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Latest Celiac Disease News & Research:
Everything posted by kareng
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ARCHIVED Has anyone tried the Fasano diet?
kareng replied to PaigeyPants's topic in Super Sensitive People
Get a doctor and get the recommended follow up for Celiac! Stop playing with your health.. -
ARCHIVED News: Celiac.com: Simply Delicious: Appetizers for New Year's
kareng replied to Scott Adams's topic in Publications & Publicity
Might be a way to leave a comment on the actual article? Greater chance the writer of this drivel would see it. -
ARCHIVED Has anyone tried the Fasano diet?
kareng replied to PaigeyPants's topic in Super Sensitive People
It would be 3-7 days to find out your antibody results. That would tell you if it's even worth doing the Fasano diet. Maybe your issues are something besides gluten. i think for the Fasano diet, you do it it for several months and then retest your antibodies. I would have to look that up. -
ARCHIVED Has anyone tried the Fasano diet?
kareng replied to PaigeyPants's topic in Super Sensitive People
SO...when you doctor retests your antibodies, they aren't coming down? Or there is some other food, ingredient or something like FODMAPS that might be your problem? The Fasano diet is usually for people who can't get their antibodies down on a conventional gluten-free diet. -
ARCHIVED Follow up on my son....high IGA
kareng replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm not sure exactly what test this is. If it is just the one to see if he produces enough IGA for a Celiac test, then being high might mean nothing or be related to something else. -
ARCHIVED Help with Not Feeling Crazy
kareng replied to pemlhs1201's topic in Coping with Celiac Disease
I guess my point is that you seem to think it is gluten, but you are very careful & you don't know where it is coming from.....so maybe it isn't gluten this time. -
ARCHIVED Help with Not Feeling Crazy
kareng replied to pemlhs1201's topic in Coping with Celiac Disease
That's all possibilities except this person doesn't eat gluten! I hate to see them not seek help. -
ARCHIVED Help with Not Feeling Crazy
kareng replied to pemlhs1201's topic in Coping with Celiac Disease
I am not sure why you think these issues are due to gluten? You say you are eating gluten free? Maybe you should consider that you might have an additional issue besides Celiac? I would hate for you to dismiss a real problem that you might be able to get some help for. -
ARCHIVED If one Celiac has a reaction, shouldn't we all avoid that item?
kareng replied to Joelle L.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I go with science. And if something bothers you - like whiskey or potatoes or bananas - don't eat it. But that doesn't mean it has gluten! -
ARCHIVED If one Celiac has a reaction, shouldn't we all avoid that item?
kareng replied to Joelle L.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There are a lot of reasons for this - The main reason is that that would leave absolutely nothing to eat or drink! Nothing! Not even water! I have seen people swear they have a gluten reaction to water, bananas, oranges, etc. How do you know that this person you do not know is even telling the truth? How do you know it is a reaction to... -
ARCHIVED Please help
kareng replied to Julieboatwright's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think you should see a GI doctor. It could be Celiac, colitis or Chrons or some of each. -
Don't muscles burn more calories? Maybe you are using more calories than before you started working out and gaining muscle?
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ARCHIVED Convinced I have celiac but doctors disagree
kareng replied to Steeb122's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I wanted To I wanted to get that cleared up. We get many people & their MDs or other " medical practitioners" here that don't realize a " food allergy test" is not a Celiac test. I have also seen where people do not get an endoscopy past the stomach. -
ARCHIVED Convinced I have celiac but doctors disagree
kareng replied to Steeb122's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I didn't have any of that not always accurate testing. You are taking that out of context. -
ARCHIVED Convinced I have celiac but doctors disagree
kareng replied to Steeb122's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think I need to clear up a few misconceptions here. celiac is it an allergy and will not show up on any sort of food allergy testing. Negative Celiac blood work is not common. It can happen, but it isn't not common. celiac damage does not show in the stomach - it is in the small intestine. -
ARCHIVED TTG level post diagnosis
kareng replied to ladyfood's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Look up the Fasano diet for Celiacs with numbers that won't come down. -
Paper Towels And Toilet Paper
kareng replied to celiac-mommy's topic in Gluten-Free Foods, Products, Shopping & Medications
And someone will take it literally and then will tell me that it might get in the the mouth! ? -
Paper Towels And Toilet Paper
kareng replied to celiac-mommy's topic in Gluten-Free Foods, Products, Shopping & Medications
Please post your source for this information. A copy of the me email from the company confirming wheat in the tp. I can't imagine how wheat would make it softer. I fear this is just one of those stories that get spread around the internet. However, a Celiac can rub wheat gluten on themselves and it wouldn't give a Celiac reaction. Glutened must... -
ARCHIVED Getting my kids tested- what are the odds?
kareng replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
People with autism have a high rate of Celiac. Your doctor is supposed to test him for Celiac. https://www.celiac.com/articles/24962/1/Celiac-Disease-Linked-to-Nearly-Every-Inflammatory-Disorder/Page1.html -
ARCHIVED How Long Does The Gene Test Take To Come Back?
kareng replied to 3groovygirls's topic in Parents, Friends and Loved Ones of Celiacs
You are responding to someone from 2009. Hopefully they have gotten the test results back by now! ? -
ARCHIVED SPice time boullion recall for for wheat
kareng posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link "Gel Spice Company, Inc. is voluntarily recalling certain Spice Time and Spice Supreme Beef Flavored Bouillon Cube products (identified below) because they contain undeclared soy and wheat" -
ARCHIVED Question about the science behind the biopsy
kareng replied to Arduaine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Two weeks is usually not long enough of a gluten challenge for a blood test. The antibodies are made in the small intestine and it can take a while for a body to make enough of them to show up in the blood stream in levels that can be detected with current testing. With the biopsy - Celiac damage is not consistent. What I mean is that the whole small... -
ARCHIVED vomiting ALL foods with celiac??
kareng replied to sarahapril224's topic in Coping with Celiac Disease
That is not normal for Celiac. She should see a doctor and consider that she might have something in addition to Celiac wrong. -
ARCHIVED Heinz organic ketchup
kareng replied to lilo's topic in Gluten-Free Foods, Products, Shopping & Medications
What ingredient makes you think it is not?