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kareng

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Everything posted by kareng

  1. kareng
    I have never seen a soda with gluten. I drink this sometimes.
  2. kareng
    FYI - all the other info on this thread is 5 years old. Re- check before just assuming it is all the same . Products change over that period of time.
  3. kareng
    It has gotten a bit confusing. Not sure what is going on. For anyone reading this: it's often a good idea to get the colonoscopy with the endoscopy. But the endoscopy with biopsies, is used to check for the villi damage seen in celiac. The endoscopy is looking at the top half of the digestive system. A colonoscopy can look for other issues, like Crohns...
  4. kareng
    Actually, I suggested you read the link I sent to the Univ of Chicago Med Ct. I think that link mentioned at least 2 weeks for an endoscopy for a Celiac biopsy. Doesn't really address colonoscopy for your other issues. Usually, a colonoscopy isn't considered a diagnostic tool for Celiac. So, if you are just having a colonoscopy, there is no reason to...
  5. kareng
    Yes. And I gave you a link to the short answer. The Univ of Chicago Medical school Celiac center participates in research as well as treats Celiacs everyday. They can be a good resource for you based on their experience and involvement with research.
  6. kareng
    So, you did learn that for a biopsy to be positive for Celiac, you must be eating gluten? Open Original Shared Link
  7. kareng
    Luna has some that are about 190 calories. They aren't bad for that type of thing.
  8. kareng
    I cut it all out. Forgot one thing - we use a pink or purple sponge for gluten-free and a regular blue or green one for gluten. Gluten is a crumb issue in a kitchen. Also, if you bake with regular flour, be careful because it can take 24 hours for the flour to settle out of the air. Have you read the Newbie thread in the Coping section?
  9. kareng
    Celiac antibodies go up over time. First degree relatives (a child of a Celiac, fr example) should be tested every 2-3 years. Celiac can start at any time. You could even be in the very early stages and haven't made enough antibodies to show up high in a blood test. Please read this and show it to your doctor if they are clueless. Open Original...
  10. kareng
    If someone is eating gluten, they probably get some crumbs in their drink. Symptoms can be different for each person. Its usually not immediate as your body has to start the process of making antibodies and the antibodies have to have time to start attacking the intestines, giving you migraines, whatever it is.
  11. kareng
    Anything that washes well is fine to share. You don't want to use a colander that was used for gluten pasta to rinse your grapes. It is impossible to get the gluten out of every little hole. Sponges used to wipe up bread crumbs will still have bread crumbs in them. That sort of thing. I bought duct tape in red- it comes in all kinds of fun prints...
  12. kareng
    Looks like the steroids would be an issue. Are you eating a regular gluten diet? and not taking steroids? Also, a colonoscopy is not used to diagnose Celiac disease. You need an endoscopy (the top half of the intestines) for that. They are easy to do at the same time. You could re-test your blood if you have been off the steroids and eating gluten....
  13. kareng
    If you want him tested for Celiac, he must be eating gluten. Open Original Shared Link How much gluten should be consumed prior to being screened for celiac disease? It’s best to continue a normal, gluten-containing diet before being screened and diagnosed. If a gluten-free diet has been followed for more than a few weeks, then we recommend eating a...
  14. kareng
    I bet they didn't keep any extra stool sample they had left. But the doctor can fax them an order to do the test on the left- over and find out.
  15. kareng
    The good thing is, if we read the ingredients, we will see the gluten ingredient. Some things people are surprised to find contain gluten- Cereals like Rice Krispies and cornflakes ( there are gluten-free versions) Non- gluten-free oats Licorice Contadina flavored tomato paste ( Italian herb) Soy sauce and " Asian" flavors that contain non gluten...
  16. kareng
    Congrats and welcome to the club! Unfortunately, our secret de-coder rings and matching club ties are on back-order! The good news is we don't charge any dues.
  17. kareng
    Tooth decay, infertility, mental health issues, no energy, etc. Open Original Shared Link One reason to be diagnosed at your age is that Celiac is a very real automimmune disease. If you are hospitalized or have to go to a rehab facility or nursing home, you will need a diagnosis to have any chance of getting a gluten-free diet. There are things...
  18. kareng
    I think that would work. You might look it up. I think it was on a site like Mayo that I saw that.
  19. kareng
    You can post here. The treatment is the same - gluten-free diet. That said - I am sorry you didn't test for celiac before going gluten free. You have so many celiac symptoms on your list, ones that aren't symptoms of NCGI.
  20. kareng
    If you go gluten-free, there is no point in other celiac tests - blood or endo. You will have to go back on gluten for a few months to get an accurate celiac test. It's best to get tested before you go gluten-free.
  21. kareng
    Do a sublingual B12. I don't have the research handy but many Celiacs never completely get the ability to absorb b12 in the small intestines back. I trialled it and I need the sublingual. You can crunch up regular b12 tablets and stick them under your tongue but the sublingual ones have a little flavoring that makes it easier to swallow ( or actually ...
  22. kareng
    Don't double dip the Pb or margarine. It leaves obvious crumbs and some not so obvious ones. Read the Newbie thread first. https://www.celiac.com/forums/topic/91878-newbie-info-101/#entry896943
  23. kareng
    There might be something else going on. You may have to bother your doc about that. The iron helps you have healthy red blood cells that carry oxygen. Red blood cells live about 28 days. Everyday, some are dying and new ones are being made. So, if you suddenly have enough iron this past week, you have remade 1/4 of your red blood cells as healthy ones...
  24. kareng
    Can he understand those kind of papers? Here is info from the doctors that do the research, summarized into an easy to understand format. Open Original Shared Link under "lifetime commitment"
  25. kareng
    How do you know "the stuff does in fact have wheat in it. "?
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