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kareng

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Everything posted by kareng

  1. kareng
    Last year, when we were skiing, some people had the ingredients from a gluteny Cup of Noodles instant soup in plastic baggies. At the warming hut, they used the hot water and cups and made a little cup of soup. I would like to do something like this. I know I could use Knorr instant bouillon packets and that may be all I can do. I wanted to see if...
  2. kareng
    Great...... Another article telling people its OK to eat sour dough bread..... The things I have read about sour dough bread say that, while some gluten may be destroyed - its spotty and you would need to test each bite before eating. It might be helpful for people with gluten sensitivities that can stand a little gluten - but not for Celiacs. AT...
  3. kareng
    A little packet of mixed nuts (sometimes its peanuts), a little packet of Enjoy Life seed and fruit mix, a packet of Skittles and some chocolate.
  4. kareng
    While it might be good to get her thyroid tested - Celiac disease isn't usually followed by an endocrinoligist - usually a GI and a primary care doc.
  5. kareng
    Ok.. but... did she have a positive blood test AND a positive biopsy? Because, if the blood test was not positive or maybe just barely positive, a GI should be looking for other things - like the links I posted. Those links are from actual Celiac experts at an actual hospital - so most doctors will take a look at that info.
  6. kareng
    If its is a positive blood test and a positive biopsy - it is Celiac. If it is just a biopsy - maybe there are other issues the GI should be looking for? Open Original Shared Link "Could you have positive blood work and a positive biopsy and not have celiac disease? Positive blood work (meaning tTG or EMA) and a biopsy consistent with celiac...
  7. kareng
    This topic is over 3 years old - most of the posters are no longer hanging around. I think you are talking about FODMAPS. We have had many articles about that as a possible explanation for NCGI.
  8. kareng
    When most people and doctors refer to a " Celiac panel" they are talking about the Celiac antibody tests. the DNA test is usually separate in the USA. Just having a gene for Celiac does not mean you have Celiac as about 30% of the population have the gene but only about 1% have Celiac. Like I said before, ask your questions in the forum - more people...
  9. kareng
    Open Original Shared Link "A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for t...
  10. kareng
    The Red Robins here are franchises. So, what one does the others might not do. I think I would email the main company and the local franchisee about this.
  11. kareng
    Yes. You must be eating gluten to test for Celiac. "Trying to follow a gluten-free diet" is fine if you don't have Celiac. If you actually have Celiac, you will never get well, and likely get worse, if you are only partially gluten-free. If having a diagnosis is what you need to force yourself to be gluten-free, then you may need to get tested.
  12. kareng
    And... Just because you didn't have Celiac 5 years ago .... Doesn't mean you don't have it now.
  13. kareng
    I agree. It seems that NCGI has many different reasons for it. Some, like a messed up gut - good bacteria to bad ratio, may not even be genetic. Until they figure out if NCGI is even its own separate and distinct disease, it would be hard to have discovered genes for it. Open Original Shared Link Open Original Shared Link
  14. kareng
    I would suggest you get copies of the Celiac blood tests and the biopsy (pathology) report from the endoscopy. Celiac si not diaganosed by how a stomach lining looks. A GI doc will take biopsies of the small intestines and then a pathologist will look at them under a microscope. Sometimes the damage in the small intestine is bad enough that the doc can...
  15. kareng
    Do you actually have Celiac or not? The doc sounds a bit wishy washy with this "try gluten-free" stuff. If it isn't Celiac, he should be looking for other issues.
  16. kareng
    You don't need to worry about things like stick deodorant. Just worry about the things that might get in your mouth. Like Nicole said, bring your reading glasses - the wheat germ oil in the hair spray is pretty obvious in the ingredient list.
  17. kareng
    Just an FYI - this thread is almost 8 years old. Most of these posters are not still around the forum.
  18. kareng

    ARCHIVED Pho

    kareng replied to Juliebove's topic in Gluten-Free Restaurants

    Just an FYI - you are responding to a thread from 2011.
  19. kareng
    This is a nice write up of the session I attended at The International Celiac Disease Symposium (but was too lazy to write myself LOL). Open Original Shared Link "....But what about all the cross-reactivity with gluten I’ve been reading about on the interwebs? Luckily, 86% of the conference said no, because the answer is no. IT IS A M...
  20. kareng
    Looked up "polish wheat" - it is just a variety of wheat - so DON'T EAT IT! And you need to eat gluten-free oats - not just any old oats.
  21. kareng
    No need to worry. With Celiac disease, there is no such thing as "cross-reactive". Open Original Shared Link What’s with all the talk about certain types of food causing “cross-reactivity?” There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, oran...
  22. kareng
    I haven't found many BBQ sauces with gluten. I don't use canned baked beans - but there are many that are gluten-free. I am in the US - so products differ in other countries. Just trying to make life easier.
  23. kareng
    We had issues with the Blue Buffalo - they have had issues with ingredients (not gluten related) and made both my dog and my cat sick. Merrick makes a high quality gluten-free/grain free cat food.
  24. kareng
    Last night I made chicken noodle soup!
  25. kareng
    Steroids can mess with the Celiac blood tests. Open Original Shared Link If eating gluten-free makes you feel better, that is what you should do.
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