac3270's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks, Laurie. I bookmarked the site so I will go and research a little further.