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sb2178

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Everything posted by sb2178

  1. sb2178
    Who. Wicked fast runner, sorta famous if you follow the sport. That's the 100 meter (bout the length of a football field).
  2. sb2178
    lower right pain is typical of Crohn's disease-- it's unlikely but not impossible to have both. Got any other symptoms that could be that? Do beans and whole grains make the pain worse?
  3. sb2178
    Bulgur, cous-cous, pasta, wheat/rye/barley cereals, pretzels, crackers, flour tortillas, etc. Have at them all-- the amount of gluten depends more on the type of wheat than how it's processed. And eat a really, really good chocolate croissant for me. Just one.
  4. sb2178
    Oh, I hate the "you don't have a fever, you're not sick" line. As I have had precisely one fever in my adult life but been ill a number of times. Thoughtful letters to previous providers seems like a very productive response. I'd write them to a couple of docs I saw about 5 years ago, but my blood tests were so very barely positive that it is unlikely...
  5. sb2178

    ARCHIVED Cereal Bars

    sb2178 replied to spryro's topic in Coping with Celiac Disease

    PURE bars are pretty awful. I like larabars. Clif bars fruit, nut and sea salt ones are good but pricey for the size. Making my own works out well: toasted buckwheat flour or quinoa flakes mixed with toasted ground nuts/seeds, ground cinnamon, an egg or two, sunflower seed butter, and honey/agave. Shape into small rounds and flatten. Bake at a low...
  6. sb2178
    Serum IgA has a wide normal range, so unless you had extremely high TTG (like some people have over 200), you wouldn't necessarily expect it to affect the total. Your doc was probably, at my best guess, evaluating your immune system function overall to see if your entire system is hyper-reactive or otherwise screwy. Since the totals are normal, the most...
  7. sb2178
    A mortar and pestle makes a huge difference: 1 small clove garlic pinch salt fresh ground pepper to taste Grind into a paste. Add: 1 T fresh herbs or 1 tsp dried herbs 1/2 t mustard, prepared or 1/4 t dried mustard powder 2-3 T balsamic vinegar mixed with lemon juice to taste 3 T olive oil drizzle of water (maybe 1 tsp?) This makes enough...
  8. sb2178
    A new topic will probably get more responses... I dropped down to low discomfort within 2-3 weeks but 5 months to be pretty much entirely pain free. Took taking out dairy and peanuts, and possibly should have done so earlier.
  9. sb2178
    Well, have you had follow-up bloodwork? If you aren't fully healed, you may not have sufficient absorption or deficiencies like iron. Whenever anemic, I am typically crazy munch-y. Also, aim for meals with substantial amounts of protein and good fats (fish, avocado, nuts, olives, etc). Beans and potatoes tend to be pretty satisfying too. Think salmon...
  10. sb2178
    I wasn't having heart palpitations, but did have low blood pressure problems and was often very lightheaded and even collapsed and blacked out for a few seconds a number of times. If you aren't absorbing electrolytes like potassium, magnesium and sodium that can do very strange and occasionally very dangerous things to your heart. And, since it sounds...
  11. sb2178
    Recent breakfasts: Soymilk with cocoa powder and wild rice/lentil/quinoa pilaf Soymilk with cocoa powder and apple with sunflower seed butter Leftover tuna white bean salad on grated carrots Leftover lamb vegetable stew Salmon burger and apple Six bean soup If you bake your own, you can play with the ingredients to get higher ratios of...
  12. sb2178
    My food suggestions: Pasta can be bought in bulk bags via that giant online retailer. Much cheaper, although still not comparable to wheat. Corn tortillas. Tortilla chips and plain potato chips are often safe. Ice cream/yogurts often safe. Fruit cups are good snacks for lunches, or just dish out fruit from cans/jars at home. Watch for mixes...
  13. sb2178
    Yeah, you need longer than a week. And you've already seen some improvement. I also had weakly positive tests with a negative biopsy, but the diet made an enormous difference in quality of life.
  14. sb2178
    Substitutes. Baked apples instead of pie, cornbread instead of rolls, etc.
  15. sb2178
    Well, the antibodies would cause extra inflammation. Chronic inflammation is generally bad, and how it manifests would depend on your vulnerability. I had a ton of joint pain that faded without the gluten exposure. The "brian fog" aka neuro celiac is a typical representation and also recognized as being best diagnosed with AGA rather the EMA/TTG. And...
  16. sb2178
    baked custard! pumpkin or maple poached apples with cranberries
  17. sb2178
    The TTG antibodies are "anti-self" antibodies, which mean your body is attacking your intestines. The DGP/AGA are anti-gluten antibodies, which means that your body is attacking gluten. IgA is one class of antibodies; IgG is another class of antibodies. Sort of like apples and oranges, fruit but not exactly the same. And, I hope someone is taking...
  18. sb2178
    Yes, invest in a wide-mouth thermos and you can pack soups/stews/curry/rice and beans, etc. I like making the giant pot of soup or bean-based dishes on Sunday night and then packing that for lunch all week. Mixing beans/lentils and meat is a good way to stretch the meat over more days. You could also make muffins or cornbread (double the recipe and freeze...
  19. sb2178
    You don't have to take out the processed foods forever, just try 3 or four weeks without to help heal and get a baseline "wellness" before you add anything processed. Turns out, every gluten free bread I've tried (all three of them) give me mild stomach aches. Maybe yeast...? Not something I would know if I had been eating it all along. It definitely...
  20. sb2178
    White rice is often enriched with other B vitamins (to prevent beri-beri); so again, if it is either fortified or enriched, do not rinse. Otherwise, do whatever you want for your recipe. Brown rice can be rinsed or not as you like without and major nutrient losses.
  21. sb2178
    Yeah, i was just at a wedding shower where I could eat precisely two things and three people offered me giant slices of cake in about two minutes. Fortunately, I had something to do with my hands, or else it would have been more frustrating to watch people eat. Taking your own is always helpful-- if I had more food in the house, I would have done so. Eating...
  22. sb2178
    Thai Kitchen noodles are pretty close to ramen. Add your own slice of meat and handful of greens, maybe some bean sprouts. Set aside time for you to make (or purchase) something you really like, whether it is pancakes or cheesecake, about once a week. Nut bars and trail mix are good subs that you can carry around. Something like maple sugar candy is...
  23. sb2178
    You could also get genetic testing, which would help clarify a little. Given you daughter has it, you probably have (a) gene(s), but sometimes the piece of paper helps.
  24. sb2178
    I adored them, and don't remember weird flavors. It's been a while, though; they're hard to find.
  25. sb2178
    Definitely not the local bakery, unless it's a totally gluten-free facility and I'd still be wary because you don't know what their sourcing is. You can make your own mustard fairly easily.
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